I wrote this for 'patients like me', and I want to say bravo to all of you here as well:

PD is a cruel assailant that seeks out and destroys, one by one, the abilities that afforded us our personal pride and self image as competent, dignified adults.

We struggle to walk properly so as not to appear drunk - forget about the elegant walk we once posessed, it was taken away. We struggle to hide our tremor because it makes people stare, and because it makes us feel feeble and pathetic - forget about elegant and expressive hands, the control of that kind of movement was taken away. We sit out the dances at weddings and fetes, or we do our best to dance without looking too ungainly - forget about being a good dancer, that ability was taken away. We struggle to participate in conversations without stumbling over words - forget about eloquence, it was taken away. We strive to be heard with our soft little voices - forget about a beautiful voice, it was taken away.

We struggle and struggle to appear normal and well to avoid embarrassment, both our own and that of others. PD has robbed us of so many attributes that are needed in adult life. PD's aim seems to be to humiliate us, to crush our pride, to rob us of dignity. At times people treat us as if we are slow witted and not just slow moving.

Well - I think it is time we start to praise each other for the enormous struggles we know each one of us goes through every day. It is time we realize how proud we should be that we are coping and managing aginst such odds.

Only we can know how hard we have to struggle just to get through each day. Only we can know the sting of regret for what we used to be, the pain of humiliation, the hurt of the stares, the sorrow over the loss of so much of what we considered our 'self'.

So I want to compliment all of you on your fortitude and strength. I think your dignity as human beings is remarkable and admirable. You have every reason to feel pride in every accomplishment, large or small, because for us to perform even the smallest task is a struggle and a victory.

One of our victories is learning to accept and to like ourselves as we are now. Learning not to hate life because we can't be and do what we wish. Learning to accept and to like ourselves as we are, to love and to enjoy this life happily and thankfully, just as it is, lumps and all. We have all lost abilities we used to have, and we are all still dignified adults who deal with those losses. This is not a pity party, no cry for sympathy, it is a great and heartfelt BRAVO to everyone here because in spite of our losses we all do carry on.

Vanity also has to do with this. My vanity survives as well as my humor. A modest amount of vanity and pride are not altogether such deplorable qualities when you are sick and/or old. Without them we become pathetic. Eccentricity is only funny if carried out with elan. I'll be the elegant old lady I'd always planned to become - with PD.

Let us hear it for PD dignity and pride. Next time someone says something thoughtless or cruel, remember your daily victories over so many obstacles, and know that you are the stronger one. Living with PD is a victory in itself. Bravo to all of you


We are fatally ill, though we don't show it. We're not romantically ill like Camille in La Boheme, we're just slowly crumbling. And that is not easy at all to handle. Bravo to all of you once again, brave friends.

birte

I know Carolyn and probably others too have read it already. But here it is anyway.

That pretty much says it all!

Ann

Your post is a blessing for ALL of us, heartfelt, to the point, unwaveringly positive. I will use it to remember to apply the principles of its message every day from now on. This place is such a good place to be for us PWP because of people like you. Sometimes we get depresseed over what we have lost, but your message comes forth to tell us that, no, don't be depressed, accept everything that comes at you with dignity, that the sorrows will heal and that it is OUR responsibility to make it so.
I just poured a beer, raise up my glass and say SKALL, or SCOLL or whatever, you know what i mean.
THANK YOU for the words that we all need to carry on, no matter how bad things seem.cs

and skål to you too cs, and to you too, Ann.
Skål and skaal - and may we all live and prosper though we spill our beer and maybe slurp a bit at times - skål friends.

birte

Birtie for your remarkable heartfelt thoughts on the daily challenges that pd presents for all of us in one form or another

'Its just another tricky day" - Roger Daltry..

although the first part of your post is alien to me. If someone stares at me, I stare back. IF they continue, I stick my tongue out at them. Embarrassed? NOT ME!! TO heck with anyone who thinks they can embarrass me! I'll SHOW them embarrassment.

As for lamenting things we have lost, to me thats a waste of time. I prefer to dwell on the things I have left!

PD, as life, is what you make it!! We all get in the pity pool ocassionally. The trick is to make it a quick dip!

CHarlie

My favorite quote which speaks thousands of words:

Courage is the power to let go of the familiar.
Raymond Lindquist[/I]

Change, what we all do daily:

Today is not yesterday: we ourselves change; how can our works and thoughts, if they are always to be the fittest, continue always the same? Change, indeed is painful; yet ever needful; and if memory have its force and worth, so also has hope.
Thomas Carlyle

Look not mournfully into the past. It comes not back again. Wisely improve the present. It is thine. Go forth to meet the shadowy future, without fear.
Henry Wadsworth Longfellow

When you meet your antagonist [PD], do everything in a mild and agreeable manner. Let your courage be as keen, but at the same time as polished, as your sword.
Richard Brinsley Sheridan

Gaykir, I did not get your message. I just sent you a p. m. - I hope you get it. Can't think why I didn't get yours. And yes, you're welcome to use my post. I'd like to know where, please???

All the best,

birte