Parkinson's Disease Tulip


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Old 05-25-2008, 01:15 PM #1
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Default Blog about getting off Sinemet

http://www.blog.parkinsonsrecovery.com/?p=17
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Old 05-25-2008, 11:00 PM #2
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Default This

guy lives not far from my place. Soooooo much to read, sooo little time. Thanks Fiona
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Old 05-26-2008, 05:46 AM #3
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Thumbs down Coleman is a joke

Amongst our local parkinsons community.
He should be ashamed of himself but unfortunately he's still touting for business.
He's trying to make money with his "Pathways" program on recovering from P.D. or in his case even better than that, one of the parkinson plus syndromes.
Every now and then his name bobs up and I'm sorry if I come across as rude but the man in my opinion is despicable.
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Old 05-26-2008, 10:01 AM #4
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Made it up - thank you and please explain. I'm not saying he's wrong or right - I just don't know...why is he considered a joke and a despicble person? In terms of making money from Parkinson's - face it, everybody else we come in contact with find us a highly lucrative market also, so that alone can't be it...
so is it that people think his methods don't work or wassup?
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Old 05-26-2008, 12:52 PM #5
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Default two-cents worth

Welllll...I found the links in this thread interesting and comments were thought provoking. I believe there is a path out of this black hole we have all found ourselves in, and very possibly more than one.

I have yet to meet a person who purposed a solution to any serious/controversial problem who did not come under some criticism or condemnation for what they had to say. Maybe that's why some who do find a non main stream way out don't come back and talk about their experience. Fear of criticism. As for making a few bucks off what you have to offer, we sometimes forget that there are expenses associated with running a website, mailing out info and ones time and energy are also worth something. Sharing for free is a nice concept, but the cost of gas continues to rise.

The closer I look at my PD...the odder everything about me and my life looks. I think we are only incurable if we believe we are incurable.
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Old 05-26-2008, 05:00 PM #6
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Hi Fiona and Rosebud,

Coleman has been trying to gain exposure here amongst PWP for a few years now.
When questioned about who made his diagnosis, what medication he took, whether he ever gained relief from it etc he had no comment.
He can't come up with any concrete evidence that he ever had PD let alone (as he claims) a Parkinson Plus syndrome which as we all know has a poorer prognosis than what most of us reading this have.
Anyway just my two cents worth.
I'm normally very cautious about what I print on this site for fear of critiscism but I feel quite strongly about him preying on our diagnosis so if any of you still wish to try his methods go for it.
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Old 06-06-2008, 11:55 AM #7
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Default you might want to look here

Some pretty dramatic claims

http://www.sciencedaily.com/releases...0109091102.htm
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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