Parkinson's Disease Tulip


advertisement
Reply
 
Thread Tools Display Modes
Old 08-14-2008, 11:36 AM #11
leonore leonore is offline
Junior Member
 
Join Date: Apr 2008
Location: Brooklyn, NY
Posts: 57
15 yr Member
leonore leonore is offline
Junior Member
 
Join Date: Apr 2008
Location: Brooklyn, NY
Posts: 57
15 yr Member
Default h pylori thank you all-gets scarier

thanks, all of you, for your attention. Ordering products you suggested, NOW DGL licorice root chewables, and looking into rhubarb root.. Still developing a western med. plan, too
My neurologist leaves for 2 weeks in Italy tomorrow and is doing alot of research on this. We've been back and forth by phone, and he wants a covering competent doc while he's away. Awaiting call.
Meanwhile, I switched to a superb GI doc at NYU where my neurologist is, who my friend with colon cancer likes alot(she's ok). This doc is away, but I'll see him in 2 weeks.
Got my biopsy report by fax, which is a bit more troublesome: duodenitis; antral nodule; gastritis.
Antral nodule shows showing "gastric mucosa" on an "antral lode with focal reactive atypia," with h-pylori on Giemsa stain.
AND!!! biopsy in body of stomach, more gastric mucosa, marked chronic and mild acute inflammation" with "focal mild intramucosal hemmorrhage."
And, just to complicate things, I'm allergic to penicillin and sulfa, primary components of western med h-pylori eradication.
This is all quite scary.
Have been googling all of this, naturally...need to keep a step ahead of doctors...
__________________
“WHEN I DARE TO BE POWERFUL, TO USE MY STRENGTH IN THE SERVICE OF MY VISION, THEN IT BECOMES LESS AND LESS IMPORTANT WHETHER OR NOT I AM AFRAID.”
Audre Lorde: (1934-1992) African American, lesbian-writer/poet/warrior, who gave us the gift of her courage, before cancer stole her away
leonore is offline   Reply With QuoteReply With Quote

advertisement
Old 08-14-2008, 11:39 AM #12
leonore leonore is offline
Junior Member
 
Join Date: Apr 2008
Location: Brooklyn, NY
Posts: 57
15 yr Member
leonore leonore is offline
Junior Member
 
Join Date: Apr 2008
Location: Brooklyn, NY
Posts: 57
15 yr Member
Default Carey- I remember your cat bite-visited you!

hey-remember Cyndy, John and I visiting you in hospital?That was damn scary.

Quote:
Originally Posted by indigogo View Post
Rick - I didn't know that about antibiotics and leftover bacterial toxins.

18 months ago, because of an infected cat bite on my hand, I ended up in the hospital for three days on continuous IV drip antibiotics followed up by 3 more weeks on high-spectrum oral antibiotics, and did not experience any side effects. By the time I was able to start treatment, my hand was swollen to the size of a softball and I had red streaks radiating up the entire length of my arm.

Is the danger when the infection has gone untreated for a length of time, the placement of the infection (closer to the gut), or if you don't get all of the infection?

Just so that I don't sound like a complacent doofus letting the infection get so bad before treatment, the injury occurred a few hours before I left my house on the West coast to fly to Washington DC. By the time I landed, only 12 hours after the bite, my hand was totally swollen; I went directly from the airport to the emergency room; after 6 hours in the emergency room I was finally admitted and treatment was begun. By that time the infection was so bad that I was attracting medical students sent into see the "fabulous example of agressive infection," and photographs were taken for teaching purposes!

This occurred at George Washington University Medical Center in DC, where I was really impressed by their staff - when I told the night nurse I had PD, she said, "well then it's important you get your meds on the right schedule!" and she let me keep my own until the next morning when I was given theirs.
__________________
“WHEN I DARE TO BE POWERFUL, TO USE MY STRENGTH IN THE SERVICE OF MY VISION, THEN IT BECOMES LESS AND LESS IMPORTANT WHETHER OR NOT I AM AFRAID.”
Audre Lorde: (1934-1992) African American, lesbian-writer/poet/warrior, who gave us the gift of her courage, before cancer stole her away
leonore is offline   Reply With QuoteReply With Quote
Old 08-15-2008, 05:21 PM #13
leonore leonore is offline
Junior Member
 
Join Date: Apr 2008
Location: Brooklyn, NY
Posts: 57
15 yr Member
leonore leonore is offline
Junior Member
 
Join Date: Apr 2008
Location: Brooklyn, NY
Posts: 57
15 yr Member
Default h-pylori and licorice root-how much?

Thanks for the tip. I ordered and got the exact licorice root you suggested, but what's an appropriate doseage? And, same question applies to the mastic gum. thanks, Leonore



Quote:
Originally Posted by Chemar View Post
just wanted to share our success eradicating h.pylori with Mastic Gum (aka Gum Mastica from Greece) which kills the bug (we got ours in capsule form at our local Vitamin Shoppe branch (www.vitaminshoppe.com) and also DGL- licuorice root, which heals the ulcerated areas.

