Parkinson's Disease Tulip


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Old 07-20-2008, 05:28 PM #1
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Default PWP w/o caregivers

Just curious, how many parkies are out there try to do it on their own? In short without a caregiver.
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Old 07-20-2008, 05:51 PM #2
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That is my situation although I have home care come in twice a day to help me with housework and meal prep. I enjoy these interactions. My son stays in a down stairs suite but it is not ideal for either of us. The idea of having a community of pwpd living and sharing costs has always appealed to me. The sameness brings a certain level of feeling being part of a social scene, something I miss. I recently moved here so don't have that kind of camaraderie yet.
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Old 07-20-2008, 08:14 PM #3
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I just watched the Bucket List....talk about complete identification with someone.

I need some help; family have jobs, careers, their own children - are always busy. I can joke around with others in my condition, but it doesn't quite make it with those who don't have it or are not closely connected. I want to laugh a lot more.

I really need help with nutrition. I just can't work up the energy or desire to cook and eat what I need. I'm interested in hearing more ideas and especially locations.

I am in limbo now, but have family around me. No single caregiver tho.

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Old 07-20-2008, 11:08 PM #4
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I live alone but do not require a caregiver just yet. I still manage quite well and hope this will continue for some time. I do worry at times about what will happen when I can't manage. A community for PWPD is a great idea, I hope it catches on in the next few years. I'd rather go to a place where I have something in common with the other residents and the caregivers are trained specifically for our needs.
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Old 07-21-2008, 02:03 AM #5
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I live alone ona small farm with two horses. I can no longer manage. Friends come and mow for me, but every night when I climb the ladder to the hay loft, I wonder if I'll make it down without falling. The house is a wreck and needs cleaning badly. It has been weeks since my horses have been groomed. I'm looking for homes for them and the farm is for sale, but in this economy it won't sell anytime soon. I took in a roomate a couple of months ago. I offered free rent in exchange for help. In two months he spent one hour weed wacking. Finally, I kicked him out, but he left half an out building full of stuff. I now must hire someone to come haul it away.
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Old 07-21-2008, 06:16 AM #6
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Default I have a suggestion

Having been immersed in real estate development for a iong time I had a project in ming that might be worth thinking about.

All over the US there are what were once small mom and pop motels that were stranded when the Interstate system was built. Typically constructed in the late 40s they lie on what were then major highways, are single story and built on a slab, and range from 25 to 50 units with each its own entrance. They were often called "Motor Courts" or similar.

There are thousands of these across the country. Probably a hundred within anhour's drive of any city. Many are for sale as they are "outmoded" for a culture taught that "new" is "better". They would be ideal for the purpose.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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