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01-17-2011, 11:04 AM | #11 | |||
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In Remembrance
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Having put in a lot of time the last few days trying to make sense out of my potassium issues, a search led me back to this thread from 3.5 years ago. I am bumping it up because we need to keep it in mind.
L-dopa, even with an enzyme inhibitor, causes an unknown number of us to pee away potassium. As a result we walk a knife edge and are constantly shifting back and forth between "not quite enough" and "just barely enough". The symptoms of too little potassium are very similar to those of PD. Lab tests are of limited value because most potassium is stored inside the cells and is not measured. If you are dealing with freezing, dyskinesia, tremor, etc., consider the possibility that L-dopa may vastly increase your potassium requirement.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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01-17-2011, 12:02 PM | #12 | |||
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Senior Member
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Hey Rick -
I just had my first general physical exam in years - it included a blood metabolic work up. All of the test results were within standard parameters. But that is just a snap shot - at another time, another day - would they have been much different - outside the parameters or even a variation within - the "standard" scale can be quite wide. How do we know without testing our blood through out the day? The only MAJOR deficiency was my vitamin D - it registered a lowly 7 - below the "normal low" of 10-12; far below the 30 that is seen as the baseline for good health (I don't get much sun). I'm starting on 50,000 mgs this week for about 3 months, then another check. I am curious/looking forward to seeing what this does for my overall health/symptoms/feeling good.
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Carey “Cautious, careful people, always casting about to preserve their reputation and social standing, never can bring about a reform. Those who are really in earnest must be willing to be anything or nothing in the world’s estimation, and publicly and privately, in season and out, avow their sympathy with despised and persecuted ideas and their advocates, and bear the consequences.” — Susan B. Anthony |
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01-17-2011, 03:03 PM | #13 | |||
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In Remembrance
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Carey-
If I may ask, what was your potassium? Mine was checked twice in the last year and was 3.5 both times. That's the lowest of normal - some say it should be 4.5. -Rick Quote:
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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01-17-2011, 03:17 PM | #14 | |||
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Wisest Elder Ever
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Quote:
http://www.facebook.com/home.php#!/p...n/198626816074 D2-- the RX form-- 87% less effective than D3. (new information)
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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01-17-2011, 05:23 PM | #15 | |||
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Senior Member
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Rick - my potassium was 4.2; the standard range was given as 3.5-5.3
MrsD - thanks for the info!
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Carey “Cautious, careful people, always casting about to preserve their reputation and social standing, never can bring about a reform. Those who are really in earnest must be willing to be anything or nothing in the world’s estimation, and publicly and privately, in season and out, avow their sympathy with despised and persecuted ideas and their advocates, and bear the consequences.” — Susan B. Anthony |
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01-17-2011, 06:12 PM | #16 | ||
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In Remembrance
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Carey, i also was a 7. in Florida for 27 years. no more sunblock and i need to get out more!
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paula "Time is not neutral for those who have pd or for those who will get it." |
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01-17-2011, 06:49 PM | #17 | |||
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Senior Member
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Paula - have you been able to raise yours?
I shun the sun - easy to do in the Pacific Northwest! I am going to make a point of going outside for longer periods of time. During my physical exam, my doctor was listening with her stethoscope on my back; she exclaimed over the good condition of my skin, "it looks like it never has seen the sun!" Yep. No wonder I'm D-deficient!
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Carey “Cautious, careful people, always casting about to preserve their reputation and social standing, never can bring about a reform. Those who are really in earnest must be willing to be anything or nothing in the world’s estimation, and publicly and privately, in season and out, avow their sympathy with despised and persecuted ideas and their advocates, and bear the consequences.” — Susan B. Anthony |
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01-17-2011, 07:00 PM | #18 | ||
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In Remembrance
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Won't find out till later this month, I take 2,000 IU daily. will let you know.
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paula "Time is not neutral for those who have pd or for those who will get it." |
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