dear keith,
I know you have come here for help and to help, sometimes people think
online thoughts - like you have heard - I believe you are who you are as much as you know who you are, and why you came to Neurotalk,
do not worry too much cynicism online -

people many years ago used to believe -that I was was not real at all - what is that dumb word -older on-liners use?
oh well I cant recall ?
yet -
I do not care because I know you are on the up and up!
- I blame it on the meds - and brain fog - paranoia of the illness...
too much thinking -many of these people well meaning -want to see proof -
you are real - I do not think that way.. please continue here - you are very WELCOME here...

dear everyone else -
please read the rules of civility - they are contained in the Neurotalk agreement...

Welcome the newbies -please!

I know they are real - the reason people go online is for help -whether they use a pen name or actually real name is truly - none of anyone's business.
Please treat everyone with the same knidness that you would like to be treated with...

sincerely,

dear dear rosebud,
Keith is a popular name in Europe ie: the UK, and the Keith we all know and adore - can be arguementative -
yet even so - "I would try to like him -or forgive him"
- those who are not against us are therefore - for us... okee dokee!
my exhusbands name is Keith - but thats another story ! LOL!
have a wonder filled day - do not worry - be happy!
have peace in your heart today -

Thank you Paula W and CTenaLouise for your understanding and quick response. I appreciate it. I feel much more welcome now. And to Rosebud, I understand your skepticism (I think.)

The only "credentials" I have to point to is the APDA. Before I finally had to retire at the ripe old age of 41, I worked as a financial planner and wrote several articles that were published in the APDA monthly newsletter. I felt I was in a unique position to help other PD'ers, so I wrote about the special financial planning needs we will encounter (on my own time and not for pay).

You could look it up if you like or I can try to dig up a copy.(it's almost 10 years ago!). I would hope this would make a "believer" out of you regarding my identity. But after reading it I'm afraid you'll suspect me of trying to sell you insurance!!! (That was meant to be funny, not critical).

I wish us all good health,
the "other" Keith

Tena is right. Keith is a common name... I'll just call you KK13 to keep my Keiths in a row (as in ducks in a row) . Didn't mean to give you any stress... likewise to all other Keiths who happen to hang about here.

Just a gentle reminder folks, to discuss the topic, not the people who bring up a topic. As you can see, when you assume everyone knows who you're talking about, innocent members get caught in the crossfire. So let's get back to the topic -- dopavite -- and people's experiences with it, both pro and con. Thank you,

DocJohn

Apologies KK13 for any identity confusion caused.

Muireann

I did receive trial packets of Dopavite from the now famous KB (Sorry Dr John, the two are almost inseparable, to my mind at least). I did take some of them, but did not notice a difference, but honestly I was taking sinemet, which worked really well for me, and did not really want to take anything else at the time. So maybe I did not take it that seriously, and the huge and sometimes vitriolic debate that was going on did not encourage me.

Shakebuddy, Muireanne, I remember you well! I am glad that things are working for you, my take on this is whatever gets you through, if it works for you, then it is what you need........I thought that there was a proper trial going on before it was released on the market, but I never got any follow up on it myself, and have noticed it in chemists etc, though I have not seen it for a while. Maybe it is something for the future, I know it took long enough to sort out a meds routine for me not to want to rock the boat.

I wonder if it is not available in the US?

Lindy

Lindy, it was a long and slow process of recovery for me, paralleling the drugs. Not easy sometimes to see improvement, it was so slow, and hard to see it at all once I began Mirapexin. I was on a lot of Mirapexin.

I will send you a PM about some of this.

There sure are a lot of variations to PD and its treatment. I like this forum for a lot of reasons. But when it comes to drug therapy discussions, it often seems less than helpful. I mostly read through them and maybe talk to my doctor or neurologist if something seems worth talking about. Ultimately, I have to put my trust in the medical folks. Of course, finding the right doctor can be a challenge, but that's another story. At this point, I'm disinclined to try anything without talking to my neurologist first. To fill in the rest of the story, they thought I had PD for quite a while, but then my diagnosis was changed to Lewy Body Disease in January. This is changing my medications. So, while I have had parkinsonian symptoms for several years, it turns out I didn't have Parkinson's. It took a neurologist with special skills to know the difference. In fact, some excellent advice that I did get from this forum was to ask to see a movement diorder specialist. I wouldn't have known the difference if I hadn't read it here. Seeing the MDS neurologist was the best thing that's happened regarding my treatment in years--I have taken so many different drugs that either haven't helped or made me feel worse that skepticism now dominates my thinking. So keep in mind that the treatment depends on the disorder and that many of the folks reading these forums may have different causes for similar symptoms.