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01-13-2009, 06:19 AM | #11 | |||
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There are those who see things as they are and ask..Why?..I dream of things that never were and ask..Why not?..RFK |
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01-13-2009, 11:03 AM | #12 | |||
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Member
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The Pit
i have found it the invisible obstacle which for years has been my bane and source of resistance. it was nestled deeply inside of my heart with walls built around it hiding its identity from me. it could grow un-noticed that way each time I reached out to grab hold of a dream, the pit came out of hiding. it pulled my arms back to my side. before i could connect with life, before i could feel reality, before i could experience anythng detremental to its existence. a fear surfaced when my desire for decisions abondoned my common sense. the pit lay and wait and sed upon my thoughts chocking silent my words and trapping me as its hostage. now, it has overgrown its barrier. being exposed to me in full portrayal, its hold on me withers and dies. its quest for manipulation and domination is no longer being nursed by my sacrificed innocence. i reach inside and pluck out its remains and i feel myself grow. the void left inside of me is being filled with the truth of the life God has for me. all thought and emotions, are exuberant and begin to emerge freely. i am re-discovering my being. i am re-discovering who I am.
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I have a post-encephalitic neurological disorder, but it does NOT have me! |
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01-13-2009, 12:18 PM | #13 | ||
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Hi, hiptothat! I'm sorry we've been so rambunctious with our opinions, and I hereby agree to disagree on anything we discuss, or not, as appropriate. I think I speak for a lot of us on that. We are a wide spread of ages; we come from every walk of life, and from most income levels, and I think the prevailing attitude is that we're all in this together.
Besides, anyone comes in with the honest humility you've shown is pret-ty easy to appreciate. Glad you're visible. Jaye |
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01-13-2009, 12:24 PM | #14 | ||
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Yappiest Elder Member
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Hi hiptothat and Welcome
My family Dr is also a family friend. He reads the posts on NT. He said it has really taught him more about the patient side. His staff too. They read about a gripe I had when checking in one day. I stood there for 10 minutes while they chatted about a birthday party. Kept telling me to "hold on". They won't be doing that again. Yeah, we can vent or gripe sometimes about the care we have gotten. No one is perfect. Hopefully there is something to be learned. I'm glad you came out of Lurkdom.
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01-13-2009, 03:26 PM | #15 | |||
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Welcome hiptothat. We are not all "anti-physician." I am glad to have you on the forum.
I have been encouraged by my neuro not to think about how long I will be able to do things like play classical guitar. I have had PD for 10 years, but I was undxed and saw a variety of doctors for 7 years. My neuro says that with meds, I should be able to 90% of what a person without PD can do. I am reading the book The Art of Possibility by Zander and Zander, which is helping me keep a positive outlook and keep working at doing all the things I want to do.
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Chicory |
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01-13-2009, 03:49 PM | #16 | ||
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In Remembrance
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Welcome and thanks for joining the conversation. While some of us are compulsive advocates for change; our first reason for coming here is for hope, support and information. Running through the criticism of doctors is, I suspect, a patient perception of damaged trust and lack of compassion. We actually need more doctors' pespectives.
Regarding your pd: After 20 years, I still don't have a tremor. I get the shakes = that's the best way to describe it because it is not a regular tremor and is mostly in my legs - sometimes when I'm off in the evening. I worked as a teacher for 12 years with PD symptoms, 8 of them diagnosed. hope you find some relief here, paula
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paula "Time is not neutral for those who have pd or for those who will get it." |
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01-17-2009, 07:12 PM | #17 | |||
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Member
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what an ordeal you have been thru Evonne. I am glad surgery went well tho, and the docs were able to remove dead ovary. How strange are the things that can happen to us. My daughter has severe endometriosis and the pain she goes thru is terrible. She finally had scar tissue removed about a year ago and it seems to rapidly coming back.
I am doing fine, still working. I have increasing pain in back and can't wait to have surgery to hopefully get rid of it. The horrendous amounts of snow we had here is finally started to melt. Spokaneset records for amounts of snowfall awhile back. I love snow but lately I am definitsly sick of it! I am going to try and call Dr. Santiago again Evonne for 2nd opinion. Once again I have lost his phone number. I want to get in to see him but can't because he is overbooked. The office said to call back in january and try again. Can you email me his phone no. Evonne. Thanks alot in advance |
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01-17-2009, 08:32 PM | #18 | |||
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Member
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I wanna know somethin....How can a person dxd with pd for 24 years travel from one end of the country to the other, kick *** in lawyer ********, (sorry for profanity but i call it as i see it and wear knee high rubber boots), move 2 vanloads of items from upstairs in one house to downstairs in another, write out complete invitory of household furnishing and their value, make out a declaration for zee courts re: seperation, see 2 daughters, mother, several friends, go to the beach.. twice, go shopping , then deal with nightmare big city airports on a saturday (with a pug in tow) ALL IN LESS THAN 2 WEEKS???
how??? mind over matter... zats how..
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I have a post-encephalitic neurological disorder, but it does NOT have me! |
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01-17-2009, 09:14 PM | #19 | ||
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Harley, you did all that? I hope you're not planning on riding the range too much next week, LOL. But good for you!
Evonne, oh my goodness, you deserve a good long rest after all this! I pray for your healing in body and spirit (I've always thought your mind was fine). Today is the tenth anniversary of my diagnosis of PD. I don't know whether to grumble about having PD or rejoice because I'm doing so well compared to what I had expected. Well...yes I do know. I'm glad I have life, I'm glad I have all of you who are in this with me, and I celebrate ten years of learning and growing. By now I have divested myself of alternate lifelines, things I might have done. The life I have isn't the one that follows the script I came on stage with, but it's the life I got, and I'm living it! A good day is one where you're above ground. A great day is one where you get up as many times as you fall down. Jaye |
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01-17-2009, 10:25 PM | #20 | ||
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Yappiest Elder Member
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Quote:
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