Paula, you are so brilliant! I mean it. Perfect email.

By the way in the Actor's Studio interview, Michael told a student with dystonia that he gets painful facial dystonia. If Rush could truly see how bad PD gets, he still would not change his position. He seeks facts only to validate his preconceived views.

Birte, I didn't see your email. Very important points. Thank you.

I'm going to send the link to this thread, and the first, to a columnist at the Boston Herald, Margery Eagan.

Hey thanks zf - Birte and I were thinking alike there.

If you have time and are going to send this in to the paper. could you further drive the point home in an intro statement that living with PD becomes an every waking moment challenge at avoiding no movement [going off] and excessive movements [ abundance of levadopa], everyday is different and eventually you start to lose the battle.

thanks and good luck, people don't understand anything about what they are seeing and now its all about the politics.

paula

The best you can do with the Rush Limbaughs of the world is ignore them...or possibly ship them off to Iran or North Korea. Hmmm...would they conform and thrive or be shot on the spot? Hard to say really. The man's not stupid, just a opportunist.

i'm not worried about what Rush thinks, but I do worry about how it is affecting the public's perception of our illness. That dyskinesia is not faked and it is not a symptom of being off. That doesn't help our cause

paula

I wonder if Rush ever thought about what would happen if he ever stopped taking his oxycontins abruptly?..He'd be doubled over with stomach cramps squirming on the floor like an ant on a hot tin roof, and crapping his pants like a newborn baby..

You know you can only fight the unknowing and uncaring of another with the truth of logic.

When you go off on these tangents of ridicule and threats and bad wishes for the demise or hurting of another you are defeating your purpose and those who would want to know just exactly what he is talking about and where he is wrong wil tend not to care if this is the pervading attitude of anyone who dares to question.

They may want to turn their back and n;ever think about Parkinson's Disease again without the words that are being expressed here.

Limbaugh is already talking about receiving email from people correcting him. He is keeping the subject in the forefront of the people who in just a couple of weeks are going to the polls,

jeez keep him talking and argueing about Parkinson's and keep your emails going to the letters to the editors etc putting him straight.

Let his defenders and detractors argue about parkinsons any way they want to, in other words let the talk continue on


Let him do the name calling..............rise above the man

I don't know about in Canada, but it's all over the media in the US. A neurologist just came on our local news and said, "He could have been off his meds."

geez
paula

Geesh! Gotta love those neurologists! NOT.

how some talking head can always be found to support the most blatant lies and accusations?
It doesn't matter any more if something is false, once it is mentioned in the media it acquires an existence, it poses as a possibility, and if mentioned often enough, it becomes a phantom 'fact'. People hear it, believe it, and it sticks.
Innuendo, sly little untruths and big howling lies ooze over us daily.

Outstanding description Brite! When confronted, say a big bunch of nothing.

A friend called furious because she knows what dyskinesia looks like after knowing me for over twenty years. She said to write all the tv networks . If they didn't broadcast it chances are an affiliate has. I'll post one more time with some changes to hopefully inspire you and let you feel the power that only you have. Feel free to use it. I sent to several major networks:
--------------------------------

There needs to be some serious correction and retraction of what has been said about Mike Fox's appearance in the candidates' ads.

If you are on the list and shouldn't be because you didn't report it at all..sorry, but your affiliates may have.

First the facts: There isn't just a Parkinson's Disease. There is a Parkinson's Community. People with Parkinson's are focused, informed, online and watching. This one is not just inaccurate, but highly inaccurate.

2. If MJF were 'off 'meds, which he has talked about doing back when he was far less along in this progressive disease, he would be mask -faced, wouldn't be able to walk unassisted, be completely rigid and cramped, speech would be affected. This is what Parkinson's looks like when one is 'OFF' meds. Intermittent VIOLENT tremors would accompany. Here the problem is inability to move/function. It is far worse than Dyskinesia.

3. What you are seeing in the ads is Dyskinesia - which is a medication side effect almost as debilitating as the illness. Here the problem is excessive movement. Involuntary and humiliating. Can't imagine why he would try not to let people see him like that ...can you? You have to be 'on' meds to get this way.

Everyone personally involved or who has seen him lately knows Michael's dyskinesia gets out of control, a fate which possibly awaits us all with PD. Life becomes a 24/7 challenge of balancing meds so as to look as close to "normal" as you can, plus try to get some sleep. Eventually you begin to lose the battle.

4. You are confusing showing an example of an illness and a genuine right to express support for candidates who can help his cause [isn't that what we do in America?} with exploitation of the illness.

Here's a little helper.....On/Off.......On/Moving/Dyskinesia......Off/RIgid/Slow/Frozen.

Michael has been libeled.