[Parkie Patty]

Hi all---

I'm new to this site. Glad I found it. I was in the clinical trial for the Neupro Patch for almost 3 years. I had absolutely no problems with the patch. It gave me back my life as normal as it could be. I loved it. I have now gotten off the patch and am back on Mirapex, which I started on when diagnosed in January 2005. I was excited when I found out about the patch study. Now, to hear about the recall has left me very angry and lost. So many questions. How many patches were crystallized?? How did this all come about?? Why can't the question, "Will it be back on the market?" be answered. I feel like we are being left in the dark. Even my Neurologist is frustrated. I spoke to someone at UCB who stated that we would be reimbursed for unused patches. That's all well and good but I just want the patch back. Why is there so little info out on this?? I know others that are feeling the same. We've been on the net searching and found the same "excuse" being used. I am just at a lost. The ole' saying...Nothing good lasts forever. Thanks for letting me vent.

[Fiona]

Hi - I share your frustration. The whole thing sucks. My entire three-month supply that I had just gotten was defective - all had those little snowflakes...trying to get a replacement enuf to even just safely titrate down from was not easy. I, for one, refuse to go back to Mirapex - I will never take that drug again. Some neurologists apparently were even saying it was some kind of conspiracy - too effective and taking money away from other products....guess we won't know for sure probably - meanwhile, my thoughts are with you. So the result is I am looking harder for alternatives that aren't produced by big pharma companies! They obviously aren't that reliable....