[suewessing]

i have had Parkinson disease for 4 years that I know about and the neuro said possibly 5 years previously.I was 48 when diagnosed I am now 52.

I have been having trouble with dyskenisea caused by the LDopa that I have been taking.It is getting to the point that I am embarressed about it.I know that this eventually happens after you have been on the medication a while but I thought I might get a little longer than what I have.

I have been reading about Mucuna Pruriens and have been trying it for the last 10 days under a natropath.In 10 days I have only had 2 of my Parkinson meds,the mucuna pruriens is working really well In fact i feel better having had it than the L dopa.I have no extra movement,and feel much more relaxed being on this it is wonderful.

My problem is I phoned my Neuro did not talk to him but spoke to his assistant . I did not tell her that I had already tried it, I said I just wanted to ask about it, and knew someone who was taking it and what did they know about it ......,
Well she went off her face at me ,and said not to even think about it, if there was anything better than I already have they would have it there and not to listen to what the neighbour or anyone else had taken because it is not any good.
I have been on it for 10 days and have kept a record of how i feel every half hour.I just wanted some advice as to what to do,Should I keep on with it or should I go back on my medication .I know that the mucuna will not work all the time that eventually i will have to go back to my other medication but I dont want to have all that extra movement and feel that if the mucuna is working wouldn't it be good to have a bit of a break from the medication that I have One of my meds I had to sighn a form to say i was aware that there has been a death with this particular tablet (TASMAR)

His assistant said if I was having trouble that possibly I would have to have liquid sinemet possibly every hour becausae that is the best to get the exact dose that i need ,Why would I want to do this when I get 6 hours out of the mucuna .....


i hope you understand all this and can offer some advise I will be waiting to hear from some one





Thank you Sue