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12-30-2007, 05:08 PM | #1 | |||
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In Remembrance
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I was asked if I knew anything about group housing as an alternative for PWP who have no caregivers. Since I did not, I thought I would raise the subject here and see if anyone had ideas.
For my own part, I would think a boarding house model might work with the size being critical. Enough people to make the shared cost of someone to help out inside and out and out in the world. But not so big as to be institutional. A lot of us will have a lot of years where such an arrangement would be all we need. Thoughts?
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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12-30-2007, 05:41 PM | #2 | |||
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some of us have had this thought for years. A hotel/motel would be perfect, or a trailer park with a bunch of travel trailers. There are smaller hospitals/rest homes sitting vacant.
It would need to be big enough to support a kitchen and a nurse, (to insure people got their meds on time. A half assisted living, half nursing home would be ideal, I think. ALL it takes is money. I figure about $500-750K would get you going. Charlie |
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12-30-2007, 06:19 PM | #3 | |||
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In Remembrance
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Especially since it is the one I know something about.
Advantages- 1) You would own your own trailer and rent the space. This preserves the dignity of some independence. 2) The park could be owned by a corporation which would, in turn, be owned jointly by the residents. They pay rent to the corporation which then pays the bank. 3) For $500,000 you should be able to buy an existing park with 20 spaces in a decent location. Standard financing would require $100,000 down. So if 20 people are in that means they come up with $5000 each to start. 4) Monthly payments would run about $3000 or so. $150/month. 5) I am basing the scenario on a park I am familiar with and it has a young couple who live in a trailer furnished by the park. They mow and maintain and manage for their rent plus $400/month. A similar arrangement should be possible and duties to include cooking one meal per day for 20 added. Say $600/month. $30 each. 6) So that comes to $180/month each so far. Add in cost of food etc and you probably get close to $400 or so. Wild guess on that BTW. So it is doable strictly by numbers. Reality might be harder though.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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12-30-2007, 06:54 PM | #4 | |||
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Member aka Dianna Wood
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12-30-2007, 07:12 PM | #5 | ||
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In Remembrance
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I've been around like Charlie has and heard a desire from many but location is a problem right away. And mobile homes (I just moved out and will sell a modular home in a retirement community in Florida[Nate doesn't qualify and the families usually get smaller not bigger...lol interesting experience- life is pretty crazy sometimes.] and it was sizable, but moisture is a big problem and we are breathing much better down here on the river in a townhouse.
Keep thinking - many have been interested and there are a few places - i just don't remember where. this site comm looks very clinical. thanks for bringing it up Rick. paula
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paula "Time is not neutral for those who have pd or for those who will get it." |
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12-30-2007, 08:57 PM | #6 | |||
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In Remembrance
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...between true independence and the institution (a period that might last years or decades), there would be certain needs to be met-
1-affordability 2-companionship 3-privacy 4-nutrition, including shopping, cooking, cleanup 5-housecleaning 6-maintenance 7-transportation 8-recreation, internet while the trailer park is an answer in rural areas, in urban areas the old time boarding house might do it.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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12-30-2007, 11:20 PM | #7 | |||
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In Remembrance
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a trailer "Parkie" -
the state of MO. will pay for nursing care to some degree - however - if you are on medicaid it's free - small one bedroom home - cheap... one bedroom for one tenant - 2 bedrooms -two tennants. I have neighbors that are extremely mentally challenged so much so they must have 24 hour a day care - the state pays for the housing, and they must have male nurses, because they can be confrontational and do not know their own strength - the idea of state nursing homes is changing. my next door neighbor works for the state of corrections -as a RN her job is to keep the murderers with mental illness - medicated all day - so they arent able to be a harm to themselves or others... I would not be able to have that job? thankyou anyway - humanitarian thinking is great...
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with much love, lou_lou . . by . , on Flickr pd documentary - part 2 and 3 . . Resolve to be tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant with the weak and the wrong. Sometime in your life you will have been all of these. |
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12-31-2007, 09:59 AM | #8 | |||
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Quote:
Charlie |
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