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11-22-2007, 05:17 AM
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#21 | |||
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Junior Member
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Hello Todd
Thank you for your honest article, it is important issue to lift out in the open air. It hurts when someone you trust donīt care, but mentally leaves you. I am learning a lot about love and narcissism's , and I DO NOT BLAME MYSELF ANYMORE. |
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11-22-2007, 07:52 AM
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#22 | |||
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That was beautiful, Tina.
Thanks for sharing. |
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11-22-2007, 09:13 AM
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#23 | |||
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What is family? To me family are those people who care about me. I was engaged at the time of dx. He couldn't handle it and left. Eight years later he returned an told me he could not live without me. Then his family convinced him that it was a mistake and he left for good again. My family is embarassed by PD and will not associate with me. On the otherhand, I have increible friends who have supported me with their love for many years. One couple drove me 500 miles and spent 10 days with me during the DBS surgery and recuperation. Another friend hauled me 500 miiles each way for programming. Another friend intervened when an ER physician tried to have me put into a mental hospital because of dyshenisia. These are the people that matter. I am so thankful for these wonderful friends.
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11-22-2007, 12:06 PM
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#24 | |||
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In Remembrance
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Blood can be thin and talk cheap, but actions speak for themselves.
BTW, MKane, greetings from just south of Knoxville!  Quote:
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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11-22-2007, 01:46 PM
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#25 | ||
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Just as they cannot put themselves in our shoes, we cannot put ourselves in theirs. They are probably trying to have you, the inner core person, not the person with PD, as their partner as long as possible. They do this for two reasons: they want to pretend this disease has not fallen on both of you and that things are still livable, reminiscent of your pre PD days, and 2)they don't want you to see the fear or concern in their eyes. It is no picnic to have this disease, but then again it is no picnic to be the caretaker. If I had a choice .....well, I don't know.
Ann |
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| "Thanks for this!" says: | rose of his heart (09-26-2009) |
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11-22-2007, 02:53 PM
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#26 | |||
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I would be an overbearing over fussy over concerned pain in the neck as a care giver. I'm nicer as the patient.
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11-22-2007, 05:11 PM
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#27 | |||
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If I had the choice.......I'd rather be the caregiver.
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11-22-2007, 06:17 PM
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#28 | |||
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Quote:
Charlie |
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11-22-2007, 06:36 PM
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#29 | |||
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I wouldn't wish it on anyone period.
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11-22-2007, 07:09 PM
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#30 | |||
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Quote:
Sorry for the confusion. I should have re-read the thread. CHas |
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