Parkinson's Disease Tulip


advertisement
Reply
 
Thread Tools Display Modes
Old 03-25-2008, 08:31 AM #1
harley's Avatar
harley harley is offline
Member
 
Join Date: Aug 2006
Posts: 372
15 yr Member
harley harley is offline
Member
harley's Avatar
 
Join Date: Aug 2006
Posts: 372
15 yr Member
Default resources for you...

ok. life has been interesting and has given me quite an eye-opener in the last couple months. lets just say i have been HAVING to find resources available to cope with this blasted disease and wow!! there are quite a few that i didnt know about! dshs.. many many many.. they have supplied me with the life monitor. you know that "help, ive fallen and cant get up" thingy. and, it is a good sense of security to have. AND>>> they have also supplied pill containers, med alert bracelet, bars for the bathtub, hand held pulsating shower head, and even have ordered a portable wheelchair ramp! good place to check out. they also have set up a caregiving service and i now have someone coming out to my home 5 days a week to help. this has been by far the most helpful.

HUD has many housing opportunities. including something called a 1040 housing exchange where you can swap a home you have (with enough equity of course) for them building one equipped with the amendities you need. i gotta reserch this one more. they also have alotted grants to many apartment complexes for independent living. there are other options that you should definately check out too.

there is respite care available. i am now checking into it.

try calling 211. this is a new phoneline that provides information about all of the non profit organizations in your area. you tell the operator your needs, and they search their data base for info and give you the contacts that pop up. an excellent resource.

go into google or dogpile, or whatever search engine you use.. type in things that you can think of that you need. or words such as whatever state you live in, disabled or handicapped. watch what pops up. there are resources out there. you just have to find them.

then... share this info. mucho important.

here are some of the links i found...


http://www.makoa.org/legal.htm
http://www.hud.gov/offices/hsg/sfh/h...searchstate=WA
http://www.hud.gov/groups/disabilities.cfm
http://aptfinder.org/listingssenior.html
http://www.arcofkingcounty.org/respite/state.html
http://www.disabilityresources.org/WASHINGTON.html
http://www.archrespite.org/JointEndorsingList.pdf
http://www.nasua.org/informationandr...20McDonald.ppt
http://www.dshs.wa.gov/basicneeds/
__________________
I have a post-encephalitic neurological disorder, but it does NOT have me!
harley is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
paula_w (03-25-2008)

advertisement
Old 03-25-2008, 09:13 AM #2
RLSmi's Avatar
RLSmi RLSmi is offline
Member
 
Join Date: Oct 2006
Location: dx'd4/01@63 Louisiana
Posts: 562
15 yr Member
RLSmi RLSmi is offline
Member
RLSmi's Avatar
 
Join Date: Oct 2006
Location: dx'd4/01@63 Louisiana
Posts: 562
15 yr Member
Default

Great to hear from you, Harley. Better still is hearing that you have found some sources of real help! Keep on truckin'!
Robert
RLSmi is offline   Reply With QuoteReply With Quote
Old 03-25-2008, 02:37 PM #3
reverett123's Avatar
reverett123 reverett123 is offline
In Remembrance
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
reverett123 reverett123 is offline
In Remembrance
reverett123's Avatar
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
Default glad you are still kicking

I was afraid you had been "disappeared" by the system. Welcome back! And you even brought gifts!
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
reverett123 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Useful Sites & Resources kimmydawn Hydrocephalus 10 09-17-2012 11:26 PM
Useful Sites & Resources kimmydawn Sleep Apnea & Sleep Disorders 6 12-26-2010 11:16 AM
Useful Sites & Resources kimmydawn Neuromuscular 4 03-15-2009 04:01 PM
Dietitian's Resources aklap Gluten Sensitivity / Celiac Disease 14 04-13-2007 07:46 PM


All times are GMT -5. The time now is 07:12 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.