Parkinson's Disease Tulip


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Old 08-04-2008, 12:05 PM #11
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Default Yup....we're here too!

Speaking for the traditionalists, some of us have hung in quite well on a mainstay of western style pharmaceuticals. But I will add a caveat to that: In my case,I have called the shots on how and when, and even how much. Makes my Neurologist crazy. I have a basic MO that I use as a guideline, but I adjust constantly. You could say I am an intuitive type. I am also very aware of what I eat and how that affects me. I am going into my 12th year. No wheelchair, no walker, as a matter of fact I just bought a pair of 4"heels! Tell your Dr. to stick that in his pipe and smoke it! There is soo much to say on this topic that you would be reading for days. So young man, pack your wagon and head west. The new frontier is being discovered and we are its pioneers.
It's a rough road but hey, somebody's gotta go there. The alternative is just not acceptable! I do dabble in extra curricular supplementation, but as someone before me said, taking pills constantly gets tedious. No Kidding!
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Old 08-04-2008, 01:17 PM #12
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You need a new neuro

Quote:
Originally Posted by lurkingforacure View Post
I didn't know that, that is also a long time (our neuro told us 8-12 years, wheelchair around the 5th year, and then a slow decline, his exact words were "it's usually the pnuemonia that'll get ya", so comforting, those doctors), so it's great to hear that so many are doing so well so far out. And the thing I have noticed about all of that group, including yourself, pretty much without exception: all of you are doing alternative things, none have stuck strictly with the traditional Rx drugs. Those that have....sadly, I do not see that they are still around. Unless I am missing something? That speaks volumes to me.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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Old 08-04-2008, 02:23 PM #13
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Lightbulb dear lurch -or lurk? *smile

Quote:
Originally Posted by lurkingforacure View Post
I didn't know that, that is also a long time (our neuro told us 8-12 years, wheelchair around the 5th year, and then a slow decline, his exact words were "it's usually the pnuemonia that'll get ya", so comforting, those doctors), so it's great to hear that so many are doing so well so far out. And the thing I have noticed about all of that group, including yourself, pretty much without exception: all of you are doing alternative things, none have stuck strictly with the traditional Rx drugs. Those that have....sadly, I do not see that they are still around. Unless I am missing something? That speaks volumes to me.
that is the bad news doctor?
whew!
my doctor/ neurosurgeon - after telling me the news of the PD scourge,
I cried - and he comforted me, when I asked if there was a cure,
he sad no not yet, but it was seriously being studied -& I could have a cure in 5-to 10 years, I spoke to so many awesome brilliant minds doctors -neurosurgeons, neuro scientist -that wass in my advocacy daze...
& now - I try to help many of you, young onset patients - like I was...

so realize the doctor that doesnt know squat -we each have our own type
of PD -there is no schedule for this illness, I wear a two inch heel, because
for some reason - it is easier for walking -also - I can run still and on great
energy days, I can dance... I am blessed - namely because I know that
the info that doc gave was crapola...
have patience with yourself - you will do just fine...
bless your heart -
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by
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, on Flickr
pd documentary - part 2 and 3

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Resolve to be tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant with the weak and the wrong. Sometime in your life you will have been all of these.
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Old 08-04-2008, 02:29 PM #14
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Arrow PS -eat your orange peels -*smile

continued info

History:
Orange Peel is the ripened rind (which sometimes becomes more potent with age) of the Orange and is particularly rich in vitamin C. Contrary to popular belief, the Orange is not native to China. Although its descendence is not exactly known, its origins appear to be in northern and northeastern India, and it was well-known in China and Indo-China as a medicine in the first century A.D. Orange Peel is still used in China today (Citrus sinensis) in Traditional Chinese Medicine (TCM) as an ingredient in different drugs. There is a great deal of current research being conducted lately with respect to Orange (and Lemon) Peel and its powerful constituent, d-limonene, a cyclic monoterpene that causes G1 cell cycle arrest, but thus far, no conclusions have been drawn, and further research is needed. (You may wish to check out the Memorial Sloan-Kettering site for further information about cancer research and d-limonene here). The fruit known as the Seville Orange was first brought to Europe by the Moors in the ninth century and grown in the Arabic realms of Spain and Sicily; sweeter Oranges came to the continent later with Portuguese traders. Columbus introduced the Orange to the West Indies, and the fruit was well established in Florida before 1565. Oranges were growing in California by 1800. The smallish trees grow in well-drained soil in sun with ample moisture in warm climates and do not transplant well. They are susceptible to many different insects and fungal diseases and are also quite sensitive to frost. Orange happens to be the most imported fruit in international commerce, both as a popular and most nutritious food on its own, but also as an ingredient in candies, marmalades, herbal medicine, cosmetics, soaps, perfumes, aromatherapy, etc. Orange Peel is one of the most important sources of vitamin C on earth (the Peel contains more than the pulp), and is also rich in citric acid and d-limonene. Other constituents include p-synephrine, pectin, volatile oils, hesperidin, protein, carbohydrates, fiber, calcium, potassium, phosphorus, iron and vitamin A.

Beneficial Uses:
Orange Peel's high vitamin C content (and A) makes it a wonderful supplement to build immunity and combat invasive infection, colds, flu and many other ailments. Vitamin C is an antioxidant that protects your body's cells from damage, helps form the connective tissue collagen, keeps your capillaries and blood vessels healthy, and aids in the absorption of iron and folate.

http://www.herbalextractsplus.com/orange-peel.cfm
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with much love,
lou_lou


.


.
by
.
, on Flickr
pd documentary - part 2 and 3

.


.


Resolve to be tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant with the weak and the wrong. Sometime in your life you will have been all of these.
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