Parkinson's Disease Tulip


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Old 12-03-2008, 01:52 PM #1
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Default sense of smell/taste

How many of you have lost your sense of smell and or taste? How far along were you in PD before it happened, and did it happen all at once or gradually? I have great fear of this pannening to me. Thanks.
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Old 12-03-2008, 08:31 PM #2
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Default Lost it so long ago....

Taste seems OK but smell went 20 to 30 years ago gradually. Odd though, I can still smell certain things and they seem to be all "odd" and pleasant. Leaf mould on the forest floor, for example. Wood smoke is another.

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How many of you have lost your sense of smell and or taste? How far along were you in PD before it happened, and did it happen all at once or gradually? I have great fear of this pannening to me. Thanks.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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Old 12-03-2008, 10:10 PM #3
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I have had PD for 10 years now. My sense of smell was one of the first things to go. Recently, I have noticed that my taste is gone. Like reverett123 says, some things i can smell but they have to be really strong aromas.

GregD
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Old 12-04-2008, 03:32 AM #4
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Default Smell/taste

I read recently that generally, loss of sense of smell generally precedes PD by up to 4 years. That is about what happened to me, and I have now had PD nearly 18 years. My taste is still there, but whether diminished or not I couldn't say.
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Old 12-04-2008, 05:14 AM #5
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Originally Posted by Ronhutton View Post
I read recently that generally, loss of sense of smell generally precedes PD by up to 4 years. That is about what happened to me, and I have now had PD nearly 18 years. My taste is still there, but whether diminished or not I couldn't say.
Ron
hi Ron How are you?

yes, loss or diminished sense of smell was one of the first symptoms I had atleast 2 years prior to PD diagnosis. I was diagnosed in 2003 and over the last 5 yrs sense of smell is completely gone/ Now I cannot even smell our kitty's litterbox.....
Taste is still oK

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Old 12-05-2008, 01:26 AM #6
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Welcome back Giri!
Just shy of 8 yrs Dx. Sense of smell under attack beginning 4-5yrs earlier. Still not entirely gone. Like Rick selective; smoke, fresh ground coffee, some strongly fragrant flowers, pine trees. Taste still fairly intact.

Robert
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