Parkinson's Disease Tulip


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Old 10-04-2007, 11:50 AM #1
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Default Hearing Loss?

I am doing some more research- running off on a tangent of my hypothesis. Wondering why all the cell loss seems to come near melanin cells.

Melanin cells form a layer in the cochlea. I cannot find any data on PD and hearing loss though.

I have pronounced hearing loss in my right ear, and my father started losing his rather early on one side too.

Just wondering-- can you hear me now??
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Old 10-04-2007, 01:36 PM #2
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Default Hearing Loss?

I think it is hard to attribute this to PD, but actually something really weird happened to me once. I completely lost hearing in both ears for six weeks. I could not hear a thing. It came on gradually. I had been hearing clicking sounds, like there was fluid in my ears. One night I was watching TV and my husband came in the room and turned it off. He asked me why I didn't turn it down. Didn't I hear the neighbors pounding on walls? At the time I could barely hear the TV. The next morning I woke up totally deaf and terrified.

My husband took me to a hearing specialist and he confirmed my inability to hear. He said to wait it out and see what would happen. Six weeks later, one ear suddenly started clicking and I was able to hear again. The other ear took a few weeks. When I went in for a hearing test, they discovered I had lost 50% hearing in my right ear. The person who did the testing suggested that maybe I should consider a hearing aid. I was still in my middle thirties. Vanity made me say no.

Vicky
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Old 10-05-2007, 12:06 PM #3
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Interesting. A couple of years before my motor symptoms really started to become an issue, I started losing my hearing. I was diagnosed with something called osteosclorosis, which basically means the bones in your ears that vibrate to transmit sound (anvil, hammer, stirrup) have calcified and hardened. When they test my hearing through my ears, I've lost about 50%. But when they test my hearing from behind my ears on my orbital bones, then it's perfectly normal. They say it's hereditary, so maybe check your family history. There is no cure except for a highly risky surgery that has serious side effects like facial paralysis, permanent loss of hearing, and permanent vertigo. Yay!

I have noticed a number of people with PD who also have hearing issues. Coincidence? Who knows...

It reminds me of when I was talking to a nationally recognized MDS once about young-onset PD patients and migraines. He said there was no research to back that up but that now that I mentioned it, he realized that a great number of his patients had this issue.

My guess is, there's still so much we don't know about PD, the brain, and resulting issues like this (hearing loss, migraines, etc.) that we may never get the answers we seek. So frustrating...

And as a side note, I threw vanity out the window years ago. I wear hearing aids, they suck, but at least I can hear most things now.
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Old 10-05-2007, 03:55 PM #4
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Quote:
Originally Posted by Todd View Post
Interesting. A couple of years before my motor symptoms really started to become an issue, I started losing my hearing. I was diagnosed with something called osteosclorosis, which basically means the bones in your ears that vibrate to transmit sound (anvil, hammer, stirrup) have calcified and hardened. When they test my hearing through my ears, I've lost about 50%. But when they test my hearing from behind my ears on my orbital bones, then it's perfectly normal. They say it's hereditary, so maybe check your family history. There is no cure except for a highly risky surgery that has serious side effects like facial paralysis, permanent loss of hearing, and permanent vertigo. Yay!

I have noticed a number of people with PD who also have hearing issues. Coincidence? Who knows...

It reminds me of when I was talking to a nationally recognized MDS once about young-onset PD patients and migraines. He said there was no research to back that up but that now that I mentioned it, he realized that a great number of his patients had this issue.

My guess is, there's still so much we don't know about PD, the brain, and resulting issues like this (hearing loss, migraines, etc.) that we may never get the answers we seek. So frustrating...

And as a side note, I threw vanity out the window years ago. I wear hearing aids, they suck, but at least I can hear most things now.
This is very interesting. I have not had total hearing loss, however my ears ring, buzzy and sometimes I lose hearing in one or the other ear. But only for a few minutes.

Now migraines is a different issue. I have struggled with migraines for sometime now as well as daily headaches that just kind of sit in the back of my head. I have been able to get them under control with the help of a migraine specialist. He put me on an old blood pressure medicine and a supplement called Migra-Eaze. It has B-2 and Butterburr root in it. It has worked wonders for me. I have seizures due to my migraines, but when the migraines are under control, so are my seizures.

I haven't been dx with PD, but suspect that I have it. You can look at my other post to get the jist of what is happening to me.

If any of you have any thoughts/ideas/suggestions, I would appreciate you letting me know.

Thank you in advance.

Missy
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Old 10-05-2007, 09:29 PM #5
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Default weird...

how different we are. I hear very well, in fact almost as well as a dog.. I think Todd gets to the point that hearing is more of a "mechanical" process, and the auditory nerves are not involved in the cell losses seen in PD.
There is a well known theory that cells in the olfactory bulb are "highjacked into producing dopamine", and that this contributes to the fact that a lot of PWP lose their ability to smell things as intensely as they used to, But i've never heard of hearing loss a being a common "marker" for "parkinsonism".
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Old 10-05-2007, 10:10 PM #6
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thanks ol'cs, I was getting the impression I was wrong when everyone mentioned other types of hearing loss.

