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04-26-2008, 10:34 PM | #1 | |||
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My Daily Show
When you look at me, What is it that you see? Do you see a body uncontrolled, Trying desperately to fit into a mold? Do you see legs searching for a way To put one in front of another each day? Can you see past my clouds of pain To the name and purpose that I claim? Can you reach over your wall To steady my stance so I don’t fall? Does my struggle turn your head Away from a reality you may dread? Is it hard for you to watch me try To walk or smile as you pass by? Do my movements embarrass you While they change with every view? Do you ever wonder where my mind goes When locked in a body completely froze? I ask you now to look past my tent. Look past this disease that will not relent. Look past the medications that take a toll And send my mind where I don’t want it to go. I ask you to try and understand That this is a life I did not plan. I get angry and frustrated and I face a fear That the “me” I know will soon disappear. So I fight to hold onto who I am, And sometimes it’s hard to give a damn About what other people think or need. But, it is neither about attention nor from greed. There is no way for you to know What lay behind my daily show. The only way to understand and define PD is to have it.. bottom line. Inside of my soul, my story lies To find me, look deep into my eyes. Once you are there you will finally see That I have Parkinson’s disease But it does not have me. Laura J Dean
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I have a post-encephalitic neurological disorder, but it does NOT have me! |
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