It *must* be DGL-liquorice (usually comes in cheawable wafers- we like the one by NOW Foods which i get at www.iherb.com ) Other forms of liquorice root are not the same in GIT mucosal healing properties, and regular liquorice root can elevate blood pressure, so do be sure to only use DGL-liquorice root for this (DGL = Deglycyrrhizinised liquorice )

hope that can maybe help if you need to try to avoid the chemical rx drug route.
__________________
“WHEN I DARE TO BE POWERFUL, TO USE MY STRENGTH IN THE SERVICE OF MY VISION, THEN IT BECOMES LESS AND LESS IMPORTANT WHETHER OR NOT I AM AFRAID.”
Audre Lorde: (1934-1992) African American, lesbian-writer/poet/warrior, who gave us the gift of her courage, before cancer stole her away
leonore is offline   Reply With QuoteReply With Quote
Old 08-15-2008, 05:33 PM #14
leonore leonore is offline
Junior Member
 
Join Date: Apr 2008
Location: Brooklyn, NY
Posts: 57
15 yr Member
leonore leonore is offline
Junior Member
 
Join Date: Apr 2008
Location: Brooklyn, NY
Posts: 57
15 yr Member
Default rhubarb root and h-pylori

Thank you for all of the information, again. What is the doseage of rhubarb root that you recommend? I ordered and just received it, one with alcohol, one without, from Herb Pharm and Nature's Answer.

It's been quite an experience trying to coordinate my h-pylori treatment from Cape Cod, given my pencicillin/sulfa allergies, and my conscientious but over-extended neurologist headed to Italy tonight for 2 weeks, trying to be sure my internist is overseeing all of this from Brooklyn. I'm only rushing this because I've spent too long (several months) becoming increasingly dependent as my "off" periods have inexplicably increased, causing me to close my private family therapy practice., and on my last week of 2-week vacation, I want to give my family members a break and return to my old exceedingly independent self where I can go places alone without fear of "freezing" and thus needing chaperones, or people to check on me all the time.
Mucuna has been my saving grace, but is inconsistent.
So my regimen just arrived of Biaxin, Flagyl and something for my stomach.
Wish me good luck. I've started the licorice root wafers, already.
best, Leonore

Quote:
Originally Posted by reverett123 View Post
leonore, there is some serious danger here so be careful. Do a forum search and you will find the full story, but the condensed version is that the standard way of doing things is to hit the HP with a mix of antibiotics and wipe it out.

A healthy person can do that but for a PWP it can be the end and I'm not kidding. The problem is that all those dead bacteria flood the system with toxins. Our slow GI tract, leaky gut wall, and leaky BBB combine to spread the toxin to places that we definitely don't want it. It can do serious nerve damage and even put you into a wheelchair.

You may remember Ron's experience with his infected tooth recently. Same toxin but in the case of HP eradication there is a lot more of it, it hits all at once, and it is in areas beyond your defenses.

So, what to do? Good question. My own answers are tentative so don't put too much faith into them, but....

First, consider the possibility that HP is not the problem but that its overgrowth is. There is reason to suspect that it may be beneficial in lower numbers. It lives nowhere but the human stomach. Killing one's host is bad design.

Second, get the GI tract working before doing anything. Whatever it takes.

Third, one thing that both stimulates the GI tract and kills HP is rhubarb root. I try to take it a few days evey now and then and it seems to have it under control. But remember hat the idea is reduction of numbers, not eradication.

Fourth, follow up with probiotics. I know that HP is in the stomach and everyone else is downstream, but I do it anyway.

Finally, and I haven't tried this yet, there is an intriguing treatment using healing clays to absorb toxins from the GI tract. Seems like it would fit right in.

Anyway, be careful.
__________________
“WHEN I DARE TO BE POWERFUL, TO USE MY STRENGTH IN THE SERVICE OF MY VISION, THEN IT BECOMES LESS AND LESS IMPORTANT WHETHER OR NOT I AM AFRAID.”
Audre Lorde: (1934-1992) African American, lesbian-writer/poet/warrior, who gave us the gift of her courage, before cancer stole her away
leonore is offline   Reply With QuoteReply With Quote
Old 08-20-2008, 11:00 AM #15
leonore leonore is offline
Junior Member
 
Join Date: Apr 2008
Location: Brooklyn, NY
Posts: 57
15 yr Member
leonore leonore is offline
Junior Member
 
Join Date: Apr 2008
Location: Brooklyn, NY
Posts: 57
15 yr Member
Default treatment helps!Sending off h-pylori to swim with the fish

Just a quick word to say that after five days of Biaxin, Flagyl and licorice root lozenges, I jumped out of bed and made everyone breakfast today. Last few days were a roller coaster of infinitely long frozen hours and feeling better than in a long time. I took a break from rhubarb root, as it seemed to make me feel weaker. Thought you all would be intrigued by the proof of connection between helicobactero-pylori demin and PD "off" periods. It obviously has been messing with levadopa absorption, big-time, to the point where I haven't even had dyskinesias when I dose up on Stalevo and Parcopa to get myself moving,and still have had no response to med's for up to five hours!

