Parkinson's Disease Tulip


advertisement
Reply
 
Thread Tools Display Modes
Old 10-22-2006, 12:26 AM #11
bizi's Avatar
bizi bizi is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: cajun country, lafayette Louisiana
Posts: 24,238
15 yr Member
bizi bizi is offline
Wisest Elder Ever
bizi's Avatar
 
Join Date: Aug 2006
Location: cajun country, lafayette Louisiana
Posts: 24,238
15 yr Member
Smile

hi I wanted to bump this up for a friend...
thanks
bizi
*who only sleeps with the help of ambien...lunesta worked for about a year then quit!
__________________

.
Hattie the black and white one wrestling with hazel, calico. lost hattie to cancer.....
Happiness is a decision....

150mg of lamictal 2x a day
haldol 5mg 2x a day
1mg of cogentin 2x a day
klonipin , 1mg at night


I will not give up in this weight loss journey, nor this need to be AF. 3-19-13=156, 6-7-13=139, 8-19-13=149, 11-12-13=140, 6-28-14=157, 7-24-14=149, 9-24-14=144, 1-12-15=164, 2-28-15=149, 4-21-15=143, 6-26-15=138.5, 7-22-15=146, 8-24-15=151, 9-15-15=145, 11-1-15=137, 11-29-15=143, 1-4-16=152, 1-26-16=144, 2-24-16=150, 8-15-16=163, 1-4-17=169, 9-20-17=174, 11-17-17=185.6, 3-22-18=167.9, 8-31-18= 176.3, 3-6-19=190.8 5-30-20=176, 1-4-21=202, 10-4-21= 200.8,12-10-21=186, 3-26-22=180.3, 7-30-22=188, 10-15-22=180.9,
bizi is offline   Reply With QuoteReply With Quote

advertisement
Old 10-22-2006, 06:16 PM #12
BEMM's Avatar
BEMM BEMM is offline
Member
 
Join Date: Sep 2006
Posts: 321
15 yr Member
BEMM BEMM is offline
Member
BEMM's Avatar
 
Join Date: Sep 2006
Posts: 321
15 yr Member
Default Yes Boann,

you are not alone! I also have no trouble sleeping well, and yet I also sit up until the small hours, fiddling with the computer, procrastinating though I'm dead tired and longing for sleep. And I know I'm beeing an idiot, and that I really need the sleep I'm avoiding.
I can see two reasons:
One is that I get so tired that it's easier just to stay up than to wash and floss and brush - which is exhausting. So I wait, and wait, and wait......
The other is that I am beginning to realize what it means to be obsessively compulsive about something. The computer is beginning to draw me like a magnet.
I still love to read. I used to read in bed, but now I wake up when the book crashes down on my nose two minutes after I think I've begun to read.
And Paula, I also scream and moan in the night and frighten my poor husband, who thinks I'm in pain or having horrible nightmares, while I actually invariably have fun and entertaining dreams, but a dream laugh comes through sounding like a moan.

ZZZZZZZZ
birte
BEMM is offline   Reply With QuoteReply With Quote
Old 10-22-2006, 07:00 PM #13
paula_w paula_w is offline
In Remembrance
 
Join Date: Aug 2006
Location: Florida
Posts: 3,904
15 yr Member
paula_w paula_w is offline
In Remembrance
 
Join Date: Aug 2006
Location: Florida
Posts: 3,904
15 yr Member
Default

Quote:
Originally Posted by BEMM View Post
you are not alone! I also have no trouble sleeping well, and yet I also sit up until the small hours, fiddling with the computer, procrastinating though I'm dead tired and longing for sleep. And I know I'm beeing an idiot, and that I really need the sleep I'm avoiding.
I can see two reasons:
One is that I get so tired that it's easier just to stay up than to wash and floss and brush - which is exhausting. So I wait, and wait, and wait......
The other is that I am beginning to realize what it means to be obsessively compulsive about something. The computer is beginning to draw me like a magnet.
I still love to read. I used to read in bed, but now I wake up when the book crashes down on my nose two minutes after I think I've begun to read.
And Paula, I also scream and moan in the night and frighten my poor husband, who thinks I'm in pain or having horrible nightmares, while I actually invariably have fun and entertaining dreams, but a dream laugh comes through sounding like a moan.

