Parkinson's Disease Tulip


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Old 06-01-2007, 04:34 PM #131
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Default DM - no alcohol

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Originally Posted by steffi 001 View Post
I asked my GP if I could obtain Dextra.....in a tablet form,hence doing away with the alcohol content.It doesn`t affect me but I know some folk here are intolerant of alcohol in formula`s.I was surprised at his answer...that it is not on the UK drug registry and he thought could be addictive.I haven`t found the cough medicine addictive..but would be interested as to how you guys take it/..Again sorry...can`t go wading through the posts....too much else to do
Why wouldn't one simply buy a cough medicine containing DM and no alcohol??

Ken
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Old 06-01-2007, 06:05 PM #132
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Default Well...

..good point...can you reccomend one?
x
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Old 06-01-2007, 06:30 PM #133
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Default DM - no alcohol

Quote:
Originally Posted by steffi 001 View Post
I asked my GP if I could obtain Dextra.....in a tablet form,hence doing away with the alcohol content.It doesn`t affect me but I know some folk here are intolerant of alcohol in formula`s.I was surprised at his answer...that it is not on the UK drug registry and he thought could be addictive.I haven`t found the cough medicine addictive..but would be interested as to how you guys take it/..Again sorry...can`t go wading through the posts....too much else to do
Why wouldn't one simply buy a cough medicine containing DM and no alcohol??

Ken

Quote:
Originally Posted by steffi 001 View Post
..good point...can you reccomend one?
x

Looking in the pharmacy or whatever it is called over there would be a good place to start for most.

Buckleys DM (sucrose free alcohol free) is one sold in Canada.
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Old 06-05-2007, 01:30 PM #134
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Default DX Products and LDN naltrexone

In post #126 by ol'cs, he provided a PDF file on Dextromethorphan FYI for Pharmacists. At the end of the report, page 17, there is a table of various DX products with their strengths and ingredients. Also, my earlier thought that LDN (naltrexone) and DM could be combined is probably wrong. On page 5, it is stated that naloxone (naltrexone) is an antidote for DM overdose.
http://www.continuingeducation.com/p...han/dextro.pdf

Also, in the lowdosenaltrexone web site under "Latest News - May" the researcher below treated 10 people with various immune disorders, MS, lupus, RA (no PD) with 4.5mg naltrexone. DM is aso an opioid. It's not a long report and is easy to read.
"Niles Bauer, PhD candidate, Department of Microbiology and Immunology, College of Medicine, University of Arizona, supplied a copy of a presentation to his department in March 2007. He observed “profound” improvements within a month after the start of LDN treatment in people with a wide variety of autoimmune disorders."
http://www.lowdosenaltrexone.org/ldn_latest_news.htm

I'm curious as to how many here are taking DM and what their thoughts on the whole thing are? Ashley
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Old 06-05-2007, 02:38 PM #135
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Default Still going strong

As i wrote on a recent weekly check-in, I'm taking about 5mg of DM each night (approx 2/3 tsp. of "Pedia Care Cough" with 7.5mg DM per tsp.). I still need my 2 X Sinemet cr 50/200 generic and 1/2 of a regular Sinemet 25/100 generic each day; also take Amantadine and CoQ10. Neuro is delighted with my status.

Dx 2001, started on Sinemet and Amantadine. Decreased Amantadine in 2002 due to swelling feet and ankles. CoQ10 begun 2002, DM begun 2003.

I still work in the yard 4-5 hrs each day (with breaks) and my wife says she sees no symptoms except for the early morning "shuffles" before the meds kick in. Still have occasional "PEE ALERTS", depending on what and how much I drink.
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Old 06-05-2007, 05:51 PM #136
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Default

I am still taking DM too..Ive been out fishing and doing other odds and ends, yard work, getting prepared for fishing the following day, food shopping, etc..Ive been very active lately, moreso than a year ago..Still at 3x25/100 per day with the exception of substituting with a 50/200 in the morning before I go out fishing..I went out 4 days in a row last week, but couldnt go on the 5th day because of fatigue and bad weather
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Old 07-23-2007, 12:32 AM #137
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Default Just want to check

to see how many on the forum are now taking low-dose dextromethorphan (DM) or low-dose naltrexone and your impressions of sympptom progression over the last six months. If you prefer, send your reply to me by pm.
Robert
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Old 07-23-2007, 01:24 AM #138
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Default

Quote:
Originally Posted by RLSmi View Post
to see how many on the forum are now taking low-dose dextromethorphan (DM) or low-dose naltrexone and your impressions of sympptom progression over the last six months. If you prefer, send your reply to me by pm.
Robert
I am still taking 5-8 mg daily

I have toe curling problems recently on my right, most affected side..I dont know if its dystonia, or progression..or if dystonia = progression

My left hand has lost some coordination..but my gait has improved..I would say that Im doing ok and that symptoms are playing musical chairs..Fatigue a tad lessened

Except for the toe curling..(on one foot)....Im more or less at status quo
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Old 07-23-2007, 03:50 PM #139
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Default Yes

Husband is still using the cough medicine but also using a number of supplements and working hard at the gym so difficult to sort out what, if any, are having a result.Touch wood, there seems to be no, if not very little progression.Two separate people, without prompting, said he seemed a little betterne was the gym instructor and one a friend of long standing.I do not know:the tremor has not diminished but his face seems a lot,lot more mobile.Still on13 mg Requip only.Time since tremor became so troublesome went to doctor:3.5 years.+
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Old 07-23-2007, 09:25 PM #140
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Default a suggestion

I will not hijack this thread so if there is any interest we can jump to a new one but the reply from Englicsh conutry dancer got me to thinking about how difficult it is to sort out what we are doing and what is working.

If those of us experimentinting with anything used our signature line like a little billboard like below we could compare. it would be of some value wouldn't it?
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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