I can help out as well as an editor and page layout/designer. I worked for many years in the graphics/printing industry as a typesetter. I used to do things like packaging for companies that sold Triple-Edge wipers as well as those coupons that came with the FlavorFresh Fruit Salad - the one that was sold in the 5 pound jars back in the early late 1980s early 1990s.

Before anything is committed to paper or disk, we need to come up with an outline of some sort. This will help keep the scope of the project intact so it for one doesn't take forever and a lightyear to produce, and also to keep the project from wandering off on its own journey to nowhere.

As I said I can help out any way I can.

John

My S.O. may be able to do the printing, depending on the layout, and our expectations.

Rick,
Thanks. Didnot think it was a sign up sheet..... Please feel free to use my posts if you feel they are useful. Thanks
Girija

Going back through and listing only those who have explicitly agreed to use of their posts and those who have offered editorial time:

Posts: Myself, Fiona, Bluedahlia, Lindylanka, Sasha, Girija,


Editorial: Myself, Fiona, Lindylanka, jcitron, bluedahlia,

Who else in either category?

Here are some ideas for chapters or whatever that would appeal to me - off the top of my head:

1. a very brief history of the disease - discovery and naming, no treatment days, advancing knowledge and tx possibilities

2. First symptoms - the stuff that puzzled us all - and often the first 10 docs we saw, too

3. Diagnosis - age, place, methods, how we were told, our reactions and our families' reactions

4. Treatments - standard and benefits/problems

5. Treatments - alternative and complementary

6. Treatments - development of and clinical trials - and fraudulent modalities

7. Social relations - with friends and family

8. Personal/intimate realtionships

9. Work

10. Disability

11. Community Support and advocacy

12. Research (maybe sections divided out by main areas) and how to access information

13. Personal hopes and what we do to sustain ourselves and one another socially, emotionally, vocationally, spiritually, avocationally....etc


What do you think? Am I way off the mark? How do others envision this?

Assuming that we stick to plan and only use posted material, it is probably going to come down to who gives permission since that determines what we have to work with. So come on, you big posters! (I feel like I'm working the local PBS fundraiser. )

Rick: As is the case with me, I believe many who post here do not believe they have book eligible materials in their posts. Someone (the as yet unidentified project leader (RICK?) would probably have to write a narrative piece to accompany posts. I have done some independent commentary for another site and would be willing to send it for review. Bob C Send PM with email id.

Bob-
Of course you have eligible material! Everyone does. We don't know how much will come through the editing process (only a fraction of course) but if many of us OK usage we will just go for the cream, as it were. As for project leader, I don't mind writing (perhaps you noticed ) and will be happy to do a preface or such, I want to stress the collective idea. That's part of the charm. But there'd be copy for each chapter and so on. As to my email, use the one in my signature.

A Warm Hello to All!

This looks like a great idea!
I am "new" to the Parkinsons forum and would like to help out; yet, I am so new to this particular topic that I am truly just learning about Parkinsons and the related issues. My failure to volunteer does not reflect my lack of enthusiasm for the project proposal. I think this is a great idea! I just do not know how to help with your project at this time.

I will write a more proper introduction here shortly.
I am currently reading small portions of this forum as I am currently overwhelmed with a flu-like illness, in addition to neurological illness.
Thank you for your kind patience.

My very best to each of you~

I was at a guitar convention last week and am just seeing this post now. I think a book is a great idea. I have thought of writing a book myself. I would like to have my posts used, especially since I had a hard time getting diagnosed. I think my story needs to be told. A prominent movement disorder specialist told me there was nothing wrong with me in Jan. 2000. In Dec. 2005 I started Mirapex and in Jan. 2006 my present neuro declared that I had PD. I would be glad to help.