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05-26-2009, 07:18 PM | #1 | ||
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http://www.ucsf.edu/science-cafe/art...ther-conditio/
They have it in other places, too. Like Pawtucket, RI!!! |
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05-26-2009, 09:57 PM | #2 | |||
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In Remembrance
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Well, that looks neat. I've wondered what it would be like to have a big version of those bouncy baby tenders that youhang in a doorway. This is a lot like that.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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05-26-2009, 09:59 PM | #3 | |||
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I;ve wondered, after watching the astronauts float effortlessly weightless, what, if any effect being weightlessness would have on we PWP's. now wouldn't it be something if it turned out that say 24 hours of weightlessness Cured PD!!! Sign me up!!! |
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05-27-2009, 08:48 AM | #4 | ||
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This looks like fun!
If they can bring the cost down, people could buy one of these machines for themselves the way the buy other workout machines. John |
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05-27-2009, 09:46 AM | #5 | ||
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Yeah, I remember being sick with jealousy when I saw my little baby brother in one of those "Jolly Jumpers" they called them then (back in the early Pleistocene Age it musta been). Payback time!!
They have at least one in NYC and it sounds like one could maybe get a PT scrip for it. I'm on it, will report. |
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05-27-2009, 10:43 AM | #6 | ||
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Please do report back if you get a chance to try it. I would love to hear abouit your results. John |
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05-27-2009, 11:40 AM | #7 | |||
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In Remembrance
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Hi Rick,
Funny you should mention this looks like a baby bouncer. I made the following suggestion, a bit tongue in cheek, last year on a UK PD site, and was laughed out of court!!! http://pduk.org/forum/index.php?topic=1940.0 "Exercise bouncer « on: 17 November 2008 - 01:45 PM It is well Known that any exercise is good for PWP. I find my legs are just not strong enough to do the things I need to do, just apart from walking!! I was trying to think of a way to really exercise them, and build up some muscle. Suddenly I had a Eureka moment and thought, what we need is a full grown version of a baby bouncer! You must have seen them when a baby is starting to learn to walk, you put the baby in a harness and fasten the strong elastic straps to a top door post or a high frame. The baby bounces up and down, strenghening the legs, and bringing forward the date it walks for the first time. Any good DIY people out there, we just need some strong elastic straps fastened to an adult sized harness, and a hook that fastens in the top of the door post. I feel sure this sort of apparatus would be superior to the usual pedal bikes etc Ron" As they say Rick, great minds think alike!!! Ron
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Diagnosed Nov 1991. Born 1936 |
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05-27-2009, 07:06 PM | #8 | |||
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In Remembrance
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And get into serious hardware, Ron. We could do your Big Baby Jumper and my"Fry Your Spine" stimulator. Then there's the gait trainer and my tilt sensor.
But seriously, sort of, I was the winning bid on ebay this week on something you will find interesting. It is called a game vest and was made by a company for a few years but discontinued about five years ago. It has a sub-woofer mounted in the back. A sub=woofer is a very low frequency speaker like the kids use to rattle neighborhoods with as they drive by. The idea was that if you wore this vest while you were playing a video game that you'd feel all the commotion on the screen. The reviews indicate that it did an amazing job of doing just that. I intend to use it with music to explore vibrational effects like that chair or the plate you and I looked at some time ago. But instead of multi-thousand dollars I got this one for 20 bucks! If you search ebay for game vest you may find others. I even think it was a British company. Hey, enjoy your trip! -Rick Quote:
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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05-28-2009, 12:43 PM | #9 | ||
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Well, as long as we are ready to try anything how about testing the anti gravity effects of a life prerserver vest (0r a simple swim ring ) in your hot tub or pool? Bob C
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Be not by whom the first is tried nor the last to lay the old aside. . |
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05-28-2009, 03:22 PM | #10 | ||
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Well, actually I think being in water is great stuff. When I have dystonia, if I immediately rolled into a swimming pool it would go away instantly, like a candle being snuffed out by water, my limbs instantly fluid and mobile and relaxed....The problem is I don't have a swimming pool in my apartment. ANd even a hot tub wouldn't do it - I have to have enough water to float unencumbered....
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"Thanks for this!" says: | vlhperry (05-28-2009) |
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