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07-29-2008, 04:31 PM | #1 | |||
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In Remembrance
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I am up a bit at night to hit the john and have been that way for a long time. As a result, I have had ample opportunity to sample my abilities at various times of the night and notice a definite pattern and I would like to know if anyone else fits this profile too.
I have a well defined decrease in function (seemingly indifferent to meds) starting around 10:00 PM and lasting until about 4:00 AM the next morning. The difference between 4 AM and 5 AM is almost startling. Can anyone else relate to that?
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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07-29-2008, 08:16 PM | #2 | ||
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somewhere in a distant and not necessarily scientific part of my past i read that many of the major 'wake up and get ready for the day' body/brain mechanisms begin going to work at around 4 a.m. and the obverse is that these same mechanisms often bottom out 12 hours later at around 4 p.m. thus the time most favored for tea (or for naps). it's certainly been my experience.
jon |
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07-29-2008, 08:52 PM | #3 | |||
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I've never noticed my night patterns much. But the 4 pm down time is right on the money. I've tried to change my eating habits, my med schedules and anything else, but I almost always have some down time between 4-6pm.
Who knew??? a 10-20 min nap does amazing things for me, but any longer and I slow down too much and then I have a stall and it can take 2 or more hours to get my act back on the road.
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I would never die for my beliefs because I might be wrong. Bertrand Russell |
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"Thanks for this!" says: | Bob Dawson (01-26-2011) |
07-29-2008, 09:53 PM | #4 | ||
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It makes attending daytime appointments very difficult. This is one of the "PD THINGS" that has a profound affect on our ability to "FUNCTION" :normally".
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07-29-2008, 10:40 PM | #5 | ||
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In Remembrance
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When the "senior members" of the forum who began 10 years ago first got going strong....we retired at 4 a.m.
I continued the habit of staying up all night and finally crashing at 4 am for a number of years. That seemed to be the wind down time for my body chemistry -same time, just reversed in nature - for some hard working years- not missing even a few beats retiring from teaching and beginning a whole new "occupation"... in PD.... and it continues to exist with my just venturing as far can i get before i have to retire this rewarding "self-made cyber advocate for PD" thing -the person I turned into. Do you remember when John Lester encouraged multiple user names in Brain talk? He always felt that it had positive uses. But there were many reasons that it wasn't for everyone to try. There are those here today who could still fess up about who else they were back in those days. It was a thrill seeking and skill requiring chance to take. Toadie always used to write tactfully but directly - that a person could easily be identified just by the writing style....lol...but there were those who were good at it. . Every close advocate friend I have is feeling electricity in the air about changes affecting everything.. as is everyone concerning the issues that affect them personally. We need priority seeking analysis everywhere starting now about the election issues. Forget the name, color, age, party sex, and just grill them both hard. Lay down your arms....Nancy Pelosi stomping her feet so to speak claiming she was saving the planet is unnecessary drama and I can't suppress a giggle....does anyone have a similar reaction? Just make them both accountable for the competencies they claim. They know very well that scandals take attention away from the issues that no one can project accurately because half the world wants to wipe out the other half. uh oh i have to stop.. THanks for any ideas or best of all thoughts about this way of thinking and approach to the elections. GRC could start up as election coverage if we went into high gear. Another thought that may or may not have more matter headed it's way to activate the idea. this is the time....it's always a personal call....and i'm just keeping you informed about what i find out...hope many do the same from their background knowledge. sigh....not quite yet...still work to do...so perhaps a little should be done everyday. Looking at thread title and wrapping with: uh, and therefore, I think 4 a.m. is ...common. paula
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paula "Time is not neutral for those who have pd or for those who will get it." |
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"Thanks for this!" says: | Bob Dawson (01-26-2011), jeanb (07-29-2008) |
07-30-2008, 03:59 AM | #6 | |||
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Note the time I'm reading this.
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08-04-2008, 04:57 PM | #7 | |||
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Rick,
Do you drink any liquids after 7pm? That is a old rule. I also find if I am not relaxed before going to bed I have urinary retention so I am forced to get up every few hours to get rid of it. When I am relaxed I notice I can get rid of it all at once. When do you take your L-Tyrosine? I use it at night to help sleep without taking medications and it works for me. Bonnie
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"Trust your nervous system" - Timothy Leary |
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08-04-2008, 06:03 PM | #8 | |||
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In Remembrance
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Bonnie-
I don't drink much in the evenings. I blame the sinemet on alternate nights and the requip on the others. I am taking the tyrosine three times a day at present. I am on Day 4. I want to find out if it will cut my requirement for meds by allowing me to produce more of my own. Last night I went to bed at 11:30 without going off for the first time in several months and I am anxious to see how I do tonight. Hope springs eternal - Rick Quote:
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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03-05-2009, 05:42 AM | #9 | |||
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How's everyone sleeping. I've noticed a new trend in my own patterns. Everyday at 3am, nearly on the dot, I wake up. Many times clear headed. My symptoms I would say are about midline. Three nights ago I started with 3mg of melatonin 30min before bed it knocks me out, but when 3 o'clock rolls around, I'm up again.
Getting up at 3 is not so bad, it's what happens to the rest of the day that's tough. Yesterday I said screw it and made a double espresso at 3:15am. Roll with the punches... and shake a lot
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_________________________________________________ http://calipso-pd.org ...bringing a new wave of Parkinson’s support to central Illinois |
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01-26-2011, 02:45 PM | #10 | |||
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In Remembrance
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bump bump bump
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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