Mine must be a relic from that Aerosmith concert back in '79.
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Old 10-06-2007, 10:12 PM #7
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Default Dear Ol CS

The genetic Young onset Parkinson patient has no loss of smell. Anouther difference between those with idiopathic Parkinson's disease and thow with genetic mutations. Research in early 2000 "a study of several patients with genetic Young onset Parkinson's Disease.

Vicky
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Old 10-07-2007, 07:54 AM #8
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Default hUh?

Related Background Brief:

EARLY DIAGNOSIS OF PARKINSON'S DISEASE. In idiopathic Parkinson's
disease (IPD) approximately 60 % of the nigrostriatal neurons of
the substantia nigra (SN) are degenerated before neurologists can
establish the diagnosis according to the widely accepted clinical
diagnostic criteria. It is conceivable that neuroprotective
therapy starting at such an 'advanced stage' of the disease will
fail to stop the degenerative process. Therefore, the
identification of patients at risk and at earlier stages of the
disease appears to be essential for any successful
neuroprotection. The discovery of several genetic mutations
associated with IPD raises the possibility that these, or other
biomarkers, of the disease may help to identify persons at risk
of IPD. Transcranial ultrasound have shown susceptibility factors
for IPD related to an increased iron load of the substantia
nigra. In the early clinical phase, a number of motor and
particularly non-motor signs emerge, which can be identified by
the patients and physicians years before the diagnosis is made,
notably olfactory dysfunction, depression, or 'soft' motor signs
such as changes in handwriting, speech or reduced ambulatory arm
motion. These signs of the early, prediagnostic phase of IPD can
be detected by inexpensive and easy-to-administer tests. As one
single instrument will not be sensitive enough, a battery of
tests has to be composed measuring independent parameters of the
incipient disease. Subjects with abnormal findings in this test
battery should than be submitted to nuclear medicine examinations
to quantify the extent of dopaminergic injury and to reach the
goal of a reliable, early diagnosis. G. Becker et al: J Neurol
2002 249:III-40.
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Old 10-07-2007, 08:20 AM #9
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Lightbulb low magnesium intake..

has been associated with PD.

Quote:
Neuropathology. 2006 Apr;26(2):115-28.Click here to read Links
Magnesium deficiency over generations in rats with special references to the pathogenesis of the Parkinsonism-dementia complex and amyotrophic lateral sclerosis of Guam.
Oyanagi K, Kawakami E, Kikuchi-Horie K, Ohara K, Ogata K, Takahama S, Wada M, Kihira T, Yasui M.

Department of Neuropathology, Tokyo Metropolitan Institute for Neuroscience, Japan. k123ysm@tmin.ac.jp

Parkinsonism-dementia complex (PDC) and amyotrophic lateral sclerosis (ALS) are fatal neurological diseases. The incidence on Guam was very high between 1950 and 1965 but decreased dramatically after 1965. It is thought that drinking water containing low levels of calcium (Ca) and magnesium (Mg), and high levels of aluminum and of a plant excitatory neurotoxin are involved in the pathogenesis of these diseases. The present experiment was performed in rats that were exposed to low Ca and/or Mg intake over two generations, thus simulating the conditions of human life on Guam, where several generations live continuously in the same environment. Significant loss of dopaminergic neurons was identified exclusively in the substantia nigra in 1-year-old rats that had been exposed continuously to low Mg intake (one-fifth of the normal level) over generations. The present study suggests that low Mg intake over generations may be involved in the pathogenesis of substantia nigra degeneration in humans.

PMID: 16708544 [PubMed - indexed for MEDLINE]
Given that magnesium also helps RLS (like dopamine agonists do) is also very
indicative that it is playing some role perhaps in PD.

When magnesium is low it also impair hearing. I have a magnesium thread here, on page 1 of Vitamin Forum with papers on many aspects of illness including hearing loss and mag deficiency. I am searching papers for mag/PD specifically and they are still sketchy and contradict each other. Much like the papers on SAMe. But it would not hurt to examine your food intake and if it is low, to increase it to RDA levels for your gender. All that information is there on my thread. Low magnesium intake is a serious issue in this country.
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Old 10-08-2007, 01:55 PM #10
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Default Update

Funny, my hearing on the right side suddenly improved last night. Somewhat like vhperry. Only it has been years.

I am researching the seventh cranial nerve which innervates the face and ear. (Controls muscles around those bones Todd)

Since going gluten-free I have noticed a steady improvement in my sinuses, facial muscle movement, and some of my deep wrinkles have relaxed. It's been spreading from the nose outward towards the ears. Last night my right eustachian tube relaxed and I could feel air in there.

strange but true.
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