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11-11-2009, 09:05 PM | #71 | ||
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Junior Member
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Quote:
GDNF - Medical Illusion or Reality or Is it just a state of mind? GDNF - Is it real or is it Maybelline Some mice were Chewing on an allegory of the plasticity of time While playing with elusive dream-strands within the mind About chemicals of passion, sloth, curiosity and drive Mixed, pondered, listed, discussed, survived And how brains whose complexity - patterned from Divine Conceal strength & purpose, a true measurement denied This annoying patients and baffling scientists alike So earnest doctors must tip toe a labyrinth of land mines Their consideration waning, contemplating this muse When they then one by one, after howling it to the moon Begin to understand why they had disappeared the room For they all had been quietly humming this little tune Weevils supped at a table with grasshoppers and swine In chambers owned by flies elegantly dressed “to the nines” A menu of bacon maggots was toasted to, with locust wine And they all said these placebos are the best on which to dine. april/jingle |
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"Thanks for this!" says: | Bob Dawson (11-13-2009), paula_w (11-13-2009) |
11-16-2009, 12:02 AM | #72 | ||
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Junior Member
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Here is the edited, titled, easier to follow - poem that I wrote;
(I have had PD 22 yrs, & was a participent in the GDNF phase II trial) Who was the Villain at the GDNF Table? Some mice and friends were: - Chewing on an allegory of the plasticity of time While playing with elusive dream-strands within the mind About chemicals of passion, sloth, curiosity and drive Mixed, pondered, listed, discussed, survived, And how brains whose complexity - patterned from Divine Conceal strength & purpose, a true measurement denied (This annoyed patients and baffled scientists alike. And earnest doctors tip toe a labyrinth of land mines.) Fearsome consideration waning, contemplating – what was truth Inexplicably they, one by one, (after howling to the moon) Began to understand why - they had disappeared the room Here is the magic-story-riddle they’d been humming out of tune: “Weevils supped at a table with grasshoppers and swine In chambers owned by flies elegantly dressed “to the nines” A menu of bacon maggots was toasted to, with locust wine And they all said “these placebos are the best on which to dine.” * * * We were vulnerable, hopeful; willed - the finish line into sight. Set before us, was a choice, and for it, we risked lives. But of all the fears we fought, how can it be, one of the lies A Placebo’s unknown factor – held royal flush, & lethal smile. Symptom relief victory we lived, & testified The – no longer vanquished monster now with mouth open wide Is again eating up our futures & decimating lives Told, our sacrifice – a failure? What rot. We are NOT mice! |
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11-16-2009, 03:38 PM | #73 | |||
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Senior Member
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That was so cool! You are quite talented
Peggy |
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"Thanks for this!" says: | jingle belle (11-16-2009) |
01-24-2010, 03:50 PM | #74 | ||
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Senior Member
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I used to know things about Parkinson's that I no longer know. I used to know that it is a condition that is inconvenient, but not fatal and not painful. I used to know that Big Pharma consists of thousands of dedicated scientists, wearing white lab coats and devoted to improving the lot of the human race; consecrating their lives to reducing human suffering.
And I personally know some scientists who are, precisely, doing that. But there came a day when a little old lady directed me to this thread, and all hell broke loose in my PD gang. The only thing I promised is that I will not forget the story of the volunteers for the Amgen clinical trials. But sometimes, like a drug addict, I go searching for things about Amgen. This may be irrelevant and so I have no objections if the moderators delete it, and I did not find any specific references to Parkinson's or the volunteers in the following links - what I found is Amgen employees talking to each other, down through the years; and it's not quite as dedicated to rescuing mankind as I used to think. http://www.cafepharma.com/boards/sho...d.php?t=254587 http://www.cafepharma.com/boards/sho...d.php?t=259462 http://www.cafepharma.com/boards/sho...d.php?t=270814 http://www.cafepharma.com/boards/sho...d.php?t=117226 http://www.cafepharma.com/boards/sho...d.php?t=249016 http://www.cafepharma.com/boards/sho...d.php?t=190942 http://www.cafepharma.com/boards/sho...d.php?t=405518 http://www.cafepharma.com/boards/sho...d.php?t=405518 http://www.cafepharma.com/boards/sho...d.php?t=385975 http://www.cafepharma.com/boards/sho...d.php?t=400081 http://www.cafepharma.com/boards/sho...d.php?t=243927 http://www.cafepharma.com/boards/sho...d.php?t=396561 http://www.cafepharma.com/boards/sho...d.php?t=266086 http://www.cafepharma.com/boards/sho...d.php?t=105779 http://www.cafepharma.com/boards/sho...d.php?t=187865 http://www.cafepharma.com/boards/sho...d.php?t=187354 http://www.cafepharma.com/boards/sho...d.php?t=249185 |
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01-25-2010, 05:48 AM | #75 | ||
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In Remembrance
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Bob,
The links wouldn't open for me earlier. We would post there at Cafe Pharma occasionally during the gdnf debacle. As a whole they are hostile and complain miserably about their employer...or is it just that youth is hostile in general on the internet? They softened some when we identified ourselves as patients. That's where I learned the acronym GDNF - "good drug no future". In one of the links a poster made this disturbing comment: "All the ethical people are gone, they either quit or were fired." paula
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paula "Time is not neutral for those who have pd or for those who will get it." |
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