FAQ/Help |
Calendar |
Search |
Today's Posts |
07-18-2008, 12:18 PM | #51 | ||
|
|||
Member
|
Anne, thank you so much for the excellent info and advice. It's clear that we desperately need knowledgeable people to help us figure this all out....
Is there no one out there who is willing to come to our assistance????????????? lots of people read this site - does anyone know a doctor, a pharmacologist, a real savvy herbalist or even a good chemistry person willing to try and help a bunch of people who are fighting for their lives every day, some of whom are open to experimentation outside of the system at least try to have a life some way or other? |
||
Reply With Quote |
"Thanks for this!" says: | Ibken (07-18-2008) |
07-18-2008, 02:42 PM | #52 | |||
|
||||
In Remembrance
|
...should be, "If you want something done right, do it yourself." That applies to this type of research as much as anything. They are NOT going to save us! They are going to ensure their bottom line, dream of tenure, and generally look after their own self-interest. A few exceptions, yes, but we are all time-limited in this forum. But we are not helpless. With the Net and its resources plus the communication capabilities it gives us, we have a chance.
Quote:
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
|||
Reply With Quote |
07-25-2008, 05:19 PM | #53 | ||
|
|||
Junior Member
|
Is there no one out there who is willing to come to our assistance?????????????
I am afraid the answer is NO . Anne. |
||
Reply With Quote |
07-25-2008, 05:26 PM | #54 | |||
|
||||
Senior Member
|
anyone taking Mucuna also take one of the MAO-B inhibitors--Azilect or Eldepryl/Deprenyl? If I remember correctly, the rationale for not taking Mucuna while on one of hte mAO_B inhibitors is that mucuna may contain MAO-B inhibitors, as well as other compounds, substances. anyone know the veracity of the reason for not combining the 2 classes of drugs.
__________________
In the last analysis, we see only what we are ready to see, what we have been taught to see. We eliminate and ignore everything that is not a part of our prejudices. ~ Jean-Martin Charcot The future is already here — it's just not very evenly distributed. William Gibson |
|||
Reply With Quote |
07-25-2008, 06:51 PM | #55 | ||
|
|||
In Remembrance
|
call the fire department!
Olanow has the patent to do what with mucuna? I'm too lazy to look it up and it doesn't hurt to briefly remind us...thanks paula
__________________
paula "Time is not neutral for those who have pd or for those who will get it." |
||
Reply With Quote |
"Thanks for this!" says: | ariela (07-25-2008) |
07-25-2008, 07:27 PM | #56 | |||
|
||||
In Remembrance
|
Olanow and two others hold the patent for the use of mucna in the treatment of Parkinson's. This despite the fact that patents are issued for new and original creations. Mucuna has been used for the purpose for centuries and the patent should never have been issued and probably would not stand up to a challenge.
But in the meantime no one is going to risk their career by doing serious research on the plant knowing that this powerful figure is waiting. And since there is no sign that Olanow is doing anything to develop it the only ones who benefit are the big pharmaceuticals whose market would be eroded by a low cost alternative. I am sure that Dr. Olanow did not intend for that to be the case. I wonder what the reply might be if one of the national groups publicly called on Dr. Olanow to release those rights?
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
|||
Reply With Quote |
07-26-2008, 09:58 AM | #57 | |||
|
||||
Senior Member
|
wonder if he will be one of the main speakers at future conferences? how would the disclosure read? Or are disclosures necessary for speakers? I have often wondered if Dr. Marcia Angelle lost her position as editor at the NEJM because she mandated all authors must reveal their support from pharma.
__________________
In the last analysis, we see only what we are ready to see, what we have been taught to see. We eliminate and ignore everything that is not a part of our prejudices. ~ Jean-Martin Charcot The future is already here — it's just not very evenly distributed. William Gibson |
|||
Reply With Quote |
07-27-2008, 10:55 AM | #58 | ||
|
|||
Member
|
Yes, I think the tryptamine content of mucuna would make it an issue with inhibitors so wise to tread very carefully with Azilect and deprenyl and the like. Again, we need someone inspired to help us WHo could actually have the means to figure some of this stuff out.
Even if you have already read the patent application for mucuna, I found it very worth rereading. Its information is just so beautifully clear, thorough, and, uh, informed...The writers are obviously brilliant. http://www.freshpatents.com/Pharmace...0060165822.php |
||
Reply With Quote |
"Thanks for this!" says: | smithclayriley (07-27-2008) |
07-27-2008, 12:18 PM | #59 | ||
|
|||
In Remembrance
|
Quote:
Yes Fiona, brilliant enough to patent it for neurological diseases - not just PD. paula
__________________
paula "Time is not neutral for those who have pd or for those who will get it." |
||
Reply With Quote |
07-27-2008, 12:58 PM | #60 | ||
|
|||
Member
|
By the by, Rick, brilliant idea about getting a national advocacy group to mobilize behind this request to release rights. Who has friends where? Let's talk amongst ourselves. And makes me wonder if that ever happened and why not and the details behind Amgen...guess I should read the book, huh?
|
||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
Mucuna Pruriens | Parkinson's Disease | |||
Here's another new one - thumbs up | Parkinson's Disease | |||
Mucuna Pruriens | Parkinson's Disease Clinical Trials | |||
Mucuna pruiens | Parkinson's Disease | |||
Zandopa, Mucuna? | Parkinson's Disease |