Hi All,

It has over a year since posting in this forum. I am in my 5th year with ALS. My question is; does PD take away the speech ability like it does with ALS? For me and approximately 80 - 90% of people with ALS lose the ability to legibly speak after 3 or so years.

the answers is - some patients lose their volume, and so they whisper,
sometimes the mouth goes numb, some stutter - we have come to call
most diseases "designer disease" -because we each may have something far different than whatever is considered, "Normal Parkinson's Disease"?
I do know my voice is abit softer, but I have been bothered with numbness
in my mouth -lately... so I have been researching what could cause a mouth to feel numb -best answer so far -is neurotransmitter problem combined with
not enough oxygen -so I am learning how to deep breathe, and that is actually hard?
in 1994 - when I was finally diagnosed w/PD at age 32,
I couldn't hardly get the dxd because " I was way too young." a doctors statement...
all of our symptoms mean something, and if we are given palliative meds,
they do not cure... but then I'm not a huge drug fan, I am looking for a way -to allow the body to heal itself- because I have seen people get well from Cancer, and I would like to see cures not more pills..

Dear JAH,
Are you having problems?

Some pwp lose their ability to talk earlier than others and many don't. It's a risk of DBS and many times the result of one. The longer we have this, the more variations there are it seems.

Clear as mud,
paula