Parkinson's Disease Tulip


advertisement
Reply
 
Thread Tools Display Modes
Old 08-02-2008, 07:44 AM #11
Chicory's Avatar
Chicory Chicory is offline
Member
 
Join Date: Oct 2006
Location: Florida
Posts: 182
15 yr Member
Chicory Chicory is offline
Member
Chicory's Avatar
 
Join Date: Oct 2006
Location: Florida
Posts: 182
15 yr Member
Default

3-6 pm is a good time of day for me, and it has to be -that is when I teach guitar. I usually teach till 8, but by then I am getting tired. I take a nap every day after lunch for an hour, and that allows me to teach when I do.

I go to bed around 10 or 11 pm and frequently wake up around 3 or 4 am, but so does my sister and she blames it on menopause. So I don't know if my sleep disturbances are from PD or menopause. Since both PD and menopause cause sleep disturbances and I am of that age to be going through menopause, I am not surprised to be up in the middle of the night.
__________________
Chicory
Chicory is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
lou_lou (08-02-2008)

advertisement
Old 08-04-2008, 01:48 AM #12
Ronhutton's Avatar
Ronhutton Ronhutton is offline
In Remembrance
 
Join Date: Aug 2006
Location: Village of Selling, in County of Kent, UK.
Posts: 693
15 yr Member
Ronhutton Ronhutton is offline
In Remembrance
Ronhutton's Avatar
 
Join Date: Aug 2006
Location: Village of Selling, in County of Kent, UK.
Posts: 693
15 yr Member
Default Low point in the day

I have read that a persons low point is 3-00am. It is said that if you are close to death, and you make it past 3-00am, you will survive another day!!!! I wonder whether it is the same for animals?
I can't say I feel at my worst at 3-00am, these days I sleep past that time and get up at 6.00am. I think evenings are the time I feel my meds have given up.
Ron
__________________
Diagnosed Nov 1991.
Born 1936
Ronhutton is offline   Reply With QuoteReply With Quote
Old 08-04-2008, 08:25 AM #13
Ibken Ibken is offline
Member
 
Join Date: Aug 2006
Posts: 243
15 yr Member
Ibken Ibken is offline
Member
 
Join Date: Aug 2006
Posts: 243
15 yr Member
Default TCM Clue?

http://www.sacredlotus.com/acupunctu...flow_times.cfm

There must be clues in TCM as to sleep/wake patterns in PD and any other condition. I wish I knew more....
Ibken is offline   Reply With QuoteReply With Quote
Old 08-04-2008, 04:57 PM #14
smithclayriley's Avatar
smithclayriley smithclayriley is offline
Member
 
Join Date: Apr 2008
Location: Nanaimo, BC Canada
Posts: 189
15 yr Member
smithclayriley smithclayriley is offline
Member
smithclayriley's Avatar
 
Join Date: Apr 2008
Location: Nanaimo, BC Canada
Posts: 189
15 yr Member
Default

Rick,

Do you drink any liquids after 7pm? That is a old rule. I also find if I am not relaxed before going to bed I have urinary retention so I am forced to get up every few hours to get rid of it. When I am relaxed I notice I can get rid of it all at once. When do you take your L-Tyrosine? I use it at night to help sleep without taking medications and it works for me.

Bonnie
__________________
"Trust your nervous system" - Timothy Leary
smithclayriley is offline   Reply With QuoteReply With Quote
Old 08-04-2008, 06:03 PM #15
reverett123's Avatar
reverett123 reverett123 is offline
In Remembrance
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
reverett123 reverett123 is offline
In Remembrance
reverett123's Avatar
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
Default

Bonnie-
I don't drink much in the evenings. I blame the sinemet on alternate nights and the requip on the others.

I am taking the tyrosine three times a day at present. I am on Day 4. I want to find out if it will cut my requirement for meds by allowing me to produce more of my own. Last night I went to bed at 11:30 without going off for the first time in several months and I am anxious to see how I do tonight.