Each day has had longer "on" stretches, with an ability to move around and bicyvcle rapidly underwater with my noodle like I haven't done since last summer. The numerous daily "off" periods, however, have been also worse than ever, but seem to be shortening. Wish me luck. Leonore
__________________
“WHEN I DARE TO BE POWERFUL, TO USE MY STRENGTH IN THE SERVICE OF MY VISION, THEN IT BECOMES LESS AND LESS IMPORTANT WHETHER OR NOT I AM AFRAID.”
Audre Lorde: (1934-1992) African American, lesbian-writer/poet/warrior, who gave us the gift of her courage, before cancer stole her away
leonore is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
jeanb (08-20-2008)
Old 08-20-2008, 11:37 AM #16
reverett123's Avatar
reverett123 reverett123 is offline
In Remembrance
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
reverett123 reverett123 is offline
In Remembrance
reverett123's Avatar
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
Default Don't try this at home....

...At least not until you know what you are doing. Be aware that there are multiple strains of HP with differing levels of danger. Get the GI system working well before you begin. You are going to be generating some nasty poison so you want it gone ASAP. Consider skipping the antibiotics and protein pump inhibitors and use rhubarb and turmeric instead to spare your "good bugs" and maybe a probiotic as well. Good luck.

Leonore, do keep us posted.

-Rick
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
reverett123 is offline   Reply With QuoteReply With Quote
Old 08-22-2008, 12:11 PM #17
Fiona Fiona is offline
Member
 
Join Date: Oct 2006
Posts: 492
15 yr Member
Fiona Fiona is offline
Member
 
Join Date: Oct 2006
Posts: 492
15 yr Member
Default

Just wanted to let you guys know, a reasonI haven't been so in touch for a while is that I have been suffering from some debilitating - you guessed it - gastritis of unkown origin. I tried the gum mastica, and it is amazing stuff...made me feel virtually normal almost immediately. Highly recommend it.
Fiona is offline   Reply With QuoteReply With Quote
Old 08-23-2008, 07:54 AM #18
leonore leonore is offline
Junior Member
 
Join Date: Apr 2008
Location: Brooklyn, NY
Posts: 57
15 yr Member
leonore leonore is offline
Junior Member
 
Join Date: Apr 2008
Location: Brooklyn, NY
Posts: 57
15 yr Member
Default Licorice root

thanks for the tip-am trying it. best, Leonore


Quote:
Originally Posted by Chemar View Post
just wanted to share our success eradicating h.pylori with Mastic Gum (aka Gum Mastica from Greece) which kills the bug (we got ours in capsule form at our local Vitamin Shoppe branch (www.vitaminshoppe.com) and also DGL- licuorice root, which heals the ulcerated areas.

It *must* be DGL-liquorice (usually comes in cheawable wafers- we like the one by NOW Foods which i get at www.iherb.com ) Other forms of liquorice root are not the same in GIT mucosal healing properties, and regular liquorice root can elevate blood pressure, so do be sure to only use DGL-liquorice root for this (DGL = Deglycyrrhizinised liquorice )

hope that can maybe help if you need to try to avoid the chemical rx drug route.
__________________
“WHEN I DARE TO BE POWERFUL, TO USE MY STRENGTH IN THE SERVICE OF MY VISION, THEN IT BECOMES LESS AND LESS IMPORTANT WHETHER OR NOT I AM AFRAID.”
Audre Lorde: (1934-1992) African American, lesbian-writer/poet/warrior, who gave us the gift of her courage, before cancer stole her away
leonore is offline   Reply With QuoteReply With Quote
Old 08-23-2008, 10:16 AM #19
rd42's Avatar
rd42 rd42 is offline
Member
 
Join Date: Oct 2006
Location: Peoria, IL USA
Posts: 328
15 yr Member
rd42 rd42 is offline
Member
rd42's Avatar
 
Join Date: Oct 2006
Location: Peoria, IL USA
Posts: 328
15 yr Member
Default Oil of Oregano

I haven't found anything about dosage, long term use, or any journals but it sure shows up a lot.

Oil of Oregano and H, Pylori:

http://www.chiroweb.com/mpacms/dc/article.php?id=50197

Quote:
The P73 oil of oregano blend has also been shown to kill the Helicobacter pylori (H. pylori) bacterium, which is known to be a causal factor in up to 90 percent of duodenal ulcers and 80 percent of stomach (gastric) ulcers. A small clinical trial initiated in 2003 demonstrated that the P73 oil of oregano blend shvowed positive results in patients with stomach and duodenal ulcers.
_____________________

http://www.healthdetectives.com/theh...ives/id24.html

Quote:
The organism that can cause ulcers, H. pylori, can also be eradicated using oil of oregano. Also, oregano combined with several other natural ingredients in a powerful formula, can be effective against winter viruses and bacterial infections in bone.
__________________
_________________________________________________
http://calipso-pd.org
...bringing a new wave of Parkinson’s support to central Illinois
rd42 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Protein Helps Neurons Connect, Possibly Reducing Parkinson's Symptoms olsen Parkinson's Disease 4 08-28-2007 10:31 AM


All times are GMT -5. The time now is 09:31 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.