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05-13-2008, 11:17 AM | #1 | |||
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In Remembrance
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If I get any healthier.... :-)
Anybody have any experience here? From wikipedia via Powerset search- Nutrients have been used in clinical studies and are widely used by people with Parkinson's disease in order to partially treat Parkinson's disease or slow down its deterioration. The L-dopa precursor L-tyrosine was shown to relieve an average of 70% of symptoms.[4] Ferrous iron, the essential cofactor for L-dopa biosynthesis was shown to relieve between 10% and 60% of symptoms in 110 out of 110 patients.[5] [6]
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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05-13-2008, 08:04 PM | #2 | ||
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Junior Member
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I tried it for about 6 months after DX with no detectable improvement.
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05-13-2008, 08:24 PM | #3 | |||
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In Remembrance
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Assuming that we are, let me ask some questions-
How severe were your symptons at the time? Were they bad enough that you would have been able to detect subtle improvement above the "noise"? How much were you taking? Were you taking it alone or mixed with other aminos? -Rick
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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05-14-2008, 02:17 AM | #4 | |||
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has been on my radar for some time since reading an earlier report of its benefit to Parkinson's. A gastro hiccup which knocked my system out of the ballpark a month ago today, and reduced everything to the back burner includiing the Tyrosine trial is now over. Tyrosine produces L Dopa the same as our reliable Sinemet. According to the research Tyrosine and Sinemet cannot be taken together as Tyrosine reduces Sinemet's effectivness.
The figures in Rick's report look absolutley stunning. The question for me is....if tyrosine produces the same substance as Sinemet, why not replace the toxic chemical Synemet which has many problematic side effects with none toxic amino acid protein based tyrosine. and what of Fiona's passion, which demands Mucuna too have a fair shake. As usual, science has more questions than answers. Meanwhile my first shipment of Tyrosine arrives Friday, the dilema is where to fit it in during my endless pill popping day. One thing is for sure the freezing that played a big part in my battle against the odds has now completly gone. I am now back too sprinting for the loo door instead of the two day trek it took me in my off times during my knightmare month of April..
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The true leaders of today are those who strive for a world where it's every citizen can enjoy the benefits of scientific enlightenment and technological progress. GO HARD>>>>SCIENCE Last edited by Howardh; 05-14-2008 at 02:44 AM. |
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05-14-2008, 02:54 AM | #5 | |||
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Rick,
I started taking L-Tyrosine every night in between the 12 hour time period (1800 hr to 0600 hr) when I don't take dopamine. When l started ramping off RR Sinemet I eliminated my entire 2100 hr dose which included CR Sinemet as well. If I didn't sleep through the night I started trying out L-Tyrosine here and there as an experiment to see if it made any difference. I couldn't really tell on such an inconsistent basis so I started taking one 500 mg L-Tyrosine with a big mug of Gatoraid with added Glutamine powder and Creatine. I wondered if I should be taking it with amino acids myself. I have just upped my L-Tyrosine to two (1000 mgs). It is too early to tell and I wish I had researched these types of questions before I decided to wing it. One only has so much time and energy. One thing I do know for sure is that I am way better as a result of reducing my dopamine, the leg cramps, pain and dystonia have been substantially reduced. I want to try if possible to see if I can start producing my own dopamine, the drugs were/are killing me. This is not much help, I know, just wanted to let you know I'm experimenting. Here are a couple of links http://www.nutritional-supplements-g...-tyrosine.html http://wellness.xtend-life.com/produ...aspx?id=900124 http://books.google.ca/books?id=mUCx...5HfwUmPU&hl=en After reading info on those two links I'd say taking 1000 mgs of L-Tyrosine is way over the line, WAY! Thankfully when I replied to your post I goggled L-Tyrosine which I should have done in the first place. Bonnie
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"Trust your nervous system" - Timothy Leary Last edited by smithclayriley; 05-14-2008 at 04:13 AM. Reason: added links/comment |
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05-14-2008, 09:50 AM | #6 | ||
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has 0.6 gm of tyrosine and 0.4 gm of cystyne (a precurser of glutathione) among other vital protines. I take it and wonder who else is on this natural track? I take mucuna and other "rat" researched supplements as well and no "offcially" approved PD drugs. So far so good in my early yeras of PD .. 2 years since diagnosed
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Imad Born in 1943. Diagnosed with PD in 2006. |
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05-14-2008, 10:56 AM | #7 | |||
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Member
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This is a much better link with some questions and answers more pertinent to the topic
http://www.raysahelian.com/tyrosine.html I ordered Mind Power Rx. The herbs, nutrients and vitamins in this product pretty well covers what I want to try, although the amount of each additive is quite low. It has Mucuna pruriens in it as well. Worth a try.
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"Trust your nervous system" - Timothy Leary |
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05-14-2008, 08:14 PM | #8 | ||
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Junior Member
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Quote:
CoQ10 - 1200mg/day C - 2000mg/day E - 800mg/day B complex ginko - 240mg/day flax seed oil - 1tbls/day No PD rx meds. Symptoms where mild; added rasagiline after about six months and dropped tyrosine. |
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05-16-2008, 12:34 AM | #9 | ||
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New Member
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Quote:
Do you think that excessive physical exercise produces excessive free radicals, requiring the need for more anti-oxidants? What do you think of taking creatine? How do you determin the difference between a symptom of PD and a side effect of Azilect, Mirapex? Is excessive sweating & constipation & sore-stiff neck a side effect or a symptom? You are interesting to listen too. Thanks. Gene |
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05-16-2008, 10:56 PM | #10 | |||
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Junior Member
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Quote:
I take azilect, mirapex, coq10 & xango. |
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