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10-17-2007, 08:31 AM | #1 | |||
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Magnate
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One of the things that was greatly discussed at the PDF 50th Anniversary symposium last week was the non-motor symptoms of PD; e.g. excessive sweating and gut issues, constipation, depression.
The research/questions being asked these days is does PD start not in the brain, but in the body; e.g. excessive sweating, constipation, depression. I have had two of those for decades, long before my thumb tremor in 1988. My sweating is so bad now that I have to make sure I have paper towels in my pocket when I leave home. I can actually become very anxious if I don't. I can't get to the cashier in the grocery store without literally dripping of the ends of my short hair and rolling down my back, or even worse, having visible wet places on my shirt. Anyone else have non-motor issues that may pre-date PD dx?
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You're alive. Do something. The directive in life, the moral imperative was so uncomplicated. It could be expressed in single words, not complete sentences. It sounded like this: Look. Listen. Choose. Act. ~~Barbara Hall I long to accomplish a great and noble tasks, but it is my chief duty to accomplish humble tasks as though they were great and noble. The world is moved along, not only by the mighty shoves of its heroes, but also by the aggregate of the tiny pushes of each honest worker. ~~Helen Keller |
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10-17-2007, 09:29 AM | #2 | ||
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In Remembrance
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Carolyn and all,
It was good to hear a talk about pain also. The speaker described the types of pain so well. They are getting a grip on this illness. Then he was asked a question about excessive sweating and, again, he hit the nail on the head, which, no pun intended, is exactly where this sweating originates and is concentrated around. I have developed this problem in the last few years; didn't have it before the pd. It is like your brain is sweating. paula
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paula "Time is not neutral for those who have pd or for those who will get it." |
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10-17-2007, 09:32 AM | #3 | |||
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Senior Member
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Two big thumbs up for depression and "excessive head sweating"! I often look like I've just stepped from the shower; I've taken to traveling with a portable fan. Talk about depressing!
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Carey “Cautious, careful people, always casting about to preserve their reputation and social standing, never can bring about a reform. Those who are really in earnest must be willing to be anything or nothing in the world’s estimation, and publicly and privately, in season and out, avow their sympathy with despised and persecuted ideas and their advocates, and bear the consequences.” — Susan B. Anthony |
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10-17-2007, 10:33 AM | #4 | ||
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Junior Member
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Me too!
Mine started a few years ago- a long time after diagnosis. I've been known to hop in the shower three times in one day. My husband and my neuro tell me t hat movement brings it on - while I say that it starts around my hairline first and continues until I'm soaked through and through. There is no pattern as to activities, etc. Prior to this excessive sweating I was the one who was always cold - go figuire! Dottie |
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10-17-2007, 12:43 PM | #5 | |||
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Magnate
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...there have been times in the summer when I have to shower a couple of times a day. And getting out of the shower...yikes...it can be as though I never even dried off from the shower.
I hated it particularly when I was still working and trying to get dressed, or racing into a meeting. Or when I had to be in the board room to meet with outsiders and had to walk across the parking lot from another building. I didn't have that paper towel idea back then.
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You're alive. Do something. The directive in life, the moral imperative was so uncomplicated. It could be expressed in single words, not complete sentences. It sounded like this: Look. Listen. Choose. Act. ~~Barbara Hall I long to accomplish a great and noble tasks, but it is my chief duty to accomplish humble tasks as though they were great and noble. The world is moved along, not only by the mighty shoves of its heroes, but also by the aggregate of the tiny pushes of each honest worker. ~~Helen Keller |
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10-17-2007, 12:52 PM | #6 | |||
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Magnate
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Another take-away from the PDF 50th symposium: many of the research presentations focused upon non-motor symptoms of PD. Many researchers and movement disorder specialists are thinking that PD does not begin in the brain at all.
Did you know, for example, that the lose of smell is almost always present before physical symptoms. There is a clinical trial recruiting for this. It is also using family members in the trial. It appears that many non-PD family members have failed the test, only to become PD symptomatic within two years. Other non-motor issues include constipation that may begin years before PD become symptomatic. Also depression and excessive sweating. Paula, do you remember other non-motor discussions of this kind.
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You're alive. Do something. The directive in life, the moral imperative was so uncomplicated. It could be expressed in single words, not complete sentences. It sounded like this: Look. Listen. Choose. Act. ~~Barbara Hall I long to accomplish a great and noble tasks, but it is my chief duty to accomplish humble tasks as though they were great and noble. The world is moved along, not only by the mighty shoves of its heroes, but also by the aggregate of the tiny pushes of each honest worker. ~~Helen Keller |
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