FAQ/Help |
Calendar |
Search |
Today's Posts |
11-12-2006, 05:03 PM | #1 | |||
|
||||
Member
|
Chuck
Can you remember the post you put in about your falling a lot and the change you made to improve your balance. I want to move it up front so Fred/Taxi can see it. Anyone else remember it? |
|||
Reply With Quote |
11-12-2006, 06:31 PM | #2 | |||
|
||||
ex-Member
|
Sounds like this one :
Quote:
|
|||
Reply With Quote |
11-12-2006, 06:43 PM | #3 | |||
|
||||
Member
|
|
|||
Reply With Quote |
11-12-2006, 08:26 PM | #4 | |||
|
||||
In Remembrance
|
....sound very much like the ones that I feel that turmeric fixed for me and which I discuss in the current thread "Turmeric and White Rats". I'm sure it is a darn sight cheaper and we can always make curry
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
|||
Reply With Quote |
11-12-2006, 08:48 PM | #5 | |||
|
||||
Member
|
Please put yours into the one titled Taxi. He has taken 7 bruising falls in only a few days.
|
|||
Reply With Quote |
11-13-2006, 10:05 AM | #6 | ||
|
|||
Member
|
First of all, let me say it's good to hear from you again Fred . Believe me, I have thought about you many times and how you were managing with advanved PD, being alone in a trailor and all. Not an optimal situation for anybody, especially those with a disability; but we takes what we gets, eh?
Now, down to the question. Three weeks ago, I was getting so depressed because I was falling far too often. Sometimes a bad fall, 4 or more times a week, and many times bending my cane almost to the breaking point in an attempt to hold myself up, shuffling with every step and festinating like crazy Upping my sinemet and amantadine, just didn't do it because i couldn't hack the dyskinesia. And "falling" is a horrible sensation, very dangerous too. I've fallen taking a dinner plate to the sink and embedded glass shards in my arm, I've fallen down breaking furniture, I've fallen down on my knees so many times that the pain puts me in bed or in a chair for hours, each subsequent fall being worse. I've fallen down while alone in the house, and have taken a long time to right myself and tend to my wounds, nobody in ear shot. Bruises and cuts on top of bruises and cuts. I think ya'all get the picture. . Well, this being an obvious time for a med regimen change (I mean, how the h-ll else was I suppossed to get up and fill my tankard of Vodka during commercials ) I went to my neuro and he and I went over my history and he said, "well, you've tried every agonist, and you have shunned them all due to side effects, do you think that it's worth trying the Apomorphine pen" I said "at this point , I'll try anything, short of a DBS". So he ordered up the pen. It's an expensive thing, so you've got to go through hoops with your insurance companies most of the time. THe box arrived at my house a week later, and (against protocol) I got right into it. I was supposed to wait for an appointment with the company representative, but i knew how to self inject from using Lovenox self injection needles for a "home administered heparin type of medication". The clincher was that one is supposed to pre-medicate for three days before the first injection, using the antiemetic provided (Trimethobenzamide). This drug actually made my PD noticeably worse, I phoned the company for advice , but they had no alternative (domperidone is not approved in the US) so I just used cheap generic dimenhydrinate (car motion sickness pills). My first small injection did indeed make me a bit sick, but I didn't vomit. This happened all the way up to 0.4 mL of the solution (my therapeutic dose) and continued for a few days , but at no time did I vomit. I was determined to see this thing through, even with the queasy feeling, and the use of needles. Well, a few days after injecting at 0.4 mL, I got a big surprise (besides that one Bella ). I was walking short distances without my cane and festinating much less. After a week, I hadn't falllen even once, and was walking without my cane! I only inject two times a day. It really helps when i go into an unexpected "off"; I respond within five minutes, and now, I'm not even nauseous after an injection and no hint of the other side effect, orthostatic hypotension, that can result in syncope. It has helped me so much. This is the first agonist that iI have been able to tolerate and to me the message is clear. It is the addition of an agonist to my regimen that has helped me a lot. I'll bet that if I could have hacked Mirapex, I probably would have seen the same effect, but on the other hand , it could be unique to the apomorphine, I don't know for sure. Fred, if you have any questions, just PM me. cs |
||
Reply With Quote |
Reply |
|
|