Parkinson's Disease Tulip


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Old 08-08-2008, 08:04 AM #1
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Default Nerve conduction testing

I just completed a two part nerve conduction test on my PD affected side this morning. I know they have found a problem with a nerve in my leg. Anyone have experience with this to share?

paula
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Old 08-08-2008, 08:38 AM #2
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Default yup, I Do!!

back in the 80's when I was trying to figure out what was wrong with me, my neuro at the time, did some nerve conductivity studies that supposedly found an impingment in my ellbow.
I had surgery on it, an ulner translocation, that was an absolute waste of my time, as it did not help the bradykinesia in my right arm at all!!!!

My suggestion to you is this, get a second opinion before any surgery!

Personally I think conductivity studies are suspect at best.

sorry to hear of your difficulties.

your friend,

Charlie
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Old 08-08-2008, 09:44 AM #3
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After two years of increasing burning pain in my right hand, mynuero did a a nerve conduction test on both arms. I had sugery on both wrists this past April and have no pain anymore. The surgeon felt that all the yars with tremor had cause the carpal tunnel to collapse.
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Old 08-08-2008, 10:00 AM #4
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Default nerve test

yes - before i was dx with PD, i had problems walking and my left foot didn't lift - after ruling out pressure on the nerve from a disk with an MRI, they did this test - actually two different docs did it - one thinking i had ALS and the other thinking maybe some other thing (he never did buy the pd dx)- it was abnormal but wasn't bad enough to be ALS, thank gioodness, so I was sent over to the Parkinson's guy who watched me walk to the end of the hall, pronounced his dx, handed me a booklet, told me to be grateful it wasn't something worse, and left. that was 4 years ago. i had had noticeable symptoms for a year, i think/

sorry about the typing - tryed to ride a bike and broke my arm - anyone have any ecperience with a tricycle///////?
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Old 08-08-2008, 06:47 PM #5
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2 out of 3 in surgery.....yikes......thanks for responding. Sasha, sorry to hear about your arm! I haven't been on a tricycle since I was a little kid. Be careful - helmut? lol

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Old 08-09-2008, 09:29 AM #6
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Paula,

I'm sorry to hear about your difficulties.

I had a few of the NCVTs with the EMGs performed. Very painful tests as far a I was concerned. These were used to rule out other problems that could cause my symptoms. The first one was to test for muscle weakness because I had very high (300% above normal) CPK levels after taking Lipitor. The other two were by two different neuros to rule out other things before diagnosis.

The good news is the muscle weakness went away, and the other two confirmed that the nerves were normal.

Sasha,

I hope your bike riding accident wasn't my fault. I started riding myself and I mentioned how good it felt, and gave you the riding bug.

John
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Old 08-09-2008, 05:23 PM #7
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Default thanks john and paula

probablt all yiur fault, john! actually my cousin - nwho has pd and poor balance can bike for hours - no prob - also a bad, bad influence!

thanks for the concern,

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Old 08-09-2008, 06:54 PM #8
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Hey, Paula,

I had EMG testing. Most of it wasn't so bad because it was quick. However, the EMG on my hands was a nightmare, and went on forever, like a cortisone injection there. It diagnosed carpal tunnel in both wrists. The rest was normal. I didn't have surgery because recovery takes too long, and I need to work. Catch 22. I probably got it from working. I wear splints at night and take gabapentin.

I also had Evoked Potentials testing done. Visual was fine. But the somatosensory tests were painful, and it went on and on for three hours. All was normal.

What testing did you have done?

Last edited by ZucchiniFlower; 08-09-2008 at 07:18 PM.
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Old 08-09-2008, 08:29 PM #9
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ZF - i had to go twice but not for 3 hours! first time electronic zap; second needles. the electricity was worse for me, although it was closely followed by the needles in between the fingers. I get results tomorrow.

i wear braces when they are clean.....lol

thanks,
paula



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Originally Posted by ZucchiniFlower View Post
Hey, Paula,

I had EMG testing. Most of it wasn't so bad because it was quick. However, the EMG on my hands was a nightmare, and went on forever, like a cortisone injection there. It diagnosed carpal tunnel in both wrists. The rest was normal. I didn't have surgery because recovery takes too long, and I need to work. Catch 22. I probably got it from working. I wear splints at night and take gabapentin.

I also had Evoked Potentials testing done. Visual was fine. But the somatosensory tests were painful, and it went on and on for three hours. All was normal.

What testing did you have done?
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Old 08-10-2008, 12:27 AM #10
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Smirk omg

how strange that this should come up. I just had nerve conduction study done on right leg. The docs trying to find out which nerve in my back is in trouble. Anyway, my right leg is so mangled from car accident that they couldn't find the nerve. They kept zapping and zapping. This was followed by the needles inserted into muscles to see how nerves affected them. He said I had nerve damage on L4 and L5. I believe that was already known from cat scan, so not sure how this study helped.
This was followed the next day with an injection between l4 and l5. Doc must have hit nerve and I could feel it firing all down my leg!. There has got to be an easier way. After this series of shots are done (just want to follow thru on them) I am going to see an acupuncturist. Has anyone had any luck with them for pain?
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