Parkinson's Disease Tulip


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Old 10-20-2006, 09:38 AM #1
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Default What do you do when you can't sleep?

Sometimes I sleep well, but I have other nights when I cannot sleep except in short blocks of an hour or two. Sometimes I take a bit of medication and that puts me back to sleep and sometimes I just eat a small snack and that does the trick. But I have other nights when I just can't seem to settle. I never know if it's better just to give up and go work on the computer or read a book...then I find myself ready to go back to sleep about the time the rest of the world is getting started. If I get anxious over my loss of much needed sleep it just makes the whole thing worse and I end up in a cycle that I have trouble correcting. I feel like a cat chasing my own tail. (speaking of cats...did Andrew ever find his way here?) If I sleep during the day it throws my medication out of synch. Sleep is sooo important that I'd like to hear some of your opinions on sleep and lack of sleep. I've heard many people say as they get older they find they need less sleep. Is it possible to get so old that you wouldn't need sleep at all? (just kidding ). Last night was a good example of a fitful nights sleep. I just couldn't get more in than a two hour stretch at a go, so I sat up on the edge of the bed with my legs crossed in front of me around 5 am. I found myself drifting off and nearly landed on my head as I slowly tipped forward in a dozey state. What's that all about????
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Old 10-20-2006, 03:45 PM #2
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Default sleep

Hi Rosebud:

I sometimes have difficulty falling asleep as well. I find, though, that if I doze off during day I won't have a good night's sleep. Sometime after lunch I get drowsy and snooze anywhere from 5 minutes to half an hour. I usually put a manuscript on the computer screen so if any one looks in on me it will appear that I am working. Since I can predict when the drowsy prtiod will make its appearance I try to arrange to be busy with other people. This holds the drowsy period at bay. I also have a drowsy time right after dinner. This, I now fend off by playing several games of Scrabble. In spite of that there are still times when I can't fall asleep but they are becoming less and less common

All the best,

Lloyd
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Old 10-20-2006, 04:53 PM #3
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One of the best things for me to do when I can't sleep and that is frequent now is to turn on a radio. You are in my zone so 1130 should be the one.
Just listen and stop thinking and they will bore you to sleep lol
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Old 10-20-2006, 05:16 PM #4
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Hit the Zoplicone.It was prescribed for me a while back as I was going 4 days at a stretch without sleep.I have said before...I have woken up with a ch eese grater stuck to my cheek,a ham sandwich stuck on my forehead and a few weeks ago I fell asleep at the wheel of the car...so I guess it`s no joking matter,
Zoplicone is for serious sleep disorders and I am allowed only 2 a week...to be takken only quarter hoiur before you go to bed.
Wow do they knock me out...but first I hallucinate. It`s never about Brad Pitt or Colin Farrell though.The first time it happened the computer was screaming at me to rip all the keys off the keyb oard....so I did.
Oh my gosh..how scary is that.
Being in the ukI get to chat to you lot...during your daylight hours...but I mainly tidy drawers or sort out old magazines...jobs which demand me being alone to do them.I sometimes go window shopping on the internet and other times I just sit and smoke my trusty ciggies.
Know what you mean about the tipping forward...thought it was just me who did that.....my kids have caught me ma ny a time before my head has hit the deck.It`s scary for them too I guess.
I don`t like goin g to bed cos of the discomfort and pain but as I said in my waterbed thread.....sleeping on heaps of duvets help with the comfort thing.
Go a stealing girl!!!!
x
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Old 10-20-2006, 11:34 PM #5
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Sleep is a huge issue for me. I was diagnosed with PD last April but have had sleep issues for a few years prior. I can fall asleep but just not stay asleep.

Asked my neuro about trying some Sinemet CR at night because the docs over at the NPF "Ask the Doctor" forum use it all the time for their patients who don't sleep.

My neuro said, "How long have you not been sleeping?"

I said, "A couple of years."

Neuro replied, "Then it's not PD related."

And that was that. Yeah, like my PD started the moment I walked into your office when I was diagnosed!

Oh, and she didn't know what Parcopa was - I wanted to have a few around for those times when you're stuck without water. She later tried to cover her ignorance by stating that it was only for end-stage patients. I guess if you graduate at the bottom of your class you're still considered a "doctor". Ugh.

Time to fire the neuro.

I've got Klonopin but haven't tried it yet. I really don't want to pull a Steffi and rip the keys off my keyboard! (Kidding! ) Plus, with my luck, I would be having hallucinations of Brad Pitt and not Angelina Jolie and that would just not be good...

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Old 10-21-2006, 12:31 AM #6
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Just to add to the never- ending appeal of being an aging pwp, i've added the sexy habit of yelling in my sleep. MY daughters find it amusing. My grandson asks me if I'm ok and goes back to sleep. To him i guess all nanas yell in their sleep.

I almost never remember what I'm dreaming about; I've been taking zanax recently. Sleep has improved. I get up and take sinemet and zanax to try to ward off dystonia and eat something light to get back to sleep. I'm much less sleep deprived since becoming the captain 'of my own ship. I don't have the energy to be responsible for any other adult's happiness.....but at the same time don't want to' be responsible for any negativity either.

I used to tell people not to go to bed until they are having trouble stayimg awake, That would be now for me.

two cents.
paula

Last edited by paula_w; 10-21-2006 at 12:36 AM.
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