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#1 | ||
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Junior Member
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Hi, again.
Glad to hear all the positive news about your mucuna experiences. I've tried to start, but for numerous reasons, have put it off temporarily. My question : Has anyone had any negative response or experience with mucuna? Has anyone even heard of anyone having a negative experience? I guess I've just been a little "chicken" to jump into the experiment, and am looking for someone to push me in! I'm looking forward to your response. In the meantime, I'm very happy that both of you are having such great results. It gives me hope. |
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#2 | |||
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Member
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KK13, if you send me your email address to smithclayriley4@yahoo.ca I can forward the info I have on it and the dosing schedule that I follow. I have zip side effects from the Mucuna and hardly any dystonia from the Sinemet CR that I still am taking. Optimistically I could be off Sinemet (two CR 100/25 4 times a day) in a couple of months. I am already down to 3 and 1/2 CR's three times a day. I am amazed how well I am doing but I had no choice, Sinemet/L-dopa was killing me.
I do take L-Tyrosine (2 x 500mgs) Creatine, Glutamine and liquid B12 with Methylcobalamin mixed in Gatorade at 2100 with one 3 mg of Melatonin to help me sleep. This was how I started reducing by eliminating my 2100 hr or 9pm meds.
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"Trust your nervous system" - Timothy Leary Last edited by smithclayriley; 06-18-2008 at 10:12 PM. Reason: correction to email address |
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"Thanks for this!" says: | kk13 (06-18-2008) |
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#3 | |||
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In Remembrance
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I won't say these are negatives so much as cautions. I think it is safer than Sinemet at a minimum.
1) I think the raw powder is best because no one has messed with it. Zandopa is suspect. 2) The studies talk of dosages as high as 30 g and I myself have gone as high as 50 g. At present I am using just 5 g! It seems to be enough. 3) I have integrated it into my other meds. I still take Sinemet CR and Requip at the same dosages, but I get better results. However, I take the mucuna at supper because it seems to interfere with my meds if I take it in the mornng. 4) Because raw beans are not good for you, I toast it in the oven. It is a valuable tool. I just have to learn how to use it. -Rick Quote:
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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"Thanks for this!" says: | kk13 (06-18-2008) |
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#4 | |||
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Member
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Rick, Zandopa is powder but definitely not black. I was wondering why it is suspect?
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"Trust your nervous system" - Timothy Leary |
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#5 | |||
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Member
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Fiona and Rick, I was wondering if either of you could clarify the type of
Mucuna that you are taking. I believe you said it was a powder,what form of powder? Does it come in seed form and why do you bake it for 5 minutes? Why is mine Hp-200 and Fiona says hers is HP-400? Confused.
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"Trust your nervous system" - Timothy Leary |
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#6 | |||
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In Remembrance
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I will answer but you might search back through this subject, too. There has been quite a lot of discussion. As to the powder, I use an organic seed powder by Banyan Botanicals. Google it and you will find several sources. As to why I bake it, raw beans contain a toxin to discourage creatures from eating them. Kidney beans in particular can sicken. That's why people soak them overnight before cooking. I toast the powder before use in hopes of breaking down the toxin. I don't know if it works or not, but I have had no more problems with cramping. Finally, the "HP-200" is just a name, like a brand name. I don't know for sure but the HP-400 may be a typo.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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"Thanks for this!" says: | lou_lou (06-23-2008) |
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#7 | |||
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Member
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Thanks for the reply. I have gone through all the posting on Mucuna and have reams of it printed off. I try and keep up but I think I am on too much information overload.
Less confused.
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"Trust your nervous system" - Timothy Leary |
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#8 | ||
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Member
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Ok, catching up a little bit here - I take this product made by America's Finest Inc. (!) called HGH 400 - it is mucuna pruriens, standardized to 15% l-dopa. So I just do a little math, and take the same amount which would be in 1 Sinemet 25/100 which is two caps of this product. I have tried removing it from the capsules and heating it - didn't seem to make a difference one way or the other, although taking it out of the caps and mixing it into applesauce or yogurt seems to make it work a little faster. I have been using it to replace most of my Sinemet for the past two months or so, and feel better than I did. I still take the Stalevo and Amantadine (but less of the latter), and now this is my fifth day totally off the Neupro patch at last (without replacing it with any other agonist), and I seem to be feeling better every day. Don't get that daily feeling like I'm dying at some point or other.
Keith, as to anything I've heard bad about mucuna - well, not really except sometimes it doesn't work in a given dose or you can have dyskinesia with it. But I'm still experimenting - on the whole I feel much evener and - well, healthier than before. I have struggled with some nightmares, but I did long before I tried mucuna, and I feel it has more to do with withdrawal from the agonists. A lot of self-determination and meditation seems to be keeping that symptom under control. |
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#9 | ||
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Junior Member
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I've read that the problem with Mucina is having to
take every increasing doses to maintain efficacy. Please comment. |
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#10 | |||
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In Remembrance
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I think Zandopa is laced with aspartame as part of its "flavored base." I have tried both and found the powder just as good as the Zandopa. Also, it was interesting to find that mine came with a lovely red plastic scoop labeled "5 g" that held 7.5 g. Made me doubt quality control.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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"Thanks for this!" says: | lou_lou (06-23-2008) |
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