hubby has all the tv's at the club on channel 8.

was it debbie who came and did the interview?

She had a chance to elaborate on the truth of Parkinsons but this blows it.

i will work on editing the broadcast, so i have just the segment.

even got to see neuro talk on gayles computer! hehe..stevem...your rush card is going to be famous.

you did an awesome job gayle and kevin!!!! ((((hugs))))

oh...i have the vhs tape...i'll pm you gayle so i can get it to you.

WHAT TEAMWORk!

gotta love it,
paula

by no means did that blow anything.

gayle was reading from the message board. it clearly showed that it was a comment made on the board and not gayles comment. ( showed her computer her scrolling the comments. )

my husband had over 50 people watching the segment. all the responses were positive. it got the word out.

gayle, your comment about cancer...it made a very vivid point that all who see it will understand.

What were the positive comments?

Oh ya I have Cancer and I have my hair. Going to far for comparisons.

I have seen lots of people in the years I have been on the road for Stem Cell Research and if you go on the personal attack it always results in losing the points you have made.

You have to sit back and read and read over again before you make any statements that devalue your premise.

Talk about his drug use is a no no even if someone else says it.

You can never devalue anothers stupid or foolish comments by taking the same attitude.

Then where is the moral highground.

Michael J Fox is using his head and not getting into a name caling fracus, we should too.

Thank you Curious! It is not easy becasue you have a TV crew here for an hour and no control over editing. Thelma, I'm sorry I was not able to meet your epectations but I think you only saw the print version and not the Video version.

Our phone is ringing off the hook and so is our e-mail. It just shows you the power of the internet and some poor souls trying to make it through with this dreadful disease.

We have a young friend who is very active with Bono & the "One" organization. She is always sending me stuff about what they are doing. It was just fun that for once, we could send something we are doing about Parkinsons'.

We never started out to be advocates. It just came our way by accident. All the phone calls we have recieved from people who saw the TV segmant have been very positive.

I apologize is they attributed statements to me that are not mine and I am sorry if I did not meet your expectations but I never planned the be involved with PD as part of my life plan. God just sent it my way for whatever reason.

Gayle

Gaykir,

Can you post a direct link to the interview? I'll see what I can do.

i am in the same boat - was interviewed in Phoenix

jean

I just sent Rush Limbaugh an email asking him to keep talking about MJF. You can't buy this amount of attention and public education about PD. I can't believe that we are actually discussing things like dyskinesias and levodopa on a nationally syndicated radio show (the largest in the country) for 3 days!!!

If I were being totally honest, I didn't know what dyskinesias were or that they were a predicatable consequence of longterm levodopa use before my husband was diagnosed 1 year ago. Rush makes the mistake many others do that if MJF looks "fine" on Boston Legal or on a Barbara Walters interview, then he might be "exaggerating" for political purposes. I think Rush just has the bad taste of showing his ignorance (and not really admitting it later).

But this is a good thing for the cause and if it helps us raise awareness and dollars for an illness that certainly deserves as much attention and empathy as a totally PREVENTABLE disease like AIDS, then the Rush Limbaugh incident is a good thing.

a totally PREVENTABLE disease like AIDS

Tell that to the children who are born with the disease

You amaze me