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Old 07-07-2009, 03:29 PM #21
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Originally Posted by Damsee View Post
...

One thing I posted recently and that disappeared strangely enough is the need to have some global web place for personal effect/counter-effects of all experiments we make on ourselves.
i'm thinking about a web site that would collect all the stats/records of each one's experiments with plants/vitamins/medicines/molecules and allow us to better decide based on other's experiences and global stats.
What would you thing about that?

I'll keep you posted
Cheers

Damsee
Yes, I'm reviving an old post, but has anyone followed up this idea? I think it's a great suggestion. Not only would it help PWP but who knows how this data might be mined to aid research in the future?

- Laura
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Old 07-07-2009, 05:13 PM #22
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Originally Posted by Conductor71 View Post
Yes, I'm reviving an old post, but has anyone followed up this idea? I think it's a great suggestion. Not only would it help PWP but who knows how this data might be mined to aid research in the future?

- Laura
This is one that I have intentions to follow up on eventually. The problem is how to get some standardization of data. I have my own website where I may host it, but it might fit in here as well. PLM lists what members claim to be taking but it is almost useless. I'll call it The White Rat Project.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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