Ten years ago - you might have been run off madelyn. Did you all read that Doc John's site was voted one of the top 50 by TIme.com? Is that right curious?

paula
wanted to add - Fiona what you are doing is the same as everyone else who is probably a good way down the yellow brick road. Trying to escape the wicked witch of the west.

I'm not a dancer in New York, but i've seen the Wizard of Oz. We all need different ingredients..like brain, heart, courage, and on and on. There is not enough time for everyone to learn everything. Medical science and govt.......forget it! But I tangle with them in my mind all the time and try to change something. It's happening right now. Legislatively,and..going to repeat this until Dr. Stacy sees it and takes it for the vote or confidence that it is] Stacy from the researcher angle asked for our help and to give them "courage." That word really stands out -

i still recommend you see these two well known researchers from opposing sides of the GDNF table speak openly about it as well as all the other stuff they are doing in the series of round tables? called something else? - another will go up shortly.

www.pdf.org


paula

my dear one -

considering this illness is on an individual basis - not everyone has the same
PD,
therefore -
I believe that what you do -will improve your symptoms -
I know accuppressure and accupunture - is based on chinese medicine,
and they use it instead of drugged anesthesia , they would not do many things -the Western Doctors do here -
alternative medicine -
http://www.altmd.com/blogs/History-o...ure-in-America
anesthia
http://www.answers.com/anethesia?cat=health

as I have lived in Kansas and I know there are many wizards in the land of OZ/
and in The Emerald City you would be the LION -because you have -great strength and much courage...

Take care my pretty! lol

love &

Fiona,

I'm in my 10th year with PD (diagnosed at age 47)
Did you have acupuncture treatment first which led you to this procedure? Is there a way my acupuncturist can find those spots to see if there is any response?

Slowmo

Yes, Paula, thanks - I am very interested in the GDNF thing. I'll never forget seeing my doctor literally weep and say "I saw those videotapes - that was NO placebo...."

Slomo- yes, I have received acupuncture at various points (pardon me, I had to!) during my life, and found it very helpful for things especially like musuclar injury somehow...Before I went to Spain for the permanent implants an acupuncturist tried several temporary spots in my ears, and sometimes they seemed to help, but hard to say exactly. Your acupuncturist could go to Dr. Werth's site -www.werththerapie.com and see if that is helpful at all - I'm not really a pro on that one. My local guy was doing three points at a time, which would fall out after a couple of days naturally. I have now 128 permanent points!

I really believe in the priniciples of acupuncture. I think it is a system with paradigms that are contrary to our Western medical ones, but brillantly conceived, and I think we are still trying to catch up with it. Our conception of the nervous system is about as close as we get to that. I decided to get the implants because the thing with acupuncture since it's often about balancing a whole field of energies within you, it takes time, and in my city lotsa money, which I don't begrudge the doctors but sometimes it's hard to know when you are getting somewhere or not. So how long do you commit to any one expensive sort of therapy, only one of which I can afford at a time. Besides that, I had never heard any acupuncturist say with confidence that they could definitely help a PD person specifically with PD and lowering the medication. Now I know that often they don't really think of it quite like that.
I think that in any case, acupuncture would be very valuable for maintaining or strengthening your overall health.

The reason I decided on Dr. Werth's therapy is that he is unique in being a neurologist and an acupuncturist trained in China, and saying with authority that he could definitely help people with PD, and has a whole center focused specifically on that. Plus the records he has through DAT scans are really impressive evidence. Besides that, I guess I was attracted to the idea that it's a chunk of money you spend once, a procedure you get once, and then you let it do its thing over time, but you don't have to be continually asking yourself, well, should I be going three times a week to see a result, or how many months should it take to see an effect. This way, it's done, and now I focus on other things, and this helps as it may...

Hi Fiona.
Please forgive me if I am not doing this right,I am new to the forum and not exactly fluent in these matters.
My name is Valerie and I am a long term sufferer of Parkinsons.
I too am thinking of going to spain for the implants and would love to hear as much as you are able to tell me about your opinion's results and any other information you can give me regarding the procedure.We (my friend and I) have read all we can find of your posts and are very thankful that you have been so forthcoming.
Yes I too will be going a.s.a.p to see what can be done and so would love to hear from you.
Is it at all possible for us to communicate via e-mail?
Not that we mind this method of communication.It would be lovely to be able to talk on a personal basis.
Your messages have brought a new light into our vision.
Thanking you most sincerely....Valerie.

[QUOTE=paula_w;306565]Ten years ago - you might have been run off madelyn. Did you all read that Doc John's site was voted one of the top 50 by TIme.com? Is that right curious[unquote]


its ashame that MGH did not make the list. Thats what happens when one makes poor moderator choices, which is my way of saying "atta girls" to our moderators. You guys are the BEST!!

Charlie

fiona,
i wrote to you but can't figure out how to get thru the hoops involved on this site. i don't know how to remove links, etc. just to get thru to you. heaven help the computer novices like me! hopefully you will keep us abreast of your improvements....we are in correspondence with werth's office and are waiting to learn some personal testimonies as well as the approximate cost. i just posted a list of all the alternative things we have done - some good, some not great - but since we have done a lot i thought people might like to know of our experiences and evaluations.
hope to hear from you soon.

Fiona, can you give us an update on your progress?

Dr Werth's website no longer appears to be active, it's like he disappeared in 2008??

Try http://www.parkinsonto.com/page/werth-parkinson-centre