I made a mistake on the number of cells injected on Thursday: it was not over 6 billion it was over 6 million (6,640,000).

Hi!

I am now applying to the center. Just trying to get all the records there. When are you going? I have had Parkinson's Disease for 5 years and it seems to get a little worse each year. I have a wonderful doctor. How did you approach your USA doctor about going to Germany?

Sue (slapp14

Right now, I cannot recommend XCell center for Parkinson's Disease. It has been 5 weeks since his treatment and I have not seen any improvements. I am still praying and waiting to see something. After the trip there was a long recovery process in which he was very sore in his upper legs and lower bottom. He had to move very slowly and he always needed help to get up and down or in and out of cars. At this point his sleeping is worse than before his treatment because of leg spasms.

However, if you are still planning to go, then do everything possible to increase your bone marrow. You can take supplements like Jarrow Bone-Up and drink broth made from boiling beef bones (Some grocery stores carry packages of just beef bones). You can use chicken but beef is better.

My USA doctor tried to convince him not to go. However, when he found that he was determined to go, he agreed to monitor his progress. Our first appointment since we got back will be on Oct 31.

Now that a year has passed since your husband was treated in Germany, can you tell us how he is progressing please? My husband has Motor Neuron Disease or ALS or Lou Gehrig's Disease and has been accepted to have the stem cell treatment on 23 November - I have been concerned that it was just a big scam but after reading all the comments on this site from many that have been to Cologne for the treatment, I am now satisfied that the place does exist at least!! They have told us there are no guarantees and we accept that because there is nothing any doctors in Australia can do for him anyway. Do you have any information that you can pass on to make our visit easier? Also did you send your payment to them before you arrived? They are asking us to send the entire amount by bank transfer before we leave Australia - I am a bit hesitant about that. Would appreciate urgent reply from you and anyone else that reads this that can help us. Thanks

Hi, I had the same concerns and have travelled from Australia to Cologne with my son who has Cerebral Palsy. I took a deep breath and payed up-front and after much stress we're here. I'm on twitter and my name is jibberlog if you want to take a look. The xcell center picked us up from cologne-bonn airport and they're collecting us from our hotel tomorrow for the bone marrow extraction. I arranged the hotel and transport through xcell center but haven't paid for them yet (only the treatment). Anyway, I hope I can help you somehow so just have a look at my twitter. Good Luck!

My mom had a massive stroke 6 years ago. She is 63 now. As a result of the stroke she suffers mixed aphasia, which affected her speech and comprehension. I have been following this research for years now and I don't know what to believe

Did anybody tried this treatment for something similar to my mom's illnes?

On the other hand, I read that some people will go or went for "Another round" why another? one is not good enough?

I also read, that there are two options, one where the cells are injected directly into the brain, but is a lot more expensive. Did anybody did this? is worth to do the more expensive? I am really worried about making the right decision since we are going to sell an apartment to be able to do this, but if is worth it, I wont think twice

I will appreciate if people who says is a ripoff can explain exactly what the illness is, because it confuses other's. I read everywhere that the treatment is effective in SOME cases, not for all illnesses. So, to say that "it doesn't work", is a little vague

And whichone is better? Germany or Costa Rica?
Anything anybody can suggest about the treatment of patients like my mom is greatly appreciated

Thank you

Hello Flor, and welcome to NeuroTalk.

I took the liberty of copying your post over to our Stroke Forum, hoping that you might get more answers to your questions if others were able to see them.

Here's a direct link to your thread in the Stroke Forum :
http://neurotalk.psychcentral.com/sh...d.php?t=107547

Looking for the same info for my 11 year old daughter with CP.Site looks promissing but I would like to have some more info.

bumping it up

hello All

this is my very first post on this forum.
so i can't post link
this forum is so fanta-bulous ! I am learning a lot through you,thank you for this
I just wanted to give my 4 cents about XCELL..
.after some research,i found this french forum,where some patients reveived their 7500 euros from them with NO RESULTS/IMPROVMENT AT ALL:
research**
sorry to break your hope,folks but i will be very cautious before jumping in the next plane to Germany.

to end on a positive note my first post ,i had a meeting back in december 09 with one of the professor working on this gene therapy mentionned here
research **
their research is superserious and official as they're sponsored by the European Union/French government .
He told me the cure (yes ,i am writing "cure"!! ) should be available in 5 years
they have started the phase on human beings since 6 months

kind regards