[Stitcher]

Paula, I remember when I met both you and Peg six years ago (picked them up at the airport and then drove 11 hours...yikes). I was amazed then at how you two get up and go constantly with your dyskinesia/dystonia and Peg's off's. Six years later, I am more than amazed. The one thing the three of us have in common is great tenacity

No holding these two ladies back

Maybe it was the moon, which has been awesome the last couple of nights. I know I got out of bed yesterday asking myself why I do what I do Monday thru Friday. And, Monday's are 12/13 hour days...very exhausting. All I wanted to do yesterday was go back to bed and stay there....sooooo tired...too many pills...battling glucose ups and downs all day (I have freckles on my finger tips from the sticking). Today is to be another 12 hour day...

[maryfrances]

Thanks, Steve.
Thanks, Paula.

I had a better day yesterday. Happy all day. Sometimes I don't know what makes the difference. The meds, the PD or my outlook that day.

[Evon]

Mary Frances I can relate to how you are feeling, take comfort in the fact that you are not alone. Some days I feel about 100 years old and I wonder how long I will be able to deal with this disease. Try not to let it get you down and remember there are always people on this forum that understand. Paula you mention waking up to dystonia, I have had problems with dystonia since before dxs. Lately it is appearing at end of dose, before my next meds are to be taken and during the night. Have you tried different meds to help with your dystonia? Would it be better to try amantadine along with my requip and levo/carbo rather than increase the levo/carbo. I see my MDS next week and I'm wondering what is the best way to relieve this very uncomfortable symptom.