i go into a real shallow breathing pattern. like getting enough breath , but just barely. and its very regimented. as soon as the meds kick in, one of the first things i feel is a release of air.. i take a dddeeeeppp breath. then it goes back into a normal breathing pattern

Thank you all. I don't know how I missed your post Vicky, but I thank you for the info. I have a doctor's appointment in a couple weeks and will discuss a change in meds or start looking at DBS seriously.

Harley that's exactly how I feel. What a relief when those dreadful drugs kick in.

feeling like you are "not getting enough oxygen"? Well, the first thing i should say is that you get an immediate "feeling of anxiety", that''s why your heart rate goes up, you are scared. I thought that it might be the Amantadine too, but didn't think so after it went away.
Asked doctor for a "puffer" a bronchodilator (Albuterol) and it fixed me up very well, although not to be used only unless really needed. Doc (GP) didn't tell me any ideas, but i think some people here have it pinned down. Dystonia of the diaphragm or related lung muscles, leading to too much fluid in the lungs "pulmonary edema" (or too much "frothiness" of the liquid in the lungs upon breathing). IT could also be something more serious, say Cardiopulmonary Obstructive Disease, but unlikely, unless you are an asthmatic, heavy smoker.
It usually overtakes you in a laying down position, and is made better by getting up and forcefully breathing, while the muscles get in gear and the liquid drains. Try not to let it FREAK you out. That only gets more adrenaline going which helps to take care of the situation, but is harder on the heart. You could put out the bucks for an "oxygenation meter", which is a clip that you put on your thumbnail, and it gives you a readout of % oxygenation. Any number from 95-96 to 100, should put you at ease by letting you know that you are not in danger of suffocating (which is almost always not the case)

you don't take ibuprofen do you?

No I don't. The only other drug I take that is non-parkinson's is tamoxifen for the estrogen positive breast cancer I had. Will be on it for another 4 years.

I will pray for you dear bluedahlia...

Thank you Tena. They are welcomed.

dear ladybluedahlia,

our muscles wont allow the diaphram to stretch -because of many things,
however -that is why even though I do not love to take pills -
I take .5mg's of klonopin 3 to 4 times a day...
-

I have done all things to give a bit of peace to my spirit, sometimes it is to
hard - and I pray -simply -not too many words...because -I feel you really donot have to -and the words are not verbal -but from our hearts -to God...

After suffering with breathing problems, I asked my primary doctor to do a blood screening test. My calcium level was high. She then tested the hormones put out by the parathyroid and it was highly elevated. I am waiting to hear from my doctor as to what it means.

Vicky