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12-04-2007, 01:57 PM | #1 | ||
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For those of us that live north of the equator, and are heading into winter and cold weather.
Does the cold affect your stiffness? Does it make you more stiff then usual? Today it is bitter cold, and I feel stiffer than normal that's why I'm asking. John |
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12-04-2007, 03:01 PM | #2 | ||
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Junior Member
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The cold makes me much stiffer and increases the dystonia. As the cold weather continues though I get accustomed to it and the affects are much less.
It was 3 and 4 degrees F the last two mornings, the coldest it has been so far this year, and I have felt good. Don't know how I would survive in the interior of the state as it has been -40 to -48 the last few nights. Also pre DBS my tremors were increased by the cold temps too. |
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12-04-2007, 04:53 PM | #3 | |||
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In Remembrance
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Too hot or too cold stresses our system and worsens our symptoms. In a way it is the "Goldilocks" disease. We don't adapt very quickly.
For me, life begins at about 30 degrees F and lasts until about 70 degrees F. Colder and I stiffen. Hotter and I have ne energy. b
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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12-04-2007, 05:05 PM | #4 | ||
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Thank you very much for the feedback. This affirms exactly what I was thinking so I'll have to hibernate until spring!
John |
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12-04-2007, 08:02 PM | #5 | ||
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Hey, John, you just have to have the right clothes! I have a down parka that supposedly is good to minus 50. (I know it's warm to minus 40 from experience!) Put the hood on over a good fleece hat, pull on snow pants, down mitts with a little chemical heat pack meant for hands in it, good boots and I'm good for anything our weather can do. If the wind comes up, I need a scarf to keep my face from freezing as the wind chill can go way down past minus 40.
(I don't know what's so magical about tthe number 40, but the school buses stop running then so all the kids get to stay home and minus 40 is just woven into our language) And yes, if I get cold my whole body seizes up so I can hardly walk, my jaw clenches and my back especially goes rigid. You can see why I love my down parka so much. |
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12-04-2007, 10:38 PM | #6 | ||
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Junior Member
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The cold not only makes me stiffen up it also causes depression. Our winters in Canada are long and cold. I agree that if you dress up warm and get outside it does help. It wouldn't be so bad if it only lasted a couple of months but when the temperature gets below 0 Celsius my feet go numb and I don't attempt to stay out for more than 20 or 30 minutes. I can handle the heat much more than the cold.
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12-05-2007, 11:17 PM | #7 | ||
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Cold makes me much stiffer, slower and greatly increases my fatigue, but like DaleD, I gradually adjust once it stays cold for a while. Where I live, south Texas, the winter temperatures go up and down so much, though, that you never know what season to expect from one day to the next :-) I also have a hard time with the hot summers...very exhausting!
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12-06-2007, 10:53 AM | #8 | ||
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Thanks Lee for the thought on the night sweats. I'll add this to my list for my next neuro visit in January. I think it's January 8th, whic puts it only about a month from now.
Zyni and Dale, I'm finally getting used to the cold too. We're in for it for the long haul up here in New England. We don't get the big fluctations in temperature you have, but when we do get a warm day, like in the high 40s or low 50's we cherish them dearly. John |
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12-06-2007, 01:25 PM | #9 | |||
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Member
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Yes cold has always caused me to be more stiff and the dystonia worse. I rub my feet alot to keep them warm, and wear slippers.
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