Parkinson's Disease Tulip


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Old 06-17-2009, 07:04 AM #1
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jeanb jeanb is offline
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Join Date: Aug 2006
Location: sonoran desert
Posts: 1,352
15 yr Member
Question About PD progression... ?

At the Wisconsin Parkinsin Symposium on June 12, 2009, the first speaker, Dr Nausieda, MD, made a very interesting statement.

If I remember correctly, he said that after 10 years of Parkinson's, there is no more disease progression. When he didn't say (and I didn't get a chance to ask) was:

- when does he start counting the years?

-- time of diagnosis? - this would vary widely
-- time when you first lose sense of smell or stop arm swing? (I lost sense of smell 20+ years ago & stopped arm swing 15+ years ago)
-- when you get that first tremor? (but not everyone has tremor)

I'd never heard this before and plan to ask my MDS what she thinks.

Has anyone else ever heard this?
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This isn't the life I wished for, but it is the life I have. So I'm doing my best.
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