Hope springs eternal - Rick

Quote:
Originally Posted by smithclayriley View Post
Rick,

Do you drink any liquids after 7pm? That is a old rule. I also find if I am not relaxed before going to bed I have urinary retention so I am forced to get up every few hours to get rid of it. When I am relaxed I notice I can get rid of it all at once. When do you take your L-Tyrosine? I use it at night to help sleep without taking medications and it works for me.

Bonnie
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
reverett123 is offline   Reply With QuoteReply With Quote
Old 03-05-2009, 05:42 AM #16
rd42's Avatar
rd42 rd42 is offline
Member
 
Join Date: Oct 2006
Location: Peoria, IL USA
Posts: 328
15 yr Member
rd42 rd42 is offline
Member
rd42's Avatar
 
Join Date: Oct 2006
Location: Peoria, IL USA
Posts: 328
15 yr Member
Default

How's everyone sleeping. I've noticed a new trend in my own patterns. Everyday at 3am, nearly on the dot, I wake up. Many times clear headed. My symptoms I would say are about midline. Three nights ago I started with 3mg of melatonin 30min before bed it knocks me out, but when 3 o'clock rolls around, I'm up again.

Getting up at 3 is not so bad, it's what happens to the rest of the day that's tough. Yesterday I said screw it and made a double espresso at 3:15am. Roll with the punches... and shake a lot
__________________
_________________________________________________
http://calipso-pd.org
...bringing a new wave of Parkinson’s support to central Illinois
rd42 is offline   Reply With QuoteReply With Quote
Old 03-05-2009, 05:50 AM #17
rd42's Avatar
rd42 rd42 is offline
Member
 
Join Date: Oct 2006
Location: Peoria, IL USA
Posts: 328
15 yr Member
rd42 rd42 is offline
Member
rd42's Avatar
 
Join Date: Oct 2006
Location: Peoria, IL USA
Posts: 328
15 yr Member
Default

Quote:
Originally Posted by Ibken View Post
http://www.sacredlotus.com/acupunctu...flow_times.cfm

There must be clues in TCM as to sleep/wake patterns in PD and any other condition. I wish I knew more....

Circadian cycle:
http://structuralevolution.org/blog/...nese-clock.jpg
__________________
_________________________________________________
http://calipso-pd.org
...bringing a new wave of Parkinson’s support to central Illinois
rd42 is offline   Reply With QuoteReply With Quote
Old 03-05-2009, 07:58 PM #18
lindylanka lindylanka is offline
Senior Member
 
Join Date: Sep 2006
Posts: 1,271
15 yr Member
lindylanka lindylanka is offline
Senior Member
 
Join Date: Sep 2006
Posts: 1,271
15 yr Member
Default light ,night, etc

11-4am is when i feel most like me - unfortunately no-one else is up to see it!
daytime sleepiness is an issue, meds related. If it weren't so antisocial I would be as nocturnal as a bat! There was a good programme on bbc about body clocks. it reckoned that light can be used to get things more normal. circadian rhythms being disturbed is a principal reason that many v elderly people in care facilities are over-medicated. I no longer fight the wakefulness at night but use it instead, no partner means I can make that choice. I normalize some as days get longer and there is more light, but problem returns at height of summer. most recently I have been using quiet night hours for drawing, a return to making art after years of digital excess. often wonder if exposure to computer monitors etc exacerbates sleep issues and dysfunctional rhythms......... another form of stress??

lindy
lindylanka is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Conductor71 (02-08-2011)
Old 01-26-2011, 02:45 PM #19
reverett123's Avatar
reverett123 reverett123 is offline
In Remembrance
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
reverett123 reverett123 is offline
In Remembrance
reverett123's Avatar
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
Default

bump bump bump
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
reverett123 is offline   Reply With QuoteReply With Quote
Old 01-26-2011, 08:43 PM #20
Bob Dawson Bob Dawson is offline
Senior Member
 
Join Date: Dec 2008
Posts: 1,135
15 yr Member
Bob Dawson Bob Dawson is offline
Senior Member
 
Join Date: Dec 2008
Posts: 1,135
15 yr Member
Default

[QUOTE=reverett123;336212]This is important stuff. Sleep disturbance can drive you bonkers. In the extreme, say meth addiction, you end up having conversations with the wallpaper and similar hallucinations. .. QUOTE

Moderators, if this is not wanted, please delete:

And I went, and behold, I saw a white horse…”

The Beast watches and observes, looking for weaknesses, deciding when and where to attack; changing its strategy and tactics as it learns. It has explored our bodies and our minds; it has great power and we are very weak.

