Parkinson's Disease Tulip


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Old 12-02-2006, 08:34 PM #1
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Default Well, it started out to be a video...

...for my neuro, but it kind of took on a life of its own

http://www.youtube.com/watch?v=qxDmP8c4QUI
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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Old 12-02-2006, 08:48 PM #2
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Default long live rock n roll

no wonder this aging hippie still goes to hear bands every chance i get.
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Old 12-02-2006, 10:13 PM #3
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Default Boom boom

Go Rick! How do you think I get my house cleaned and my exercise? That's what IPODS are for! Music is a turn on...lol.

Paula
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Old 12-02-2006, 10:16 PM #4
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Default

What's that saying about "dance like no one is watching?"

Well, we're all watching now brother!

Rock on...

Todd
PDTalks.com
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Old 12-02-2006, 10:41 PM #5
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Default Dave Barry...

....that fount of wisdom, said something along the lines of- "Nobody really cares if you can't dance, so dance!"

I suspect that ths is the single greatest exercise program we could adopt. It does aerobic, stretching, balance, and strengthening all at once. It uses the music to overcome the PD. It probably encourages new neural growth. It is free and can be done in the privacy of your home (at least if you don't put it on youtube ). And you feel so damn cool so long as you don't watch the video
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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Old 12-02-2006, 11:17 PM #6
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Default and so nice to see you

instead of text on the screen. i tried to do one of my own but used up my remaining two gigs before i hit the right song, and now can't seem to copy any files to disc so that i can delete them and free up room and yada yada yada. it really made me happy to see you dance - i loved to dance, and every now and then i can get about 3/4 of the way back to where i used to be - and that is a gift.

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Old 12-03-2006, 06:31 AM #7
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Default Hope

Good on you. As a traditional english dancer I know that certain kinds of music and certain bands give you more lift and spring in your step.It was wonderful as last night with a good band my husband and I were able to polka around the dance hall.I am hoping that this may continue for many more years.At least I can live in hope.
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Old 12-03-2006, 01:59 PM #8
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Default Dancing

I loved your video. It got me moving too.

Thanks for sharing.
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Old 12-03-2006, 07:05 PM #9
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Thumbs up Yes - Everett - Music Therapy!

Very Very Good!
Bravo
***** 5 - Stars
:d
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by
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, on Flickr
pd documentary - part 2 and 3

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Resolve to be tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant with the weak and the wrong. Sometime in your life you will have been all of these.
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Old 12-05-2006, 06:16 AM #10
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Default What is the difference?

I have tried several times to free up some movement with dance, but so far I have not been able to. Fast music just seems to stimulate my tremor. Could it be that I already had a faulty sense of rhythm before Pd, or could it be that I never learned to dance? I would really like to hear an explanation for that. I do know that even when I cannot walk, I can still run. Hmmmmm...very interesting.

Thanks for sharing that with us.

michael
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