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12-26-2008, 11:28 AM | #1 | |||
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In Remembrance
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Take a look at how this site is set up-
http://www.marshallprotocol.com/view...=parkinson%27s " Andy Grove was Time's 'Man of the Year' in 1997. From the outset we have modeled the Foundation, and its study sites, on open collaboration. Every single piece of data you folk report goes into the database and it is available not only to us, and to the FDA, but also to researchers who come along in the future, and who might have some better ideas of their own to add. I saw this model being used in the 1980's to fuel the BBS revolution, 1990s for the development of open source software (GNU and Linux), and also feeding the early development of the Internet. So it is not entirely my idea. I am sure Andy Grove is very familiar with how it drove the advance of computer technology. I think Dr Grove would be very interested to hear about our work in this Foundation. If any of you have some moments spare that you can use to try to contact Andy Grove, or his staff, and let them know that there is a new way to conduct clinical studies, and it does work, and it is producing answers right now, I would be very appreciative. Suggest he should look at Amy's report about young Matt's recovery from neurological disease. It is at URL http://bacteriality.com/2007/10/28/interview6/"
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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"Thanks for this!" says: | bandido1 (12-27-2008) |
12-26-2008, 07:31 PM | #2 | ||
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In Remembrance
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Yes Rick, and must say just to make it very clear to those who go there to look, we are not promoting the Marshall protocol, but looking at how he is conducting or setting up his design, testing and data collection for his protocol. It does seem to include many of the components that we need.
thanks, paula
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paula "Time is not neutral for those who have pd or for those who will get it." |
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"Thanks for this!" says: | bandido1 (12-27-2008) |
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