ZZZZZZZZ
birte


Birte.

i have woke up laughing.....I do like it when that happens, usually can't remember why but it's a real positive energy surge

Paula
paula_w is offline   Reply With QuoteReply With Quote
Old 10-22-2006, 10:13 PM #14
boann boann is offline
Member
 
Join Date: Sep 2006
Posts: 165
15 yr Member
boann boann is offline
Member
 
Join Date: Sep 2006
Posts: 165
15 yr Member
Default bemm

whew! so i am not alone! what medication(s) are you taking, if you don't mind my asking?

boann
boann is offline   Reply With QuoteReply With Quote
Old 10-22-2006, 11:16 PM #15
K Hamilton K Hamilton is offline
Junior Member
 
Join Date: Aug 2006
Location: Northwest Washington
Posts: 63
15 yr Member
K Hamilton K Hamilton is offline
Junior Member
 
Join Date: Aug 2006
Location: Northwest Washington
Posts: 63
15 yr Member
Default

Quote:
Originally Posted by boann View Post
My problem is that something compels me to stay awake - i can be falling asleep at my computer at 2am on a week night (weekends are regularly in the 3a-5a range) and for some reason i STILL don't want to go to bed - it is very strange - and i *love* to sleep, will sleep until noon given the opportunity even if i went to bed at a reasonable hour the night before, but i have the hardest time making myself *get into* bed.
I can certainly empathize; my wife doesn't understand why I keep coming to bed at 1:00 or 2:00, and neither do I. I figure it may something to do with sleeping so poorly once I get there - I keep waking up every hour or two, and in the morning I am awake at 7:00 AM, whether or not I'm rested, which I can guarantee I'm not.

I shifted my Mirapex so that I take a dose at bedtime; it has helped in the sense that I no longer scream and/or flail about in the middle of the night, or start "vibrating" at 4:00 AM (my wife's descriptive term). I also take Seroquel at night.
__________________
Kris
K Hamilton is offline   Reply With QuoteReply With Quote
Old 10-23-2006, 12:22 AM #16
boann boann is offline
Member
 
Join Date: Sep 2006
Posts: 165
15 yr Member
boann boann is offline
Member
 
Join Date: Sep 2006
Posts: 165
15 yr Member
Default vibrating!

i have been told i have done that - any ideas what it is about?
boann is offline   Reply With QuoteReply With Quote
Old 10-23-2006, 12:28 AM #17
rosebud's Avatar
rosebud rosebud is offline
Member
 
Join Date: Aug 2006
Location: Great Green Pacific Rainforest
Posts: 488
15 yr Member
rosebud rosebud is offline
Member
rosebud's Avatar
 
Join Date: Aug 2006
Location: Great Green Pacific Rainforest
Posts: 488
15 yr Member
Default

I can relate to the procrastination thing too. I think It's because sleeping is such a trial. My body wakes every few hours, my tremor acts up (especially if I've been eating sugar) and it's an effort to make the transition from one plane of existance to another and back again. Its a major ordeal to change positions, and rearrange the blankets. I sleep with a light weight duvet, and am looking for an even lighter one. sometimes my meds go off before I'm ready, and there is the obligatory wait for them to kick in before I can start my day. I get tired just thinking about it. That thing about not reading since starting Mirapex was an interesting comment. I'll have to give that some thought. I find I read for information. Wouldn't want to miss anything important you know... Yes the computer can be an obsessive thing. I make myself leave it alone some days when I have a grip. Of course if it dies (It's not been bad today), I will have forced exile from the magic window and have to get along with substitutes for a few days. Could be traumatic. Ahh but there are other computers in the house. What a life!!! Someone should start a thread...what would you do if your computer self destructed? Probably wouldn't get any response because no one wants to think about it...
rosebud is offline   Reply With QuoteReply With Quote
Old 10-23-2006, 01:10 AM #18
Mari's Avatar
Mari Mari is offline
Legendary
 
