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11-18-2008, 08:29 PM | #11 | |||
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In Remembrance
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Tightness just below my sternum at the valve is the first clue. Nothing goes through, not even saliva. Only thing that helps is relaxation breathing exercises. Usually turns loose suddenly within fifteen minutes.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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11-18-2008, 08:32 PM | #12 | |||
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In Remembrance
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Today went pretty well and I am "light"6 mg of requip. It is 8:30 PM and I'm just beginning to stiffen up. Last meds were 2:00 PM.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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11-19-2008, 09:30 PM | #13 | ||
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You mean you do not enjoy eating white wax with an oily component? I have tried puttiing it on toast with jelly and putting it into half a cup of hot coffee. Neither are terrific, but then again they aren't terrible. I am up to about 2 teaspoonfuls in the morning. I do not look forward to it, but I am willing to give it a try.
Ann |
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11-20-2008, 03:30 PM | #14 | ||
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Member
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mmm, I couldn't eat it or drink it that way either. But stirring a spoonful into vanilla yogurt or ice cream works well for me, using it in baked things like muffins, using it in making crepes or pancackes, or in a banana smoothie....if you look around, you might find an acceptable alternative.
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11-20-2008, 06:27 PM | #15 | ||
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Fiona -
Do you melt it first? It says on my jar not to microwave it but stand it (the jar) in a pot of hot water. I love yogurt, so that is a good idea. By the way, I smelled lasagne cooking tonight! Ann |
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11-21-2008, 08:52 PM | #16 | |||
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In Remembrance
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Well, I nearly did myself in again. A couple of years ago I found that turmeric kills h. pylori so darned fast that it overwhelmed my detox abilities. It took me two weeks to catch on and I took some minor neurological damage before doing so. The same thing happened with the coconut oil over the past few days, but this time I was watching for it.
Day before yesterday (Wed.) I was off from about 3:00 until bedtime. Yesterday, I went off by noon and literally lurched and hurled myself to bed by 9:00 PM. All week I have been starting out with about a half tblspn but yesterday I managed to triple that. Whoooeee! Starting last night, I've been eating silymarin (milk thistle) like candy for helping the liver deal with it and I've done well today. I plan to start again tomorrow but at half a teaspoon with more silymarin. This won't be a problem for most of us, but if you try the larger doses and find your symptoms ramping up, keep it in mind. This gives us another benefit of regular use since HP poses particular problems for PWP. A lower dose should let me get rid of the bugs and stay HP free, a very big plus.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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"Thanks for this!" says: | just_me_77 (09-30-2010) |
09-28-2010, 04:31 PM | #17 | ||
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New Member
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i'm trying help my father who suffers from a lewy body dementia.
I buy bottles of coconut oil in a local store but i'm not sure if it's non hydrogenated because the price is low ... there is an effect with hydrogenated one ? thanks and excuse my very poor english |
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09-28-2010, 05:29 PM | #18 | ||
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Senior Member
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