And after some time, it figured out the simplest thing: human beings get tired. We have to sleep. The Beast never sleeps. The Beast never rests.

All it has to do to win is wear us down.

And that is easy to do.

Sleep deprivation. The Beast came at me three months ago with a new tactic, a new symptom (that is, new to me. I found other Parkies on the internet who had been attacked in the same way, one of them at the exact same time as me). The new tactic is a game called “No position is tolerable”. It is very simple. Every position of my body is uncomfortable. And not like an uncomfortable sofa; more like being on a planet with crushing gravity. All positions are intolerable; sometimes after a few seconds, sometimes after a few minutes; not more than ten minutes at best. Cannot stay lying on my back; roll to the side and my hip bone feels like it is on hard cement with a very heavy weight on top - it feels likes my hip bone will snap, so I stand up but my upper body fills with cement and is too heavy for my lower body and so I start swaying out of balance in the middle, and then sit down on a chair but that is worse - just look at how your body has to contort itself to sit on a chair - or a toilet, or a car seat. Cannot tolerate it. So sit on the floor - no good - lie on stomach - that’s worse.

I am flopping around from position to position but there is no place in this world where I can rest for 10 minutes. And so, what could be more obvious: I cannot sleep.

The Beast started this new game and just has to sit and watch me get exhausted. That is all it has to do to conquer me, to destroy me. Just keep me awake, by making every position of my body impossible for me to endure. Such a simple plan - brilliant, really.

After three days and nights, hallucinations start. After 5 days, you are crazy, and it gets written down on your chart as “episodes of psychosis” or some such thing. Actually you are perfectly normal, ANYONE, a totally healthy person, not taking drugs, will start to hallucinate. That’s why sleep deprivation is used as torture. You would tell them anything just to be allowed to sleep.

How many Parkies have been given anti-psychotic drugs or institutionalized simply because they need to sleep but are judged to be insane?

“… testing lab rats with continuous sleep deprivation for about two weeks or more inevitably caused death of all the rats in experiments conducted in Allan Rechtschaffen’s sleep laboratory at the University of Chicago. The cause of death was not proven but was associated with whole body hypermetabolism.”...

…The brain's ability to problem solve is greatly impaired. Decision-making abilities are compromised, and the brain falls into rigid thought patterns that make it difficult to generate new problem-solving ideas. Insufficient rest can also cause people to have hallucinations, depression, slow reaction times, panic attacks, hypertension, slurred speech….

John Schlapobersky was tortured by the apartheid regime in South Africa in the 1960s.

Here's what he said about sleep deprivation:
"Making a program in which people are deprived of sleep is like treating them with medication that will make them psychotic. I was kept without sleep for a week. I can remember the details of the experience, although it took place 35 years ago. After two nights without sleep, the hallucinations start, and after three nights, people are having dreams while fairly awake, which is a form of psychosis.”
"By the week's end, people lose their orientation in place and time - the people you're speaking to become people from your past; a window might become a view of the sea seen in your younger days. To deprive someone of sleep is to tamper with their equilibrium and their sanity."

In Chapter 17, we printed up cards, the size of business cards, for Parkies to hand out depending on the circumstances. For example:
I have Parkinson’s.
WTF is your excuse?
Or
I have difficulty undressing myself.
Want to be a good citizen?

And now we need a new card to hand out:
I am not psycho.
I just need to have a nap.


http://parkinsonsdance.blogspot.com/...hapter-30.html
Bob Dawson is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
imark3000 (01-29-2011), rose of his heart (02-18-2011)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
New Hours at Work.. PolarExpress The Stumble Inn 6 01-26-2008 11:19 PM
I swear....eight hours, that's all I want... Pamster Bipolar Disorder 23 09-14-2007 07:57 PM
Quandry in the next few hours! Nathan1097 Bipolar Disorder 7 10-18-2006 09:41 AM


All times are GMT -5. The time now is 08:46 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.