[Stitcher]

What Are the Questions I Should Ask?

http://www.pdtrials.org/en/participa..._how_questions

Checklist Front page

Deciding to participate in a Parkinson’s clinical study can be both rewarding and challenging. The key to making it a positive experience is to:

• Get all of the information necessary to make the best decision prior to enrolling in a study.
• Continue to be informed throughout your participation in the clinical study.
• Remain informed about the study and its importance to Parkinson’s research once your participation has ended.

Asking questions like the ones found in the new PDtrials resource, Participating in Parkinson’s Clinical Research: Questions to Ask, will help you get the most out of your discussions with clinical research staff and make you an educated and engaged study volunteer.

You may download the full checklist of questions here.

You may also order this checklist by visiting the Contact Us page and downloading the Materials Order Form or by contacting PDtrials directly at info@pdtrials.org.

Some of the areas that are covered in this checklist include:

* What do I need to know about the study?
* What will be required of me?
* What are the benefits and risks of participating in the study?
* Are there other treatment options?
* How will my expenses be covered?
* How will my health and safety be monitored and my privacy protected?
* What happens at the end of the study?
* How will post-study information be made available?
* What are my responsibilities as a clinical study participant?


[With the sponsorship and help from PDF/PDTrials, this document was written by several PWPs who are passionate about the importance of clinical trial participation.]

The partner document for this Checklist is Declaration of Clinical Research Rights and Responsibilities for People With Parkinson’s

[aftermathman]

I am hoping to get on the Cogane trial and if I make it to the screening day this checklist will prove invaluable.

Neil.

[jeanb]

Neil,

That's wonderful! We'll be following the Cogane trial with great interest. Fingers crossed that THIS ONE WILL WORK!! (with no brain surgery!)

Best, Jean

[aftermathman]

all I can as soon as I can, rest assured.

Neil.