Parkinson's Disease Tulip


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Old 09-02-2006, 10:42 PM #1
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Default Weekly Check-In Sept 3-9, 2006

Hi Everyone..Its starting to feel like autumn already, and has been for a week or so..Its coming early this year which I kinda like it on the cooler side..I cant do much these days in the sweltering heat..I get fatigued easily

I have been feeling ok all summer mostly..Im sure the Sinamet helps, and it feels like the progression of my pd is at a stand still..if thats possible..It sure does help when I am active

Ive been building a few more conch traps and getting ready to put them back in the water in a couple of weeks..Still havent sold the boat, and I recently lowerred the price so that Im practically giving the damned thing away..But I dont care anymore, I just care about getting rid of it..Nobody really wants to get in the fishing business anymore

On the PAN front..I got a call from R.I. Rep. Jim Langevin's office on Friday..He is putting together a task force here in R.I. to begin stem cell research because Pres Bush vetoed the stem cell bill, and Rep. Langevin wants to meet with me on Tuesday, and the press will be there..This is my first meeting with a state Rep or Senator, so Im kinda nervous, but as my dear friend rosebud told me recently.."If youre not heading toward adversity m'boy..then youre heading in the wrong direction"

Rep. Langevin is a strong advocate of stem cell research because he has a spinal cord injury the he sustained in the police academy from and accidental gun shot wound, and has been wheelchair bound ever since..I will let you all know how it went..This really feels out of my comfort zone because Ive never done anything like this before..but its time to get my feet wet

How is everyone doing this week?

Picture of the week:..Another ocean front picture in Newport R.I.
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Old 09-02-2006, 11:48 PM #2
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Default Socks...Yikes...Not them already

I posted this today, elsewhere:
It is September 2nd and I had to get my socks out.
Yikes! Where did the summer go.
My feet are cold. They were cold last night and I tried very hard...successfully so...to ignore them.
Alas, it is 12:31pm on Saturday, September 2nd, and I am giving in...putting on my socks!

My summer was filled with kids...4, 5 and 8...swings, bubble blowing, snacks, picnics in the backyard, lots of those, trips to the library, sprinklers under the playset...seems swinging into the sprinkler is a fun thing to do...I wouldn't know...since I am a grandmother, I'm not suppose to do that...LOL

After more than 10 years gradually going from three Sinemet a day to 5+, and due to offs and the onset of dyskinesia...only slightly...I have added 1/2 twice a day, along with Amantadine, and my all time favorite...NOT...Mirapex is back in my life. What a vicous circle our meds are...take one for this, take another to make that one work better and another to offset the side effect of the first...what a hoot!

PAN...goodness...I have been out of that loop for almost two years now. And rosebud is totally righton: "If youre not heading toward adversity m'boy..then youre heading in the wrong direction" Yepper, Steve, get those feet wet!!

Too much family obligation duty with my autistic grandson and his siblings. Just now getting back into the Parkinson Pipeline Project...lots of website work to catch up on.
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You're alive. Do something. The directive in life, the moral imperative was so uncomplicated. It could be expressed in single words, not complete sentences. It sounded like this: Look. Listen. Choose. Act. ~~Barbara Hall

I long to accomplish a great and noble tasks, but it is my chief duty to accomplish humble tasks as though they were great and noble. The world is moved along, not only by the mighty shoves of its heroes, but also by the aggregate of the tiny pushes of each honest worker. ~~Helen Keller

Last edited by Stitcher; 09-03-2006 at 02:13 AM.
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Old 09-03-2006, 06:22 PM #3
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Well, today is my birthday. One brother called me from Venice (must be nice) and another called from his home, two daughters came and one son called. It has been a good day even though I feel like I have been through the wringer. (Stayed up till around 2:30 making applesauce after working 1/2 day, and today (Sunday) I went back to work and hand typed a bunch of circ stuff since the circulation computer was down yesterday).

This week is going to be rough, so bear with me.

mama
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Old 09-03-2006, 06:31 PM #4
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Default Babies have arrived!!!

Some time ago I announced my daughter was having Twins in Sept. Well they arrived Yesterday Sept 2 just after 7 pm. We have an identical set of twin boys! Store the fine china and hide anything that can be thrown, tackled, or otherwise tested for it's durability. The amazing thing about boys is they always have to see who can throw the other one across the room. My two oldest sons are 35 and 28 and when they get together they still have to tackle each other. The older one had the advantage for a number of years, but the younger one has a much more physical job (fireman) and is now in the power position. (I warned #1 the day would arrive when the tables would turn).
I am buzzed today so I'm keeping this short. My meds are totally out of balance.
On a completely different subject: Thanks Steve for finding my philosophical insight memorable
"On the road of life, if your not facing adversity your headed in the wrong direction." Sounds negative at first...but its the tough stuff that tests our integrity and the people we admire are the ones who walk gracefully through the muck holes of life. I'm always flattered when someone refers to my insights in a positive way. Even when I do it myself Cheers to all and have a good week.
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Old 09-03-2006, 08:59 PM #5
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Happy Birthday Mama!!
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Old 09-03-2006, 11:36 PM #6
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Thanks, Steve!

Rosebud, hug those babies for me...and make sure each gets some cake and ice cream. I had a birthday party for my kids when they were born. It was great.

Have a great weel, everyone!
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Old 09-04-2006, 06:53 AM #7
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Rosebud..Congrats on the twins!!
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Old 09-04-2006, 10:29 AM #8
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Mama, Belated happy birthday!!!

Rosebud, Congratulations on the new babies!!! : Now you'll have your hands full.

Everyone have a great week,

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Old 09-04-2006, 01:30 PM #9
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Default birthdays and babies

Mamma, happy birthday--rosebud congratulations--2 new babies. madelyn
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Old 09-04-2006, 03:36 PM #10
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What I have posted over my desk in my office is, "When life looks like Easy Street, there is trouble at your door." - Grateful Dead.

MK2
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