Anne, thank you so much for the excellent info and advice. It's clear that we desperately need knowledgeable people to help us figure this all out....

Is there no one out there who is willing to come to our assistance?????????????

lots of people read this site - does anyone know a doctor, a pharmacologist, a real savvy herbalist or even a good chemistry person willing to try and help a bunch of people who are fighting for their lives every day, some of whom are open to experimentation outside of the system at least try to have a life some way or other?

...should be, "If you want something done right, do it yourself." That applies to this type of research as much as anything. They are NOT going to save us! They are going to ensure their bottom line, dream of tenure, and generally look after their own self-interest. A few exceptions, yes, but we are all time-limited in this forum. But we are not helpless. With the Net and its resources plus the communication capabilities it gives us, we have a chance.

Is there no one out there who is willing to come to our assistance?????????????


I am afraid the answer is NO


.
Anne.

anyone taking Mucuna also take one of the MAO-B inhibitors--Azilect or Eldepryl/Deprenyl? If I remember correctly, the rationale for not taking Mucuna while on one of hte mAO_B inhibitors is that mucuna may contain MAO-B inhibitors, as well as other compounds, substances. anyone know the veracity of the reason for not combining the 2 classes of drugs.

call the fire department!

Olanow has the patent to do what with mucuna? I'm too lazy to look it up and it doesn't hurt to briefly remind us...thanks
paula

Olanow and two others hold the patent for the use of mucna in the treatment of Parkinson's. This despite the fact that patents are issued for new and original creations. Mucuna has been used for the purpose for centuries and the patent should never have been issued and probably would not stand up to a challenge.

But in the meantime no one is going to risk their career by doing serious research on the plant knowing that this powerful figure is waiting. And since there is no sign that Olanow is doing anything to develop it the only ones who benefit are the big pharmaceuticals whose market would be eroded by a low cost alternative.

I am sure that Dr. Olanow did not intend for that to be the case.

I wonder what the reply might be if one of the national groups publicly called on Dr. Olanow to release those rights?

wonder if he will be one of the main speakers at future conferences? how would the disclosure read? Or are disclosures necessary for speakers? I have often wondered if Dr. Marcia Angelle lost her position as editor at the NEJM because she mandated all authors must reveal their support from pharma.

Yes, I think the tryptamine content of mucuna would make it an issue with inhibitors so wise to tread very carefully with Azilect and deprenyl and the like. Again, we need someone inspired to help us WHo could actually have the means to figure some of this stuff out.

Even if you have already read the patent application for mucuna, I found it very worth rereading. Its information is just so beautifully clear, thorough, and, uh, informed...The writers are obviously brilliant.

http://www.freshpatents.com/Pharmace...0060165822.php

Yes Fiona, brilliant enough to patent it for neurological diseases - not just PD.

paula

By the by, Rick, brilliant idea about getting a national advocacy group to mobilize behind this request to release rights. Who has friends where? Let's talk amongst ourselves. And makes me wonder if that ever happened and why not and the details behind Amgen...guess I should read the book, huh?