Everybodies welcome here.

Did the Neurologist/Pharmasist give you any explanation for their taboo of DM?

Thank you, Steve, for your "welcome". No...neither the neurologist nor the pharmacists gave an explanation as to the DM being taboo. I believe that they may be so engrained with the contraindication of DM w/the MAOI's w/no thought being given to the fact that my pwp is NOT taking an MAIO...even the neurologists sometimes seem to be oblivious. I certainly plan to discuss this with my pwp's neurologist at her next visit..she sees him every 3 months...and speaks with him almost weekly, especially if/when "tweaking"/changing meds, etc. I will also mention what the experience has been of those of you, here. I have really read your posts about this with so much interest, Steve. I want to ask you. Were you at BrainTalk Communities at one time? I My pwp was registered, there, and I use to read the posts there from time to time. I am really not certain about my registation, here...I noted with my first post that I was "listed" as a visitor...but, I did register here...I was just not able to find the "new member" place where I was invited to introduce myself. I am not exactly a computer "whiz"...and sometimes, I find it difficult to navigate the system.

Thank you again, Steve, for welcoming me.

Virginia

I still post at Braintalk..Braintalk had a major crash last summer and was down for a few months..Dr John who is the Administrator of this site was kind enough to develop this website so that we would have a place to keep in touch..It was originally set up a temporary meeting place in the interum of the absence of Braintalk, by was made permenant by popular demand

I would be interested about what you pwp's Dr has to offer on this subject

Steve...I will let you know what the neurologist says about the DM when we visit him..I believe at the end of this month. It has been my experience that the doctors...neurologists...are learning from pwp's and their caregivers. Our internist has told us that he had learned so much from us...and even the neurologist was not aware of the obsessive/compulsive aspect of Mirapex until we brought it to his attention. It was just shortly after we mentioned it to him that this particular side effect of Mirapex became apparent.

My pwp use to post at BrainTalk occasionally...Doreen...you may or may not remember her. It was through BrainTalk that we met Scott and Cera (you probably remember this very nice couple). We became very close cyber friends and are in touch regularly. I can remember some others, too...Toad, Jaye, Greg, Birte, Textetu (sp?)...Paula..Thelma...just some that I remember having seen when we use to go to BrainTalk...sometimes to post (i.e., Doreen would post)...and I was just a "lurker"!!! I am happy to be here, now, as a registered member of NeuroTalk. Yours is a name that is very familiar to me so that I almost feel that I know you.

Who knows, Steve...it just may be someone not at all associated with the medical profession or the pharmaceutical arena that will, ultimately, find the cure! This may seem far-fetched, but it definitely is not beyond the realm of possibility as I see it.

Virginia

I'm still doing pretty well with the DM but had a rough day. Turned "off" three times. I blame it on having had a bad night's sleep but in casting about for other explanations I came across the fact that green tea is a weak MAO inhibitor. I don't think it is anything to be worried about but just be aware.

As I mentioned I had slid backward a few paces this week..So last night I purposely didnt take my daily dose of DM, and today was the worse day Ive had since prior to taking DM..I had some trouble with movement, felt out of sorts like I did before taking DM..and when I have trouble with a task my body wants to try to compensate with body language, something that was new in the past few months, but disappeared when I started DM over 3 weeks ago..There are some disabilities that I revisited today that were gone while I took DM..So it seems to me when I have a bad day it would have been worse without DM..That is my judgement call for now

I wont go to bed without taking it tonight..thats for sure!

Yesterday I had a not so good day. I was tired and my back hurt. Today I felt almost 'normal' all day, until dinner time, when the usual evening fatigue set in. Today I got up at 6, showered, dressed, and spent some time on the computer before I took my pills, and that not because I was off, but because I always take them with breakfast. The difference between yesterday and today is huge, and that is the nature of PD, with or without DM. We have good days and bad days, sometimes for no reason it seems. I think that no matter how much DM helps, we are still going to have days when PD gets the upper hand.

Courage, white rats, we're not giving in.

birte

I took my dose of DM before bed last night and I feel great this morning!..Energetic, confident, fluid movement..a huge change from yesterday..I never feel this good, even cooincidentally without DM

Is there a specific brand you guys are using, or just any cough syrup with DM?