Parkinson's Disease Tulip


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Old 11-30-2006, 07:47 PM #1
paula_w paula_w is offline
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Default Mike TTF

Is tomorrow your first day in the DBS process? Did you buy ...um....butt pillows? Please let us know!

Thoughts and prayers,
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"Time is not neutral for those who have pd or for those who will get it."
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Old 12-02-2006, 06:17 AM #2
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Paula,

Thanks for your concern!

Errrr butt pillows? The car trip?

Cleveland Clinic re-scheduled me for December 29th ... one of the team couldn't make it for the Dec. 1st "get together."

They left the psychiatric exam appointment stand for Jan 2, 07 though.

Yuk. Two 11 hour car trips in 3 days! Oh well ... Muhammed will go to the mountain.

MikeTTF


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Originally Posted by paula_w View Post
Is tomorrow your first day in the DBS process? Did you buy ...um....butt pillows? Please let us know!

Thoughts and prayers,
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Old 12-02-2006, 12:22 PM #3
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Default good luck!!

the Cleveland Clinic is one of the best DBS centers anywhere.
I, quite frankly, would be shocked if you did not get an outstanding result.

Charlie, DBS-STN in 2002 at UCLA.
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Old 12-02-2006, 04:20 PM #4
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Default as the survivor of

two pallidotomies in 1996 (the first one successful beyond my wildest dreams and the second one nearly killing me), i share your anxiety about an upcoming dbs. this is how i came to the decision: at first the idea of someone drilling into my skull and tapdancintg around in my brain seemed to me to be as far out there as was the first time i saw star wars. then, like a piece of dirt that gets caught in an oyster, the idea got into my head; and slowly, patiently my brain worked the idea like an oyster works the piece of dirt...rounding it, polishing it, caring for it until at last it becomes a pearl and seems to be the only logical alternative to life as i was used to living it. i have never regretted that decision.
now, my good friend Bob Benjamin is in the midst of his Light of Day concert series after having undergone a dbs just last month and my good friend holly angus is preparing to have hers at the end of january. you and all the other brave trailblazers in this scarey option are always in my prayers.
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