Parkinson's Disease Tulip


advertisement
Reply
 
Thread Tools Display Modes
Old 09-08-2006, 07:36 AM #11
The Godfather's Avatar
The Godfather The Godfather is offline
ex Member
 
Join Date: Aug 2006
Location: New York
Posts: 93
15 yr Member
The Godfather The Godfather is offline
ex Member
The Godfather's Avatar
 
Join Date: Aug 2006
Location: New York
Posts: 93
15 yr Member
Default

Back to the purpose of Ricks Thread.

Who's next in the queue ?


The Godfather is offline   Reply With QuoteReply With Quote

advertisement
Old 09-08-2006, 05:28 PM #12
reverett123's Avatar
reverett123 reverett123 is offline
In Remembrance
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
reverett123 reverett123 is offline
In Remembrance
reverett123's Avatar
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
Default Steal this thread, please...

However, Dr Lieberman says he knows of no data on this. So anything we produce will have some value.
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
reverett123 is offline   Reply With QuoteReply With Quote
Old 09-08-2006, 10:49 PM #13
paula paula is offline
Junior Member
 
Join Date: Sep 2006
Posts: 12
15 yr Member
paula paula is offline
Junior Member
 
Join Date: Sep 2006
Posts: 12
15 yr Member
Default hey......

Oh sure, leave us hanging here after giving away our secrets in the name of science......copy my info everett i may delete lol. I am no longer constipated tho to end the discussion. Now I 'm just drug toxic - good as bug spray - oh the irony.

paula
paula is offline   Reply With QuoteReply With Quote
Old 09-09-2006, 02:34 AM #14
K Hamilton K Hamilton is offline
Junior Member
 
Join Date: Aug 2006
Location: Northwest Washington
Posts: 63
15 yr Member
K Hamilton K Hamilton is offline
Junior Member
 
Join Date: Aug 2006
Location: Northwest Washington
Posts: 63
15 yr Member
Default Sad to say ...

but I was constipated as a child, as a teen, as a young adult, and still am at age 59. I've gone from severe down to a low-moderate, though, so I guess that is progress.

Interesting about the NADH connection to lactose intolerance - I've been dealing with that since about age 18.
Quote:
reverett123 However, Dr Lieberman says he knows of no data on this. So anything we produce will have some value.
Heck, if I could produce anything, I could ignore this thread!
__________________
Kris

Last edited by K Hamilton; 09-09-2006 at 02:36 AM. Reason: Spelling
K Hamilton is offline   Reply With QuoteReply With Quote
Old 09-09-2006, 10:20 PM #15
reverett123's Avatar
reverett123 reverett123 is offline
In Remembrance
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
reverett123 reverett123 is offline
In Remembrance
reverett123's Avatar
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
Default as best i can tell...

...about six resposes so far with four negative as best they remember and two firmly positive. Very small sample thus far.

But do you realize this pitiful little poll is the best research yet performed on the subject?? Talk about lame!!!!!!!!!!
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
reverett123 is offline   Reply With QuoteReply With Quote
Old 09-10-2006, 12:47 AM #16
chasmo's Avatar
chasmo chasmo is offline
Member
 
Join Date: Aug 2006
Location: Los Angeles, CA
Posts: 714
15 yr Member
chasmo chasmo is offline
Member
chasmo's Avatar
 
Join Date: Aug 2006
Location: Los Angeles, CA
Posts: 714
15 yr Member
Default water and miralax

supposedly 8, 8 fl. oz. glasses of water daily, will keep you regular.....
not me.
I use a prescription called "Miralax" that does it for me. I just can't seem to keep myself hydrated enough. This is a common Parkie problem. You know if you are hydrating enough by the color of your urine. It should be clear or at worst a pale yellow.
Other liquids do not count towards hydration as they take water to digest. Water only can do the trick.


Charlie
chasmo is offline   Reply With QuoteReply With Quote
Old 09-12-2006, 10:16 PM #17
BEMM's Avatar
BEMM BEMM is offline
Member
 
Join Date: Sep 2006
Posts: 321
15 yr Member
BEMM BEMM is offline
Member
BEMM's Avatar
 
Join Date: Sep 2006
Posts: 321
15 yr Member
Default The best we can produce??

Could not resist that one. What a subject to start with on my first time on BT2. I finally found my way in here.
So, constipation....one of my very VERY early memories is sitting on my little potty in the livingroom - I must have been very young to have been on a potty in the livingroom!!!! And my mother was pacing the floor, telling me I must perform, or she would have to use a little lump of soap, the thought of which absolutely terrified me. I must have performed eventually, for I managed to avoid the soap.
Yes, I think I was born mildly constipated, and have been so all my life. Travel and stress cause complete 'estoppal'.
BEMM is offline   Reply With QuoteReply With Quote
Old 09-19-2006, 04:33 PM #18
pegleg's Avatar
pegleg pegleg is offline
Senior Member
 
Join Date: Sep 2006
Location: Tennessee
Posts: 1,213
15 yr Member
pegleg pegleg is offline
Senior Member
pegleg's Avatar
 
Join Date: Sep 2006
Location: Tennessee
Posts: 1,213
15 yr Member
Default

From the few posters here, there must not be many PWP's full of . . . poop! lol

For the survey record, I have been plagued with constipation since a child. And now that I take a handful of meds a day, the problem is worse I know how many toxins are absorbed through the intestines, so I work diligently on this by eating foods full of fiber, exercising (especially walking), drink plenty of fluids (aka water), and I also take 2 Fibercon chewable tablets daily. And sometimes there's still no action! lol

Finally, I received this cake recipe in my email today. My jaw dropped when I saw the finished product. It would be a novel idea for a Halloween party, but my guess is it wouldn't be eaten as much as it was viewed! Enjoy!
http://www.kidskuisine.com/?p=27

Peggy
pegleg is offline   Reply With QuoteReply With Quote
Old 09-19-2006, 07:48 PM #19
reverett123's Avatar
reverett123 reverett123 is offline
In Remembrance
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
reverett123 reverett123 is offline
In Remembrance
reverett123's Avatar
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
Default Interesting results

Though our poll is still small (11), the results are very interesting with over half remembering childhood problems. For a young and active group that is a very high percentage and is an important clue.

One interpretation says that constipation is a result of PD and therefore our PD must have started from Day One.

Another one is that the constipation had another cause and that PD was a result of that cause as well.

And a third says that the constipation had an independent cause but that the constipation itself eventually led to PD.

The third one is my bet and the details follow: Exposure to endotoxins from bacteria in the womb or within the first years of life can have dramatic effects. Among those are a sensitivity to future exposures so a little goes a long way. Another is a slowdown in the action of the GI system. A slowed bowel leads to resorption of toxins due to be eliminated, including endotoxins. These toxins also cause inflammation of the intestinal wall which leads to ?leaky gut" and even greater absorption. That leads to more inflammation and on and on for forty years. Get the picture?

The total effect depends on the first step. At what point in the development of the child exposure occurs determines the effect. As a result we are a mixed bunch of nuts. Some have fast progression and some have slow, etc.

Endotoxins probably aren't all of the picture but they are enough to make us look at what we can do to counter the ongoing inflammation that results. Most of the store bought anti-inflammatories have problems. Even simple aspirin.

There are some potent alternatives available that seem problem free. It's the good old trinity of turmeric/curcumin, ginger, and green tea. It keeps coming back to those. Safe, cheap, effective, and readily available. It doesn't get any better.
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
reverett123 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 01:31 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.