I'm kinda confused. I started Stalevo 3 months ago and have been at 300mg/day for 2.5 months. The doc told me to stay at that level for a while.

I have noticed no change in general, whether it's 30 minutes after a dose, or when i miss a dose. From reading about others experience I expected to feel something noticeable (other than feeling a little stoned if i take it on an empty stomach)

I'm 33, dx'd at 30, on Azilect, wishful thinking and nothing else.

What do you folks think?

Side note: Parkinson's plus comes to mind... shouldn't they call it something else? Plus brings to mind something good, like getting a super power or at maybe a cape. I think I might start wearing a cape; maybe with an emblem in the shape of a middle finger with "Parkinson's Sucks" in and an Old English font beneath it.

Take care and thanks for any input!

RD42

I take the same amount of Stalevo, but I notice a big difference about 30 minutes after I take it.

I must take it on an empty stomach or it doesn't work much for me though.

I wish I had something more helpful to tell you.

Jean

How were you diagnosed with Parkinson's?
I was diagnosed because my symptoms improved when I took Mirapex. My doctor later switched me to Stalevo instead of Mirapex. I notice a difference within 10 minutes of taking Stalevo- I am able to move my foot that is stiff when my meds wear off and my fingers also become less stiff. I take Stalevo 50 - 4 x a day and Requip XL 8 mg. I never miss a dose because when I am late taking a dose, besides stiffness in my foot and my fingers, I get a stiff neck and paresthesia, so then I remember to take it.

I was dx'd by two MDS' that specialize in PD, which could be why they jumped at the diagnosis. I was diagnosed based on the tremor/dystonia on my left side. I took Requip for three months and experienced unreasonable side effects long before reaching a therapeutic doseage. I waited a year and started Azilect with no side effects. After about 6-8 weeks my mood seemed to be better so I stuck with it. No symptom relief though.

My symptoms started with "esential tremor" in my left wrist, then cog wheeling in the shoulder, then those symptoms carried on to my left leg as well.

Robert

How long have you two had PD, or the diagnosis of PD?

was 6 years ago - right after i got a tremor in one finger - my arm didn't swing and an mri showed no tumor - hence the dx.

Are you on you taking Sinemet as well?

Thanks,

Robert

My mother in law has all the symptoms of PD but her MRI has said otherwise. Her neurologist had prescribed Stalevo prior to her having her MRI. Now that the results are back and have been read and do not show Parkinsons I am confused. The medication has worked wonders over the last 2 weeks. I have googled by brains out to find what Stalevo could possibly be used for other than PD. Can any one help?

I googled "Stalevo uses" and it seems Stalevo is exclusively used for Parkinson's. Have asked the doctor? Best of luck to you and your mother in law.

http://www.google.com/#hl=en&q=stale...fp=10-O84VS7Cs


Robert

well the thing that jumps out at me is that an MRI is NOT a diagnostic tool for diagnosis of PD. only a Fluoro-dopa isotope SPECT or PET scan is a recognised tool for diagnosis of PD.

Charlie