Join Date: Sep 2006
Posts: 18,914
15 yr Member
Mari Mari is offline
Legendary
Mari's Avatar
 
Join Date: Sep 2006
Posts: 18,914
15 yr Member
Default don't go to bed either. then I am tired the next day

Quote:
Originally Posted by boann View Post
My problem is that something compels me to stay awake - i can be falling asleep at my computer at 2am on a week night (weekends are regularly in the 3a-5a range) and for some reason i STILL don't want to go to bed - it is very strange - and i *love* to sleep, will sleep until noon given the opportunity even if i went to bed at a reasonable hour the night before, but i have the hardest time making myself *get into* bed.
Hi,
This comes very close to describing my sleep issue.

I have bipolar but I noticed that my bipolar issues are not like the other folks. When my psychaitrst offered Ambien I didn't take it.

Many therapists have suggested that I follow "sleep hygiene" the way that they teach it in cognitive behavioral therapy. I learned this: only use the bed room for sleep and sex -- to tv, no phone, no reading, no eating, no computer...


One therapist said that my sleep thing is a kind of ADD/ADHD thing where I distract myself from going to bed.

Another thinks it is a kind of PTSD thing when I feel out of control/panicky about going to sleep.

The thing is that I can sleep at the computer, in the car (parking lot), and just about anywhere else. I simply put off going to bed until it is very late and then I have to will myself to sleep. I can be asleep 19 times out of 20 in about 15 minutes (with the help of Klonopin). If I am still awake after 15 minutes, I get up and read for 30 minutes. Then try again.

I'm been told that I have control issues and that I learn to let go through meditation.
My current therapist does hypnosis but we have made limited progress.

Anyway, this is more than you wanted to know.
I popped in to say that your situation sounds very similiar to mine.

Mari
Mari is offline   Reply With QuoteReply With Quote
Old 10-23-2006, 06:03 PM #19
BEMM's Avatar
BEMM BEMM is offline
Member
 
Join Date: Sep 2006
Posts: 321
15 yr Member
BEMM BEMM is offline
Member
BEMM's Avatar
 
Join Date: Sep 2006
Posts: 321
15 yr Member
Default

Quote:
Originally Posted by boann View Post
whew! so i am not alone! what medication(s) are you taking, if you don't mind my asking?

boann
Of course I don't mind at all, boann.
I take 8 1/2 mg Requip, 1 1/2 carbid./levad.(Teva) 25/100 pill, 100 mg Amantadine per day, divided into three portions.
Amantadine in the morning only, 3 mg Requip morning and evening, 2 1/2 mg Requip at noon, 1/2 c./l. pill morning, noon and evening.

I also take 1500 mg curcumen, 250 mg magnesium, 500 mg calcium, flax, fish oil, vitamin B complex and vitamin C every day. And I make sure to have some walnuts and almonds and a bit of candied ginger (yum) every day.

Supposedly magnesium taken at night helps you sleep, and calcium calms the nerves. But none of it has helped me go to bed at a decent time.

all the best,

birte
BEMM is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
UARS/Upper Airway Resistance Syndrome, type of sleep disorder, is not sleep apnea: concerned lady Sleep Apnea & Sleep Disorders 5 11-25-2007 03:08 AM
Sleep Deprived EEG Julie Epilepsy 8 10-12-2006 04:31 PM
Sleep problems with PD? upgrade Parkinson's Disease 5 10-02-2006 02:02 AM
the Healing Sleep thread - lou_lou Parkinson's Disease 15 09-27-2006 11:16 AM


All times are GMT -5. The time now is 11:30 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.